Hopefully flchurchlady will be along...she only had disease in her colon and had a proctocolectomy w/end ileo...there are others on here that have done that too!
For me, I had both small and large involvement...small first and then it was active in my large when I had my proctocolectomy...the percentage gets smaller every year, and 10 years is the major mark, that the disease won't come back in the small(knock on wood!!!).
Maybe you could check out some of the studies and see what the percentages are for small bowel involvement after colon removal.
What does your doc recommend? Have you gotten a second opinion?
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008