Ileorectal Anastomosis take down question

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UC in UT
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Date Joined Jul 2010
Total Posts : 36
   Posted 7/30/2010 3:47 PM (GMT -6)   
**I posted this in the UC Forum as well but was thinking this forum may be a better fit*

I do not want this post to be redundant but I did search the site for past threads related to Ileostomy take-down after Ileorectal Anastomosis. I could only find threads related to a take down after J-pouch / Ileoanal anastomosis.

These threads were helpful in that I am sure that many of my experiences will relate (i.e., very sore bottom due to acidic BM, careful what I eat at first, etc.) but I am wondering if anybody can weigh in on experiences related to the IRA surgery? I know this surgery is far less common but I am hoping somebody might have some feedback.

I also have a question that probably pertains to anybody that has ever had a take down. Almost immediately after I eat (and it does not matter what I eat as I have logged it and tried everything) my stoma goes crazy, erupting and quickly (within say 10-15 minutes) fills the bag with completely watery diarrhea. However, after that the stool quickly returns to a much thicker consistency - about that of toothpaste. It remains thicker until the next time I eat...and the pattern repeats.

I am worried after the take down surgery that every time I eat I will have an immediate, almost uncontrollable need to run to the bathroom.
I have tried Loperamide but the problem is that it actually stuffs me up, even in small doses, since my stool generally "thickens up" and the diarrhea is only immediately after I eat.

Anybody had this happen, or still have it happen?

Thanks for any feedback - I have been haunting this board for years but only recently registered to become part of the community.
"I come from the suburbs. You know the suburbs? It's where they tear out all the trees and name the streets after them." David Lee Roth

Male, Age 40
Diagnosed with Pancolitis, August 2005
Diagnosis changed to Pancolitis not including Sigmoid colon, rectum Jan. 2006
Past drugs: Azathioprine, Asacol, Remicade, Humira, Cimzia, Methotrexate, Prednisone. All had side effects or stopped working.

Currently suffer from drug induced Lupus, Raynaud's, Cryoglbulinemia and mild arthritis - all attributed to use of Remicade.

April 2010: underwent total colectomy with ileorectal anastomosis with temporary loop ileostomy. Awaiting take down.
Current meds: Rowasa enemas, 10mg prednisone/day

suebear
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Date Joined Feb 2006
Total Posts : 5698
   Posted 7/30/2010 5:01 PM (GMT -6)   
As you pointed out, I have the Ileoanal so I will refrain from answering your question about reversal but I can comment on the need to empty following eating. Yes, you most likely will need to use the bathroom after eating. But in time, you won't have urgency. I have recently found a trick that can keep me out of the bathroom from 7-3pm and that is because I am mixing chia seed in my breakfast yogurt. The fiber from the chia slows things down. You can also take imodium or lomotil too. The urgency will pass.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free
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