Posted 7/22/2010 5:22 PM (GMT -7)
Well when you have the ileostomy bag you won't have to empty it as soon as it fills up. Although with a one piece pouch, you will notice the weight. I started using a two piece after about 3 weeks. Two piece has the part that sticks on your skin, wafer, and the bag which snaps on and you can get an elastic belt that hooks on to the sides of the bag and keeps it from popping off (which has never happened to me) and it also helps prevent the bag from pulling on the wafer.
The reversal, I'm assuming, will be a j-pouch if they are removing your entire large intestine. Even though I haven't had my reversal, I still have mucus/water like stuff that comes out down there. I'm able to hold it with no issue, but if I go for too long it starts to feel weird. Like someone punched me in the stomach sorta.
Don't be surprised if there is some blood/fecal matter that comes out after surgery. You also my have gas.
Also I hated being in the hospital. I was in the hospital two times; I had to go back 3 days after I was released the first time cause I ate at Steak n Shake and was extremely dehydrated and it caused a blockage.
Anyway, I took my cell phone, laptop, DS, and some computer books to read. Also after the first part, you will probably be so doped up on morphine that you won't even remember the first couple of days.
Surgery is safe, although my abdomen was very tender afterwards. Getting out of bed was difficult at first and I was unable to sleep on my side for a while. Try and walk as much as possible. It does get annoying cause I had the IV hooked up to me, a wire for the pain pump, and a catheter and everytime I had to get up I had to unplug the IV and the pain pump and make sure that all the wires weren't tangled.
What else...Make sure to take it slow with the foods at first, stay hydrated. Don't get upset if the first couple of times you have difficulty with the ostomy bag, although you will have an ostomy nurse teach everything about it. If they haven't taught you about it, make sure you do the kegal exercises since you won't be using your butt muscles as much to hold stuff in.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010