Last night my stomach was feeling a little itchy, so I thought I would change my bag because my husband was due home at any minute. I am low on supplies since I am now in a convex wafer, so I thought I would try one of the convex samples I received from Coloplast.
Well, I got everything together and even put an eakin seal on the wafer....well, for some reason, the wafer would not stick to my skin....I even put the hair dryer on it, but when it still would not stick, I got freaked out and accidentally dropped the wafer face down on the floor. OMG,
So, I am almost in tears, walking around with a gauze pad over the stoma, and am using one hand to get everything together. I ended using the Hollister, one piece, and the adapt paste since I still have yet to figure out how to use the eakin seal. :(
My husband walks in and I was so relieved...but, I did not let him do anything but watch because I need to be able to do this alone. He did help me apply the sure seal though since I never used one of those before and I LOVE the SURE SEALS! I took a shower this morning and the wafer was mostly dry...I was a little concerned that the 10% that got wet would not dry, but it did dry and the wafer and sure seal are still sticking as tight as ever.
My stoma is also looking a little different...it seems settled at 7/8 inch, which is wonderful, but the top sticks out farther than the bottom...it almost looks like a water spigot??? I can also wiggle the stoma around? Is this normal? I still have some bloody spots of skin right around the edge of the stoma, but it is looking better every week.
I went ahead and ordered the Hollister since I seem to have the best luck with those. I ordered the 1 piece and 2 pieces. I like the 1 piece because it lays so flat against my body, but I prefer the 2 pieces because I like that I can change the bag without changing the wafer and I can also wear a smaller bag, a 9 inch, which I have been wearing during the day, and the 7 inch, which I have found works great during sex. :) And since I am low on supplies, I have been rinsing out the bags and reusing them the next day....it seems to be working out okay.
Is it okay if you lay on your stoma accidentally? This happened during sex and I didn't even notice until my husband freaked out because the clip pressed into his skin...my stoma looks okay and is working???
Life with this stoma is better than I could have ever imagined and I am considering keeping it for life...hmmm, I wonder if I have to have it changed to an end ileostomy? I read that end ileostomies are easier to handle than loops? Is this true?
I have been adding more foods to my diet and so far so good. :) My output is still too much at times, but that also is getting better as time goes on.
My doctor agree that I needed more time before going back to work, so I am now off until August 16th. I see him Thursday, and I am thinking September 7th will be a good time to go back to work. I will just have to see what he says.
I am still smokefree....YAY....and although I am still a little depressed, I feel better than I have felt in years. I can breathe, poop, and eat now....LIFE IS GOOD! Tracy
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy