hi tummy and welcome to healingwell! you've found the best place for information and support!
i'm sorry to hear about
your struggles. i've also suffered with colonic inertia for 16 years - since the age of 20 to 36 (im now 37). it's a terrible desease that takes over your life totally. i reached to a point where NOTHING worked any more and i couldn't have relief, even the stuff they give you before a colonoscopy to clean your colon didn't help me. i had my colon removed a year ago, they removed all of it except for the rectum and attached my small intestine to the rectum - that's what they usually do for colonic inertia, so there's no need for a bag.
there's a thread here called TOTAL COLECTOMY PART 36, that's where all the girls with colonic inertia are posting. my advice to you is also to read the total colectomy parts, from part 3 (1 and 2 are hard to find) to the current part 36, this way you'll gain the best info and knowlege about
this condition and about
the surgery and it's outcome. by reading it you'll find that most of the women who had this surgery for CI are doing much better than before the surgery and only a small precentage end up with an ileostomy (i'm one of them).
you are also welcome to join us on the TOTAL COLECTOMY PART 36 and talk to others with the same condition.
as for me, the colectomy didn't solve my constipation problem. it was good for the first 2 months or so, then i started having constipation again and by the time i was 6 months post op, i again couldn't have spotenous bms, even if i ate soft-liquid diet. the reason is b/c my rectum (which is part of the colon) is not working right as well, i have an obstructed defecation problem, and also a slow small intestine. so i started having blockages every so often. i did try laxatives, but they weren't effective at all. so finally, with the advice of my surgeon and couple of more surgeons i consulted with, i decided to go for the bag. i had my ileostomy done on July 8th and i can tell you it's so not the end of the world, and for the first time in 17 years of struggles, pain, being bound to the b/r for so many hours a day with not much results and just not living my life, i can say that i FINALLY feel good, havn't felt this good for such a long time..
i'm very happy i had the colectomy and even more happy i had my ileostomy done and would do it again in a heartbeat if i had to. in all of those years i've suffered i forgot what it's like to be free.. now i'm starting to remember :)
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy
Post Edited (2b ColonFree) : 8/10/2010 5:21:09 AM (GMT-6)