Now I can't wait for Friday to come already!

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ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 7/24/2010 11:16 PM (GMT -6)   
I'm scheduled for surgery on the 30th, ileostomy ... again.
Right now I'm going to the bathroom almost every hour, tired, pouchitis seems to be taking over my body and this JPouch just isn't giving me a break!
The past year since my JPouch surgery I've had my ups and downs, and it's made me so tired. I'd feel great when the antibiotics used to work, and now it seems like nothing helps at all. I can't wait to get a break from it all, with my ileostomy. I've embraced the idea of it finally and realize that it will make me better and stronger.
I'm glad to have a great supporting wife and a daughter who makes me want to keep on fighting this fight until I get better.

Hope everyone is doing well ...

beachtrip1
New Member


Date Joined Jul 2010
Total Posts : 19
   Posted 7/25/2010 7:23 AM (GMT -6)   
Best wishes to you for your surgery.  I have found that this experience is easier with people around who love me and just want me to feel better!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/25/2010 7:32 AM (GMT -6)   
I'm praying that your surgery on Friday goes perfectly and that having an ileostomy gives you relief from pain and constant bathroom trips. It has done that for me, and I'm so grateful for it.

:-) Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 7/25/2010 7:51 AM (GMT -6)   
Quality of life is paramount; here's to your improving health come Friday!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


fish1
Regular Member


Date Joined Jan 2010
Total Posts : 106
   Posted 7/25/2010 7:36 PM (GMT -6)   
good luck withe the surgery...best decision I ever made for my health. I watched the sun rise from my kayak this morning. 4 hours and didn't think about a bathroom! nono
50 yr old man, Colon Cancer survivor 2005
90 % of colon removed 2005 The rest 2-23-10
Illistomy  Feb-23-10
Fishing in the Kayak somewhere the rest of my Life!
<*(((((><


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 7/25/2010 7:46 PM (GMT -6)   
Thankfully you will be on the road back to health and enjoying your life to the fullest!...I am sure that the surgery will go very smoothly...you are due!

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 7/25/2010 8:39 PM (GMT -6)   
Thanks all for the encouraging words!!! I love it here ...
Time can't tick fast enough now!

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 7/25/2010 8:45 PM (GMT -6)   
I'm sorry you're having such a hard time.
You have our support and we all want you to keep fighting too!
I'll be praying for Friday!
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/26/2010 4:11 AM (GMT -6)   
I'll be thinking of you on Friday...sending good vibes for a speedy recovery, too!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 7/26/2010 8:16 AM (GMT -6)   
Thank you SOOOO much!!!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/28/2010 5:14 PM (GMT -6)   
Make sure you walk a lot after surgery to wake everything up, and bring chewable Gas-X, because trapped gas can be painful.

TGIF is going to have a whole new meaning to you soon! :-)
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 7/28/2010 5:39 PM (GMT -6)   
Good luck on Friday....I hope and pray you have a speedy recovery. I am a month post op ...feeling better every day. Keep us posted!!!

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 7/28/2010 6:50 PM (GMT -6)   
Feeling a bit of anxiety now. Had my pre-op nurse visits and it hit me that I was really going to be doing this. They're going to be doing a loop ileostomy on me because they don't want me to burn any bridges at this point. Plus I think I just need a break from it all. I'm so tired of being tired.
Nurse said they can't use my previous stoma site because they need an area with muscles?!?!? So they marked me on my left side ... any thoughts on that from anyone?

I think I may need something to calm me down on Friday prior to my surgery ...

Thanks everyone for the encouraging words ... I'm sure this is the right direction for me.

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 7/29/2010 10:26 AM (GMT -6)   
ucfree
  What are they going to do?  Getting what instead of a ileostomy ?  Hope everything goes well for you on Friday...all our prayers.
 
Leslie
Leslie King
 
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto
 
  


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 7/29/2010 4:55 PM (GMT -6)   
Leslie,

I'm getting a loop ileostomy ... right now the pain is just unbearable from the pouchitis and the frequency. Antibiotics just have stopped working all together.
Getting anxious, a bit nervous .. not sure if I'll be able to handle am ileo :/

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/29/2010 6:45 PM (GMT -6)   
As soon as you get to pre-op, they'll give you some medicine through IV to help you relax. Everything is going to be so much better once you're not in pain anymore. I'm praying that everything goes perfectly tomorrow!
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 7/29/2010 8:13 PM (GMT -6)   
Good luck with your surgery. I hope you get the relief that I have from my loop ileostomy. Tracy
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy
Take-Down-TBA
 


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 7/30/2010 7:02 AM (GMT -6)   
off the hospital I go .....
Thanks everyone for your support and prayers.

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 7/30/2010 8:06 AM (GMT -6)   
You are in our thoughts today!
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