what supplies to order?

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Veteran Member

Date Joined Aug 2008
Total Posts : 5951
   Posted 7/18/2010 11:45 AM (GMT -6)   
I am new to this. My total colectomy/perm ileo was performed on June 28th. My ostomy nurse ordered supplies from Hollister but the only things ordered were the one piece filtered bags, skin barriers and Adapt lubricant. My bag was leaking at the sides today where the lock and seal is so I changed my bag. I noticed a bit of redness but I have no cream here. Any suggestions as to what else to order? The nurse I have from the home health care doesn't seem to know any more than I do about this..lol.

Veteran Member

Date Joined Dec 2008
Total Posts : 1325
   Posted 7/18/2010 12:32 PM (GMT -6)   
Christine, you can't use cream because then the bag will not stick. You need stoma powder and allkare protective barrier wipes. The stoma nurse taught me to "crust" the redness around the stoma by applying the adapt stoma powder, then wiping the excess off, then dabbing the powder with the allkare barrier wipe and I am to repeat this 3 times....this leaves a protective layer over my skin and allows the area to heal. I did have a yeast infection around my stoma though and they gave me a prescription powder, nystatin, and I am to use it the same exact was as the adapt stoma powder.

Please call me if you need to...Tracy
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy

Regular Member

Date Joined Apr 2006
Total Posts : 164
   Posted 7/18/2010 12:57 PM (GMT -6)   
I had 2 GREAT ostomy nurses who gave me all free samples of things I would need in case I have any problems and I have had to use the powder for irritated skin around the lower part of my ostomy. They mentioned that their supplier delivers to my home when I need it. Wish u a happy life...Celine
37 yr old woman diagnosed with crohn's colitis 1998.(symptom free for 10 yrs.) The last two yrs. Ive been on prednisone, Imuran, remicade, and humira. Had surgery and got permanent ileostomy may 28th 2010. 19 yr old son also diagnosed with crohns disease..

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 7/18/2010 1:29 PM (GMT -6)   
Hi, I would order some adhesive remover its so much easier to remove the bag without tearing your skin also, eakin seals which help to stop leakage. Don't worry christine you will be a proffesional in a few months! Bev x
Diagnosed with crohns at 13 now 43
Still battling with Doc's to get me on maintenance Meds only taking
Lomotil, 20mg citalopram,VSL#3 at the moment.

“I may not be where I need to be but,
I thank God I’m not where I use to be “

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 7/18/2010 3:16 PM (GMT -6)   
these are the things i use
adapt paste
m9 drops (only when i am going somewhere)
gelx tabs (only when i am going somewhere)

i have some other stuff, like the adhesive removers but i never use them cause they are slimy feeling, and i just havent found a need.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

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