To those of you who have permanent ileos

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Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 8/5/2010 11:47 AM (GMT -6)   
Did your surgeon leave your anus intact? Mine did and now I have hemorroids. I guess I overdid it with the walking when I was down the shore last week. I feel like I am regressing. A few of my stitches popped and the surgeon stuck a needle or something in them yesterday....I didn't watch...and he put some kind of salve on them. Today they are still oozing but I have no infection.

Regular Member

Date Joined Aug 2008
Total Posts : 123
   Posted 8/5/2010 2:42 PM (GMT -6)   
No, he did not leave my anus - it got removed and the hole was sewed shut.

Eric B.
51 - male - in North Carolina near Asheville
UC is GONE!!
Permanent ilieostomy on July 8th, 2010
Taking multivitamin and B12.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 8/5/2010 5:48 PM (GMT -6)   
Mine is G O N E!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 8/5/2010 6:21 PM (GMT -6)   
Mine is GONE, too! Don't miss it either! tongue
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Regular Member

Date Joined Jan 2009
Total Posts : 413
   Posted 8/5/2010 6:25 PM (GMT -6)   
maybe he left it thinking possibly you will be able to go for a reversal? Not too sure, but I would surely contact him.

Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 8/5/2010 6:48 PM (GMT -6)   
Now this really has me baffled. He said he would NOT do a j-pouch on me because of my age. I told him I had no problem wearing the bag. Why the heck did he leave it there then?? UGH!!!

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 8/5/2010 8:28 PM (GMT -6)   
Mine is gone. Seems weird for you to have it still. Hope things get resolved!
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 8/5/2010 8:57 PM (GMT -6)   
that seems really odd, you should call him about that.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Regular Member

Date Joined Apr 2006
Total Posts : 164
   Posted 8/5/2010 9:05 PM (GMT -6)   
hey there,, I still have mine too?  I am having problems with hemmroids inside and he mentioned me having "another"surgery to remove them???  I dont get it either? Why not just get rid of what ever is left and sew me up? Im in the same boat christine?  I am still having blood and mucus discharge and my surgery was 2 months ago. I dont want to go for another surgery!!  Sucks..   Im supposed to see him again this month and go from there...

Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 8/5/2010 9:41 PM (GMT -6)   
Little sis....I mentioned my hemorroid to him and he didn't seem concerned about it at all! This guy is head of colorectal surgery at University of Pa Hospital in Philly and trained at the Cleveland Clinic and has been in practice for over 30 yrs. He wouldn't do a j-pouch on me and knows I have a perm ileo. I am soooo sorry I didn't ask him why he left the anus. I don't think it is blood coming out of me, it looks more like the stuff that was in the JP tube..pinkish. He said it takes quite awhile for that stuff to come out completely. I know it is coming out of my vagina but he said it is coming out of my I know the difference between my vagina and anus and I KNOW it isn't coming out of my anus....the only thing coming out of my anus is that Oh GOD...if I didn't laugh at this I would be crying.

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 8/6/2010 6:42 AM (GMT -6)   
I had my rectum and anus removed a year after my initial surgery - good riddance to bad rubbish I say!
Ileostomy for 34 years due to UC. I had my surgery at 10 years of age.

Moderator of the Ostomy and Psoriasis Forums


I'm not a complete idiot - some parts of me are missing!

Regular Member

Date Joined Jul 2010
Total Posts : 88
   Posted 8/13/2010 4:54 PM (GMT -6)   
I still have my anus and occaisionally get that bloody mucus coming out. They assured me that it was normal - also with time, it has lessened.
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