Crohn's coming back???

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Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 7/22/2010 11:10 AM (GMT -6)   
Hi everyone,
I'm freaked out and crying because I've had Crohn's like symptoms in the past 6 days and am not sure what to think or do.
Some background, have had constant loose stool for 3-4 months:
Was on the road July 2-12 eating out every meal. Drinking lot's of water. No problems while on the rally.
Thursday night, at home, ate some steak and mashed potato's (have a colostomy, food has never been a problem). about an hour later my insides felt like they were tearing apart. Very little poop, sharp side pain, felt really gassy. Woke up to a full pouch.
Last night ate pizza, and an hour later, throwing up, sharp side pains and rolling pain in my tummy. Little poop all day. Couldn't sleep because of pain and took some Aleve around 2am then fell asleep. Woke up at 7am to a pouch full of loose poop.
Guys, im freaking. Same symptoms but now instead of uncontrollable poop, it goes into my pouch but unlike Crohn's the pain does leave most of the time. Please tell me it's not Crohn's returning, I don't think I can tolerate any more surgeries.

Thanks
-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/22/2010 6:28 PM (GMT -6)   
Allie,
I'm so sorry you're going through this. sad It sounds like a partial blockage to me. They can happen after any abdominal surgery and are caused by adhesions (scar tissue), so it's probably not the Crohn's coming back.

You should let your gastroenterologist or surgeon know tomorrow, just in case they want to order an X-Ray. If it becomes a full blockage (which is no output with pain and vomiting), go to the Emergency Room right away.

If you keep getting output, but still have pain, your doctor can call in some pain medicine to the pharmacy to give you some comfort.

Take care and please keep us posted on how you're doing.

(((BIG HUG)))
Cece
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 7/22/2010 9:40 PM (GMT -6)   
Allie...I am right there with flchurchlady. Sounds like a partial blockage to me. My son had numerous blockages while he had his ileostomy, some of which sound exactly like what you are going through. I would let your doctor know and see what they say. Make sure you walk a lot, massage your belly and most important keep hydrated. You wrote that at 7am you had a bag full of loose poop and you were writing this at 11. What has happened during that time....any output? Remember that a blockage can just as easily result in a ton of watery output as easily as no output. If you cannot keep hydrated you really need to be seen by someone. Anytime you have sharp pains they should not be ignored.

shakehead

I am really hoping that since it is now 10:30 pm that this has resolved and you are feeling a lot better.

Cathy :-)

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/22/2010 10:53 PM (GMT -6)   
im also thinking blockage.
If you have access to a hottub that works great to loosen it.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/23/2010 6:04 AM (GMT -6)   
I'm with everyone else...vomiting and little output is usually an indication of an SBO. Please call your doc.

Crohnies shouldn't take Aleve or Advil (can increase bleeding)...could you take Tylenol to help with the pain? And, if you don't have a hottub...try a heating pad...but don't put it on your appliance!!

(((HUGS)))
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 7/23/2010 9:34 AM (GMT -6)   
Thanks everyone!
Saw my Dr. yesterday afternoon, he say's I have probably been having partial blockages. Yuck. Sorry for the freak out, has never happened in the 8 months since I have had a colostomy. Now that I know what it is and what to do I am better prepared if it happens *shudder* again.
My Dr. signed me up for a colonoscopy....and now this has me freaking out a little. Has anyone had one through their stoma? My Dr. said I can drive myself to the hospital as no drugs will be used, really???
Ohio, has always been a catch 22....I'm allergic to Tylenol so Aleve it is.

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 7/23/2010 10:41 AM (GMT -6)   
Allie...my son, Dillon, did not have a scope through his stoma but he did have an issue with a blockage right behind the stoma and had to keep inserting a tube, by himself, through the stoma to straighten out the kink in the intestine. He would insert the tube about a foot....IT DID NOT HURT AT ALL....he said, except for some pressure, he could feel nothing. You have to remember that the intestine has no feeling. This is nothing to worry about.

Cathy

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/23/2010 1:31 PM (GMT -6)   
Allie,

I'm glad you spoke with your doctor. My gastroenterologist once stuck her finger in my stoma, and it didn't hurt at all. I hope the scope goes well, and you don't have any more blockages.

:-) Cece
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

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