Life is good--37 years with ulcerative colitis is finally over!!

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Regular Member

Date Joined Nov 2006
Total Posts : 127
   Posted 8/16/2010 10:29 PM (GMT -6)   
My husband had rectum removal and anus closure surgery done at the Cleveland Clinic (Dr. Stocchi) on June 28th.  My husband's entire surgery (both colon removal, rectum and anus) was done laprascopically.  We just returned from the post operation visit.  Everything is going really well.   My husband is able to sit without any major pain, all incisions are healed and he has been told he can return to work on August 23rd.  Dr. Stocchi said there wouldn't be any reason for any future visits to him.  We told him that we would miss seeing him and he laughed--he said "I bet!  Get on with your life".  It seems this 37 year adventure with ulcerative colitis is finally over!!!!  Life with an ileostomy is not all that bad!!  If anyone has any questions please feel free to ask.  Life is good!!!

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 8/16/2010 10:43 PM (GMT -6)   
I'm so happy for you and your husband! yeah
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 8/17/2010 6:40 AM (GMT -6)   
      Nancy, I am very happy to hear that your husband's suffering with UC is finally over.
      I had my surgery on the same day, June 28th, at Pennsylvania Hospital in Philly.  Dr. Robert Fry did my surgery.  He is head of the colorectal dept at the Univ of Pa Hospital and served his residency at the Cleveland Clinic and that is why I chose him as my surgeon.  I am 64 yrs old and suffered with ulcerative proctitis for twelve years.  However, he did not remove my anus and I never thought to ask him why he didn't.  I did ask him if I could have hemorrhoids and he said "sure because you still have your anus."  I thought the anus and rectum were the one and the same, so this sort of caught me off guard. 
      I have no complaints about the surgery.  He could not do it laprascopically.  I had a few stitiches that popped open and oozed some mucus but at my office visit he took care of that and they have healed well.
     Is your husband going to have the j-pouch or the perm. ileo?   My surgeon would not do a j-pouch on me because of my age and my extended use of prednisone.  I have been prednisone dependent for the better part of the last two years.  I have some discomfort in the rectal area, not pain and just wonder if this is due to the healing process.  It comes and goes.
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days. Prednisone, Asacol, Rowasa enemas. Two year remission. Flare..switched from Asacol to Colazal. Two year remission. Started 6MP in 2002. Flared yearly from 2003 to May of 08. Hospitalized for ten days in May of 08. Flaring more often since. Off 6MP. Remicade failed. Humira failed. Total colectomy with perm. ileo .

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 8/17/2010 9:25 AM (GMT -6)   
Oh, I cannot imagine 37 years of UC! Yes, life is much better post-UC. Good luck to you and your husband as you start to enjoy a healthy life again.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Veteran Member

Date Joined Jun 2010
Total Posts : 2354
   Posted 8/17/2010 12:43 PM (GMT -6)   
Just popping over from the UC board. Congrats to you and your husband! May you guys have a wonderful UC free life!
2 Lialda/day  Rowasa nightly
Metamucil wafers

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 8/17/2010 2:44 PM (GMT -6)   
Congratulations smurf
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008
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