Colostomy Reversal

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dreamer06
Regular Member


Date Joined Jun 2008
Total Posts : 221
   Posted 7/26/2010 6:23 PM (GMT -6)   
I really want to have my colostomy reversed. I have had it now for 1.5 years. My doctor wants me to wait until I am done with university. That is about 2 years from now. I think she is just hoping that by then I wont want the reversal anymore. I feel though that I would rather have it done now have to take a semester off school again than wait till I graduate have a job then the possibility of quitting.

I got my colostomy because I was having such a large number of abscesses. I was having surgery for them every month for a while then I got my colostomy and haven't been to the hospital since. Though I hate it, mostly because of the way it shows under all my clothes. I also can't get a guy to come within 10 yards of me once they find out. I was not one of the people who was running to the bathroom every few minutes unless I was in relapse, it was just the abscesses. The thought was that if I was able to let my colon and rectum rest it would get better and it seems it has.

Here's my question. Does anyone have an opinion of when I should get it done. Now or once I graduate from university. Second, I have looked online and all I can find are peoples horror stories about how once they had the reversal they were going to the bathroom more and had an osotomy again. I just want to know will I most likely end up with an ostomy again, should I go for it an get it reversed like I want to. Does anyone have a positive reversal story and have not ended up in hell?
Diagnosed with Crohns Oct. '07.  Have had 9 abcess/ fistula surgeries.  Colostomy 20 March 2009.
 
Current Meds:
Imuran 200 mg                            Omeprazole 20mg                     Vitamin D 2000 i.u.          Remicade 10mg x8wks
Synthroid 112mg                          Lexapro 20mg                           Tylenol  50mg
Birth Control                                 Calcium  500mg                         Morphine 40mg
Sucralfate 1gm x4                         Multi Vit                                     Cyclizine   50mg
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/27/2010 6:12 AM (GMT -6)   
We are all different so it's hard to say what will happen to you...if you have quality of life right now, you may want to finish school, then think about the reversal...but know that it may delay your entry into the 'real world'!! Each person wants to know that they've done EVERYTHING possible to get there life back. Is the Remicade working to close the fistulas?

I had horrible perianal disease with many fistulas which were not affected by my temporary ileo...when it was reversed they acted up again:( I now have a permanent ileo, I am MED FREE and couldn't be happier with my quality of life.

I know that it isn't easy being young, going to school, trying to be normal and having this disease. Just know that the right guy is out there...many of us have found ours...the right one will love you for who you are and not run away because of your modified plumbing! Hang in there!

What specifically shows under your clothes? I can wear anything that I want (except really low jeans cus I'm old!) and that includes bathing suits and gym clothes...no one knows that I have an ileo until I tell them:) Maybe some of the younger posters can give suggestions:)!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

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