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Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 7/15/2010 5:55 PM (GMT -6)   
Quick question ....
I love the concept of Sure Seals, they however don't love my skin. Always get red and rashy after 2-3 days wear time. Is there another similar product available?
Thanks guys!!
 
-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 7/16/2010 8:36 AM (GMT -6)   
I use the Salts stoma collar and find its great. Perhaps you could try that! Good luck and let us know how u get on
Doreen

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 7/16/2010 10:21 AM (GMT -6)   
Thanks Doreen, but I don't have a leakage problem. I swim a lot and love how the Sure Seals cover the baseplate so it dosen't get wet. Still on the look out for any other products!

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 7/16/2010 11:35 AM (GMT -6)   
Hi, I used to use sure seals for extra protection the first time I ordered they were a pinkey colour and I came out in a rash I spoke with stoma nurse and she ordered some others which were fine. I can't remember the code but, you could explain to the suppliers whats happening and they can advise you. Hope you soon get it sorted Bev x 
Diagnosed with crohns at 13 now 43
Still battling with Doc's to get me on maintenance Meds only taking
Lomotil, 20mg citalopram,VSL#3 at the moment.

“I may not be where I need to be but,
I thank God I’m not where I use to be “


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 7/16/2010 4:18 PM (GMT -6)   
Ron, what kind of skin prep?
Bev, will do!! Thanks! *hugs*

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/16/2010 4:52 PM (GMT -6)   
Mine are Smith & Nephew...but I don't use it that far away from my stoma.

Is the rash all over or just in spots? I get creative with my wafers and seals by trimming them to different sizes which gives my skin time to 'breath' if it's a little red (I don't get the itch tho) without affecting the wearability.

I think it is so cool to find so many of us adapting to our new lives and not just settling for a process because that's the way...we find better ways!!!...the knowledge we have here is amazing!!!!

I hope you find a way to keep using them:)
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


jtaylor
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 7/19/2010 12:36 AM (GMT -6)   
Allison, I had the same problem with sure seals irritating my skin. I found a pretty decent replacement by using convatec duoderm extra thin 4"x4" wound dressings. I just cut the square into four equal strips use those to form a seal around the outside of my wafer. I received the suggestion to use this set up from a nurse at the Mayo clinic a few months ago and it has been amazing. I can wear this for 4-5 days without any irritation.

LittleSisSmurf
Regular Member


Date Joined Apr 2006
Total Posts : 164
   Posted 7/19/2010 8:53 AM (GMT -6)   
This might not be helpful but I started out using the thicker ring that was sticky on both sides which irritated my skin and left alot of adhesive on my skin. So my ostomy nurse brought out another thinner one which seems to be going well. Sorry but she just gave me the order number and no name for it?? Im guessing not all seals use the same adhesives.. Good luck

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/19/2010 8:59 AM (GMT -6)   
what you could do, if its just a small place under your sure seal, is cover that place with a little bit of gauze until it heals under there. It looks really funny, but it works i have done that before.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 7/22/2010 10:51 AM (GMT -6)   
Thanks everyone! Ordering some supplies today so going to give some of your ideas a try!
suumer, it's all the skin that the SS touches. Ick.
Ohio, think I can cut the SS's to cover the baseplate, like maybe 1/4" or less adhearing to the skin and it should stick?
LittleSisS, lol, thanks!
jt, ordering that now! will give it a try.
Ron, thanks, ordering it now!!

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 7/23/2010 9:41 AM (GMT -6)   
LOL @ Ron, will do. More interesting driving challanges for me in the works. Go figure, people like watching a tattoo'd chick drive. LOL.

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

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