That's the best thing I've read in a while. I have UC, and while I've never had surgery ... it scares me. Not all of the meds I'm on work the way they should, and I know that down the road, it may be a very real possibility.
And it's not the surgery that scares me...it's the thought of not being able to do the things I enjoy..one major one being taking a trip into nature, back into the bush, or wherever, but away from running water and the usual ammeneties. I almost feel like why should I start to make these things the most fun things in my life..."just in case" so I wouldn't be devestated if I couldn't do them anymore.
I actually just clicked over to this site to ask the question if it is still possible to do those kinds of things...and it appears it is.
Can you tell me if going into the bush for a few days is do-able? Can you keep everything clean enough without running water? I want to put my mind at peace that I can continue these things as long as I live :)
Chuck - 29 yrs and counting
Diagnosed w/ UC Dec 08 - pancolitis
Pentasa 4000mg daily,
150mg Azathioprine can't take - had low white blood cell count back on 50mg to try.
Prednisone Calicium + Vit D
Vitamin B12, probiotics, fish oil
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"