Been in the hospital - ileus?

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ucfree
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Date Joined Oct 2005
Total Posts : 291
   Posted 8/9/2010 9:08 AM (GMT -6)   
I came home last Monday and I was so chipper, and ready for my new life with my end ileo. Then, Thursday morning I woke up with shooting pain in my stomach.
Rushed to the ER, and have been in the hospital since then.
Apparently my bowels went lazy on me and everything slowed down to a halt. I'm finally producing a lot of green bile which means something has woken up but my stomach area is still very tender and am a bit nauseous. May have a bit of distention in my belly still.
Overall I'm getting better for sure but it's been a long couple of days. That NG tube was definitely no walk in the park!! I had it removed 2 hrs after they put it in ... couldn't handle it at all.
I'm asking them if they can do an upper endoscopy to check if everything is kosher .... until then I'm trying to walk as much as possible.

Thanks for the support everyone.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 8/9/2010 9:29 AM (GMT -6)   
An ileus after abdominal surgery is very common. Sorry to hear of your set back but things will improve. Keep up on walking to keep those intestines awake.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 8/9/2010 9:52 AM (GMT -6)   
ouch!! i remember too well how you're feeling, had it just not long ago, my ileostomy surgery was July 8th and during the first 10 days i had 3 attacks of ileus/blockages. it was aweful. but i'm doing great now and can eat everything with no probs, so don't worry, it takes couple of weeks for the system to adjust and settle, hang in there, you'll be ok :)

Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis

07/08/2010 - loop ileostomy


NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 8/9/2010 10:28 AM (GMT -6)   
Yea during the first 3-4 after my first surgery certain foods wouldn't go though me without me massaging my abdomen to get it to go though.
Now I can eat peanuts, popcorn, broccoli, beans, cheesecake, really anything now without it causing problems.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 8/9/2010 10:30 AM (GMT -6)   
Many of us have experienced it sad It's one of those things you cannot predict.

Like Sue said, walking helps wake everything up, and you'll know when it has passed...all of a sudden your appetite will be HUGE shocked but start off slowly!

Hang in there!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 8/9/2010 12:15 PM (GMT -6)   
Sorry to hear you are ill. Too bad you couldn't handle the NG tube. I know it isn't a walk in the park but it sure helped me a LOT. The doctor put it in during my surgery and left it there for the next 24 hrs. However, five days later, I had a set back and the surgical residents had to put it back in my stomach. My surgeon suggested they do this because I was vomiting. It was well worth the few minutes going down, better than days of throwing up. It brought up three vials (big ones too) of bile, yuk! The tube came out by itself while I was napping two days later. But boy did I feel sooo much better.
I hope you feel better real soon. Today is six weeks since my total colectomy and perm ileo and I still have "issues". A few of my stitches have popped but the surgeon attended to them on Wed at my post op visit. I have hemorrhoids because the surgeon never took my anus out...have no idea why not and I have a rash around my stoma and gunk still coming out of my vagina which looks like the drainage that was in the JP tube....oh well. Hopefully, things will settle down.

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 8/14/2010 9:33 AM (GMT -6)   
So they tried me on clear liquid diet yesterday and I did not telerate it well .... back to NPO.
They're hoping the adhesions and partial blockage resolves itself by next week, otherwise they'll cut me open again :(

I wannnnnaaa be homeeeeeeeeeeeeeee !

PS: SO darn hungry!!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/14/2010 10:00 AM (GMT -6)   
Take it slow...but an appetite is a good thing...maybe you are closer than you think!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 8/14/2010 1:01 PM (GMT -6)   
yeah, i hope OHIO is right. i hope it's resolved very soon!
Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis

07/08/2010 - loop ileostomy

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 8/15/2010 7:50 PM (GMT -6)   
ucfree,

Yes, return of an appetite is a goooood thing. Hope they do NOT have to cut you open again as that will make more adhesions. If they do have to, ask them if they can use Seprafilm adhesion barrier to lessen the growth of new adhesions and make new adhesions less dense.

Best of luck,

Rosemary

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 8/15/2010 8:27 PM (GMT -6)   
Thanks all for the comments :)
I'm still at the hospital :( Have not eaten anything, they say they'll run some tests tomorrow to see if it's safe to eat yet or not. I'm a bit scared to eat, everytime I eat I get the terrible cramps and pains :( Hopefully this all goes away soon .. I miss being home with my wife and daughter.

Waiting for the good news .... can't wait to eat food again!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/16/2010 4:53 AM (GMT -6)   
ucfree~ are you walking? Walk as much as you can...it does help!

Hang in there, you'll be home soon smilewinkgrin
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 8/16/2010 7:47 AM (GMT -6)   
Walking walking walking a lot!!!
They're taking me in for an upper GI series test this morning and then I'll be going in to get a picc line.
Another week :(
Let's hope things get better now ....

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 8/16/2010 11:50 AM (GMT -6)   
when was your ileo surgery again? i had the same situation, every sip of water felt like dozens of knives were slashing through my system ugh, and the nausea OMG that was a killer!!! but it resolved it self, but it did take 2 weeks for it to pass. i hope it goes away for you too as it did for me, i feel GREAT now, i hope you do too very soon. keep us posted.
Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis

07/08/2010 - loop ileostomy

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 8/20/2010 12:19 PM (GMT -6)   
I had my surgery on July 30th and felt like a champ for 3 days!!!!
Then came the adhesions and blockage which had me in the hospital for the past 2 weeks ... now finally home. Oh so sweet to be home.
Now to control my output, it's freaking out !!!

NiRo
Regular Member


Date Joined Aug 2009
Total Posts : 198
   Posted 8/20/2010 2:31 PM (GMT -6)   
ucfree,

did you have lapro or open surgery?
Diagnosed with Pancolitis (Moderate in 4/5th of the colon, Mild in 1/5th) in July 2009
Lialda 4x a day (2x in the morning, 2x at night)
Rowasa Enema 3x a week (M,W,F)
Align (Probiotic) 1x a day
Fish Oil 4x a day
Multi-Vitamins (includes B-12, Vitamin D, Vitamin C) 1x a day
Life long vegetarian...

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 8/20/2010 4:34 PM (GMT -6)   
So, I take it that your ileus is over? Good. Tons of output better than ileus. In time it will slow. Go easy on sugar. Introduce new foods gradually a bit at a time. Been there. Rosemary

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 8/22/2010 10:30 AM (GMT -6)   
Niro: I had lap surgery ... I guess it just happens sometimes ...
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