Well, I'm one who lived with a temporary ileo, for about
8 years, before I had my colon removed. It does help with the fistulas in that the drainage isn't as bad, but they don't heal
Your son will still have to have colonoscopies about
every year or two and the mucous drainage from his bottom will vary in amounts. He WILL have to (should) be on medication, too, while he has the diseased colon
It will help keep the disease from going totally crazy.
There wasn't a cure, for me, but I guess I always hoped there might be! My surgeon's stats were that, at about
10 years without small bowel involvement, I was dealing with decent odds what I have left for small bowel will be ok. Has he only had rectal disease?
From my point of view, he has to do what his mind can accept, so if this is what he wants to do...ya know! Just make sure he continues to be screened and I bet one day, in the not so far off future, he'll have the colon/rectum removed! It was the best decision I ever made and was my 40th birthday gift to me!!!
p.s. No one will know he has an ileo unless he tells them
I'll be thinking of both of you tomorrow!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008