The "I have to poop" feeling...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Veteran Member

Date Joined Oct 2009
Total Posts : 1054
   Posted 8/6/2010 12:26 PM (GMT -6)   
Hi everyone,
I have a permanent ileo and had my rectum removed--all of that was done in March of this year. I had a blockage/ileo revision in June. Just in the last maybe 2 weeks I've been feeling the "I have to poop" feeling. It's so weird! Is that bad? Does it mean something's wrong? It really feels like pressure and then I automatically think "where's a bathroom?" and then realize that's silly. I'm not sure if I should worry about it...
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 8/6/2010 12:57 PM (GMT -6)   
I don't know if it's bad; you might want to talk with your surgeon. I do know that after my ileostomy was closed I had phantom sensations of my bag filling when I no longer had a bag. That lasted several months after my reversal and was normal.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 8/6/2010 4:01 PM (GMT -6)   
Stephanie~phantom feelings can happen. I agree with Sue that you should let your surgeon know about them.

On occasion I will get weird feelings in that area but, for me, it's not pressure or the feeling to poop, it's more like it's still there...not sure it that makes sense, LOL!!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 8/6/2010 4:49 PM (GMT -6)   
it happens to me too sometimes, but not all the time, and usually only if i have to pee really bad and hold it for a while
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 8/6/2010 4:52 PM (GMT -6)   
I get the same sensations!!! My husband said it must be like when someone loses a leg, they still have pain in the leg that is missing. I don't have pressure, but it feels like I need to move my bowels at times. Maybe that is why I have the hemorroid. LOL!

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 8/7/2010 5:07 AM (GMT -6)   
It's Phantom Rectal Pain and is completely normal, it's something the surgeons forget to warn us about - just like someone who loses a limb can still 'feel' it itch, so your body still hasn't gotten used to not going to the loo in the 'normal' way and the brain still sends signals to the bowel to evacuate in the old way. The only way I ever found to relieve it was to go and sit on the loo even though I knew nothing would come of it lol

The good news is that it does eventually go away, for some people sooner than others (some have it happen less and less and it disappears altogether after a year or so - others report it still happens occasionally many years later). It's not dangerous, just annoying when you know that you can't go that way.
Ileostomy for 34 years due to UC. I had my surgery at 10 years of age.

Moderator of the Ostomy and Psoriasis Forums


I'm not a complete idiot - some parts of me are missing!
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 25, 2018 8:05 PM (GMT -6)
There are a total of 3,006,669 posts in 329,387 threads.
View Active Threads

Who's Online
This forum has 161840 registered members. Please welcome our newest member, 6catlady.
251 Guest(s), 9 Registered Member(s) are currently online.  Details
sparkleplenty, halo52208, GoBucks, Serfr, Cashed Out, kit49, Envsciguy, Aurora2013, Sahale