Bag that won't fall off in the summer heat?

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springostomy
New Member


Date Joined Jul 2010
Total Posts : 4
   Posted 7/26/2010 10:46 PM (GMT -6)   
Hey all - I'm a pretty active guy - 45 yrs old and had cancer a few years back - got myself an illeostomy that is very little trouble.

Except when it's hot outside - I last about 15 minutes and the thing comes apart and falls off.

What's funny is I've put up with this for 6 years now and am finally asking advice. Typical.

You sports people >>> What kind of drainable ostomy pouch can you wear:
1) swimming /rafting the river or hot tubbing and
2) Mowing the lawn when it's 103?

Thanks and I'm glad I'm not alone in this crazy deal

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/26/2010 11:12 PM (GMT -6)   
i just wear the hollister new image with adapt paste and thats all.
Are you using skin barrier wipes? if you are thats probably your problem, if i use those and i get my wafer even like the tiniest bit wet it comes right off!

I go swimming, in the hot tub, and i mowed the lawn, weedeated, and went to the dump when it was a 102 the other day, not smart but not a problem either.

just tell us what you are doing and maybe we can trouble shoot!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/26/2010 11:12 PM (GMT -6)   
oh, oh and get sureseals they are like the answer to everything!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


springostomy
New Member


Date Joined Jul 2010
Total Posts : 4
   Posted 7/26/2010 11:29 PM (GMT -6)   
Man I like your style - take no prisoners with the ostomy. That's encouraging...

Ok - I thought the skin barrier wipes helped it stick on. I'm off to try a non-barrier wipe dry run (no pun there eh?)

sureseals - I'll be ordering them tomorrow. Got to get back in the fray with my 3 teenage sons!

Thank you for taking the time to write.

sno92c
Regular Member


Date Joined Sep 2009
Total Posts : 81
   Posted 7/26/2010 11:44 PM (GMT -6)   
What are sureseals and do they come in a specific brand?
Diagnosed in 2004 with Crohn's disease. Resection in 2009. Have tried almost every medication and nothing has worked. Total proctocolectomy June 16, 2010


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/27/2010 5:48 AM (GMT -6)   
I just spent 10 days on Cape Cod (it was an unheard of 90+ everyday) swimming in the ocean and only had one change (regular change schedule) smilewinkgrin

I use Coloplast Extended Wear wafer, an Eakin Seal and top that off with a Sure Seal (I do use Skin Prep but only right around my stoma)...I'm also a runner, kayaker and anything else that catches my attention...and have no problems.

Sure Seal is made by Active Lifestyle and you can find it through most suppliers.

My guess is either your soap has something in it (like moisturizer) or you are going too far away from the stoma with the skin prep which, when it gets wet, can release the wafer shocked In my early ileo days I did have that issue and it was resolved by limiting where I put the prep!

Good Luck, springostomy, and let us know how it goes...welcome to the forum, too!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 7/27/2010 8:52 AM (GMT -6)   
Hi Springostomy, welcome to healingwell. Since you started this lovely thread, I had a question about sureseals. LOL


I bought some sure seals and they are way bigger than the barrier itself. Can we cut the barrier smaller? If I wear it as it is now, it will cover my belly button...UGH I have yet to put one on because of this.

Thanks, Tracy
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy
Take-Down-TBA
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/27/2010 11:11 AM (GMT -6)   
it needs to go out past the barrier some or it wont keep it dry! but you can cut it. How do you know it will cover your bellybutton if you havent put one on yet? It may look like it if you have just placed one over it with the back on, but when they stick they kind of scrunch down. I dont know how to explain that, lol.

springostomy-ohio brought up a good point about your soap, that could be a problem also. I guess the barrier wipes though, because thats what happened to me at first. I think that happened to a lot of us, because from what i was told by the ET she tells all her patients to use them. So stands to reason that most Ets do the same thing.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/27/2010 6:27 PM (GMT -6)   
Welcome springostomy,

I live in Florida where it's hot 6+ months out of the year, so I had to find a wafer that would stay on when I'm sweaty or wet, because I have to shower every day.

The best one for me has been the same wafer OHIO76 uses, which is the Coloplast Assura Extended Wear Wafer #2833 with cloth covered drainable pouch #13986. I stick it on dry skin with some Stomahesive around the hole, and it stays on for 7 days, and that's after exercising and spending a day at the waterpark. You should definitely give it a try!

:-) Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 7/29/2010 11:47 PM (GMT -6)   
another vote for coloplast.
i use coloplast sensura with eakin seal, then picture framed with hypafix. Gives me a great weartime- and I have a retracted stoma so the bag used to fall off all the time!
33 years old, dx with Crohn's in 1998. Currently on :
Clofazimine 100mg daily,
Rifampin 600mg daily, and Clarithromycin 2 tabs daily
and Cipralex 10mg/day for anxiety.
Hydroxyzine, percocet, Ativan as needed.
5g pharmaceutical grade Omega 3's, 1000IU's Vitamin D3 daily
2 Perianal fistulas, and 1 more suspected. Crohn's only at end of colon, cecum. Remi, Asacol, Salofalk, Imuran, Humira did nada. Built immunity to long-term Cipro use, which also induced panic attacks.


fish1
Regular Member


Date Joined Jan 2010
Total Posts : 106
   Posted 7/31/2010 7:34 PM (GMT -6)   
There are two sizes of the surseals so you may need to check and get the one that fits your wafer the best. I use both depending on which brand wafer I am putting on.

50 yr old man, Colon Cancer survivor 2005
90 % of colon removed 2005 The rest 2-23-10
Illistomy  Feb-23-10
Fishing in the Kayak somewhere the rest of my Life!
<*(((((><
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