I got my ileostomy on March 18th and then basically had it revised on June 8th because of a twist in my intestine/complete blockage. :(
Everything was healing GREAT after my first surgery, but ever since this second surgery, I've had pain in the left side of my abdomen after I eat. I have been to the dr countless times, thinking it was a blockage. I have even been to the ER. I have had a CT with contrast done, a regular CT, a small bowel series, and lots of blood tests. Everything comes back relatively normal. The only weird thing was that the barium small bowel series took about twice as long as my surgeon thought it should have, but it didn't show a blockage. I feel very full after eating just like a pb and j...it's like I've eaten a Thanksgiving meal. I don't know what this could be and I am at my wits' end. My surgeon says it may be adhesions but wants to wait to do surgery (as you can't tell if it's adhesions without actually looking inside/doing surgery) since I've just had two surgeries in such a short period of time. Supposedly my pancreas looks fine so they don't think it's pancreatitis. As of right now my surgeon wants to wait two more weeks to do anything to see if it gets better, but I'm doubting it will. It feels like a side cramp, but closer to my belly button. I'm so SICK OF FEELING LIKE CRAP!!!
Does anyone have any idea what this could be? I feel like I've exhausted every option.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention).