1st vacation with ostomy.

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Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 7/25/2010 9:43 PM (GMT -6)   
TMI alert!
The following is not for the squeemish, but really, it's hard to be squeemish with an ostomy.

We went to CO and stayed at a very old family cabin and it doesn't have running water (it would if we filled up the tank and hooked it up-too much trouble; no well). So I was 'pooping' outside all of the time! It was cool. i dug a hole, got down on my knees, and emptied my pouch. I'd bury the hole, and Then I'd use a jug of water to wash my hands.
This may sound weird.....but It was awesome!
ahhhh.
I haven't been able to go to the cabin since I've been sick (b4 my ileostomy). The altitude was always hard on me, and I'd bleed a lot more. Plus, I did NOT want to squat outside 15x a day.

I had a great time. Another thing I noticed: My wear time was way longer. I wore one appliance the whole trip. 7 DAYS! I usually only get 5 days. I wonder if it had to do with the high altitude? It was very dry. Even my lips got chapped.

And, we saw 2 bears not far from the cabin.
I LOVE IT!
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/25/2010 10:11 PM (GMT -6)   
YAY im glad you had a good time!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/26/2010 5:13 AM (GMT -6)   
How GREAT!!! My hubby thinks it's cool that 'pooping' outside is so easy for me...what a goofball he is...but IT IS easy!! Glad you were able to enjoy the time away.
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 7/26/2010 2:40 PM (GMT -6)   
Thats awesome!!!
My husband gets a kick when I am changing the pouch and I start pooping and have to do the lean/inward bend over the toilet. He delights in saying "your the only one I know that can poop FACING the toilet.

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/26/2010 7:23 PM (GMT -6)   
So glad you had fun and got to enjoy the cabin!
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 7/27/2010 12:13 PM (GMT -6)   

That's the best thing I've read in a while. I have UC, and while I've never had surgery ... it scares me. Not all of the meds I'm on work the way they should, and I know that down the road, it may be a very real possibility.

And it's not the surgery that scares me...it's the thought of not being able to do the things I enjoy..one major one being taking a trip into nature, back into the bush, or wherever, but away from running water and the usual ammeneties. I almost feel like why should I start to make these things the most fun things in my life..."just in case" so I wouldn't be devestated if I couldn't do them anymore.

I actually just clicked over to this site to ask the question if it is still possible to do those kinds of things...and it appears it is.

Can you tell me if going into the bush for a few days is do-able? Can you keep everything clean enough without running water? I want to put my mind at peace that I can continue these things as long as I live :)

Great post!


Chuck - 29 yrs and counting
 
Diagnosed w/ UC Dec 08 - pancolitis
 -----------------------------------
Pentasa 4000mg daily, 150mg Azathioprine can't take - had low white blood cell count back on 50mg to try.
Prednisone   Calicium + Vit D
Vitamin B12, probiotics, fish oil
 
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/27/2010 1:05 PM (GMT -6)   
Glad you found what you were looking for, Chuck!!

The only thing I would worry about bringing would be hand sanitizer, a small roll of tp and you'd want to bring extra supplies and maybe a bottle of water in case you'd need to change your appliance.

An ostomy doesn't close doors on you...they open them smilewinkgrin
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/27/2010 1:45 PM (GMT -6)   
i think it would be easier to go in with a bag than UC! Your UC may not be like mine was, but i was in the bathroom every hour at least and sometimes more. With a bag its like every 4-6 hours, tops!
I would take some tp with me, and some jugs of water, and some alcohol wipes ( i like them better than hand sanitizer cause they actually get the stuff off) and a few ziploc bags.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 7/27/2010 2:23 PM (GMT -6)   

Awesome! You guys really made my day....and Chasblah, glad you had a good trip.

Nature is so rewarding and is a way to escape the stress of everyday life :)

Thanks guys!


Chuck - 29 yrs and counting
 
Diagnosed w/ UC Dec 08 - pancolitis
 -----------------------------------
Pentasa 4000mg daily, 150mg Azathioprine can't take - had low white blood cell count back on 50mg to try.
Prednisone   Calicium + Vit D
Vitamin B12, probiotics, fish oil
 
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 7/27/2010 10:32 PM (GMT -6)   
EXACTLY OHIO! smilewinkgrin
They make these little hand wipes that are antibacterial. We use them for our daughter, but they are also great for my pouch. I can clean up the spout, and then clean up my hands. I'd take a pack of those with you.

Chuck,
I can do soooo much more since i've had my ileostomy.
I've been camping, boating, rock climbing, and will be white water rafting as soon as i can plan a trip.
I would NOT have been doing them with uc. Imaging if i would've been at the top of a rock (or wall) and had to 'go'. It would be bad. and No chance of a boat ride, b/c I'm would not pollute the water that much.

My husband saw me emptying once, and he said "Good thing nobody can see you, because it looks really weird." I said "You mean Awesome!"
We're going back on Labor Day. I hoping for snow. wink
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 7/27/2010 10:43 PM (GMT -6)   
Chasblah said...

Chuck,
I can do soooo much more since i've had my ileostomy.
I've been camping, boating, rock climbing, and will be white water rafting as soon as i can plan a trip.
I would NOT have been doing them with uc. Imaging if i would've been at the top of a rock (or wall) and had to 'go'. It would be bad. and No chance of a boat ride, b/c I'm would not pollute the water that much.
 
 
 
AWESOME!!!!

Chuck - 29 yrs and counting
 
Diagnosed w/ UC Dec 08 - pancolitis
 -----------------------------------
Pentasa 4000mg daily, 150mg Azathioprine can't take - had low white blood cell count back on 50mg to try.
Prednisone   Calicium + Vit D
Vitamin B12, probiotics, fish oil
 
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/28/2010 5:48 AM (GMT -6)   
Chuck,

I'm so glad you found us! I love my ileostomy, because now I can live my life and have fun without caring where the nearest bathroom is. I had Crohn's in the colon and rectum and was going to the bathroom every hour, like summerstorm. It's the best feeling in the world to not be sick anymore! I don't have to visit doctors or take medicine, plus I have tons of energy. Nobody can tell that I have one either. Life with an ostomy is AWESOME!! smilewinkgrin

Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

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