Surgery on Tuesday, scared!

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cherrygoth
New Member


Date Joined Jul 2010
Total Posts : 10
   Posted 7/22/2010 4:13 PM (GMT -6)   
Hello! I'm a 22 year old girl and I'm having my colon removed on Tuseday, having a pouch for about three months and then having another op to get it reversed so that I won't have a permanent pouch. (Reason being, I had some polyps and two of them turned out to have a few cancer cells so I'm having the colon removed to prevent future problems.) I have a couple of questions:

Firstly, when you have the pouch, do you have to empty it as soon as you have a movement? I work on the checkouts in a supermarket and I'm worried because it's not always possible to get off the checkout straight away - supervisors are never around when you need them!

And secondly, does anyone else really, really hate hospitals? I think I'll be okay after the surgery, just incredibly bored. It's just the waiting that I hate I guess, and worrying, what if something goes wrong, how safe is the surgery, and just being there in general, I hate it! I didn't have a thing wrong with me in my life until January this year, and going into hospital the first time really scared me. I suppose it gets a bit less scary each time, but I just hate being there and feeling vulnerable, etc. Any advice? Thanks. :)

EricP
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/22/2010 5:24 PM (GMT -6)   
I am an ostomy bag rookie still, but when I first started being able to get out of bed at the hospital it really bothered me when any stool whatsoever got into the bag. Just the small amount of pulling on my skin really got on my nerves. I started searching around for support belts on the internet and came across the Stealth Belt. There are many support belts out there, but I went with this one because it really is stealth. You can not tell that anything is even under your shirt. The belt serves two functions for me. With the bag turned horizontal and in the pocket of the support belt you don't have to worry about it hanging down and swinging around. Second, it carries the weight so you don't have the tugging at you skin.

I guess the simple answer to your first question is no. If I am at home I usually dump more that have to. I have been at the mall and let it probably too full before I got a bathroom to dump.

Eric

Disclaimer- I am in no way, shape or form affiliated with Stealth Belt.

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 7/22/2010 6:22 PM (GMT -6)   
Well when you have the ileostomy bag you won't have to empty it as soon as it fills up. Although with a one piece pouch, you will notice the weight. I started using a two piece after about 3 weeks. Two piece has the part that sticks on your skin, wafer, and the bag which snaps on and you can get an elastic belt that hooks on to the sides of the bag and keeps it from popping off (which has never happened to me) and it also helps prevent the bag from pulling on the wafer.

The reversal, I'm assuming, will be a j-pouch if they are removing your entire large intestine. Even though I haven't had my reversal, I still have mucus/water like stuff that comes out down there. I'm able to hold it with no issue, but if I go for too long it starts to feel weird. Like someone punched me in the stomach sorta.
Don't be surprised if there is some blood/fecal matter that comes out after surgery. You also my have gas.

Also I hated being in the hospital. I was in the hospital two times; I had to go back 3 days after I was released the first time cause I ate at Steak n Shake and was extremely dehydrated and it caused a blockage.
Anyway, I took my cell phone, laptop, DS, and some computer books to read. Also after the first part, you will probably be so doped up on morphine that you won't even remember the first couple of days.

Surgery is safe, although my abdomen was very tender afterwards. Getting out of bed was difficult at first and I was unable to sleep on my side for a while. Try and walk as much as possible. It does get annoying cause I had the IV hooked up to me, a wire for the pain pump, and a catheter and everytime I had to get up I had to unplug the IV and the pain pump and make sure that all the wires weren't tangled.

What else...Make sure to take it slow with the foods at first, stay hydrated. Don't get upset if the first couple of times you have difficulty with the ostomy bag, although you will have an ostomy nurse teach everything about it. If they haven't taught you about it, make sure you do the kegal exercises since you won't be using your butt muscles as much to hold stuff in.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/23/2010 5:35 AM (GMT -6)   
First, welcome to the forum! It's normal to be worried before a surgery...when you get to the hospital and are checked in you can ask for something to take the edge off. In fact, you can talk to your doc ahead of time so they can have it in your orders:)

I worked as a cashier for many years when I first became an ostomate...you'll find that you won't have to worry about that:) Just make sure that when you eat lunch or dinner you empty before you go back to work!!

Make sure you bring your Ipod/MP3 Player! It's great to sleep with, too!

Walking will be VERY important in your recovery...your nurse will have you up soon after for your first time...it helps to get your guts moving (which will get you home sooner:))

Good Luck and let us know if you have other questions!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/23/2010 5:35 AM (GMT -6)   
First, welcome to the forum! It's normal to be worried before a surgery...when you get to the hospital and are checked in you can ask for something to take the edge off. In fact, you can talk to your doc ahead of time so they can have it in your orders:)

I worked as a cashier for many years when I first became an ostomate...you'll find that you won't have to worry about that:) Just make sure that when you eat lunch or dinner you empty before you go back to work!!

Make sure you bring your Ipod/MP3 Player! It's great to sleep with, too!

Walking will be VERY important in your recovery...your nurse will have you up soon after for your first time...it helps to get your guts moving (which will get you home sooner:))

Good Luck and let us know if you have other questions!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


cherrygoth
New Member


Date Joined Jul 2010
Total Posts : 10
   Posted 7/23/2010 3:18 PM (GMT -6)   
Thank you so much for all your replies, they're really helpful. :)
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