New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 8/17/2010 2:44 PM (GMT -6)   
I got my supplies today yay. Was going though everything and found the sure seals. I was thinking they are the size of eakin seals but they are pretty big. Then again they are supposed to fit around the 2.25 inch flange opening.

Maybe I could drop to a smaller flange now that my stoma is smaller?
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Temp Ileostomy and colon removal surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Takedown surgery - 8/?/2010

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/17/2010 2:47 PM (GMT -6)   
The outside of the flange is usually the same size...just the center hole gets smaller (unless you have a really BIG stoma then the wafer is BIG).

If your flange/wafer doesn't fit under the Sure Seal, you can trim the edges of the tape part, so it fits. The key is to make sure that the Sure Seal goes out farther to keep everything dry:)
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

rdostomygroup
New Member


Date Joined Aug 2010
Total Posts : 4
   Posted 8/18/2010 7:34 AM (GMT -6)   
Hello -

Can someone please describe the application process for the Sure Seal (i.e. where does it go, what does it adhere to, etc.

Thanks

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/18/2010 7:53 AM (GMT -6)   
there are step by step instructions at www.alpglobal.com
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

rdostomygroup
New Member


Date Joined Aug 2010
Total Posts : 4
   Posted 8/18/2010 7:56 AM (GMT -6)   
Thank you very much. I tried searching online prior and could not find the company's site.

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 8/18/2010 4:23 PM (GMT -6)   
So I tried a sure seal today...should have read the directions cause I thought there would be a big white sticker on my stomach.
As I was putting it on it seemed a bit stiff so I was going to cut it were my stomach has a crease it in when I noticed that the white thing isn't supposed to stay on you are supposed to peel it off and and leave the clear sticker on.

Then I felt stupid lol.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Temp Ileostomy and colon removal surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Takedown surgery - 8/?/2010

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/18/2010 8:25 PM (GMT -6)   
LOL dont feel stupid, those things are so hard to get on! I love them, and wear them all the time, but its sooo hard for me to get them on!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 8/21/2010 10:45 PM (GMT -6)   
LOL Don't feel bad New Shiny! I did the same thing. :)
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 10/1/2010 6:28 PM (GMT -6)   
OK i know this post is a bit older, but I didn't want to start a brand new thread for it...

I can't figure out what Sure seals are. I went to the website but there's no real explanation of what they are for. Can someone explain them to me?
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-Now IBD is indeterminate tests will be done after healing if still UC J-pouch surgery, if Chron's take down of colostomy

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 10/1/2010 10:36 PM (GMT -6)   
they are this plastic stuff, kind of like saran wrap, that goes over the bandaid part of the wafer, and keeps water from getting in. they are the best thing in the world! It keeps you from having a wet wafer after a shower, and it makes my wear time longer.
They are kind of hard to put on, i think anyway, but really worth it.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/2/2010 10:05 AM (GMT -6)   
It's a breathable/waterproof membrane to protect your wafer...

go to www.alpglobal.com to see a step by step on how they work. They'll even send you samples for your specific wafer.
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

pswift520
Regular Member


Date Joined Sep 2010
Total Posts : 91
   Posted 10/3/2010 6:28 PM (GMT -6)   
Ok, I am confused about the sure seals.  Is it to my understanding from the aplglobal.com site that the sure seals are only to be used on a 2 piece?  I don't see how you could put it on a 1 piece.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 10/3/2010 10:41 PM (GMT -6)   
i dont know why you couldnt put it on a one piece, but i dont really know much about them
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

not creative
Regular Member


Date Joined Mar 2007
Total Posts : 469
   Posted 10/5/2010 11:34 AM (GMT -6)   
I cut the seal in half and then apply the two pieces so they make a complete seal around the opening of the wafer. If I left it whole, the water can get in since the opening is a bit larger than the wafer opening. They work wonderfully.
Laurenne, 25 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002. Was in flare from 2006-2010 with almost no relief from any meds I tried.
Three abscesses that are now fistulas, with three setons! All gone as of March 9
Tried: LDN- Did nothing good, Remicade- allergic, Humira- no reaction
On: Zoloft, Abilify, folic acid, b12, vitamin c, multivitamin

3-9-10: Total protectomy and Sigmoid colostomy installed. Haven't spent more than 3 minutes on the toilet since- it's fantastic! Now I'm just waiting to get regulated so I can irrigate.

bearbear3
Regular Member


Date Joined Nov 2010
Total Posts : 61
   Posted 11/17/2010 3:17 PM (GMT -6)   
I just requested a sample of the Sure Seals! I'm excited.
bearbear3
------------------------------------------------------
Misdiagnosed with UC 2004. Diagnosed with CD 2009. Partial, temporary ileostomy Sept 2010.
Pentasa
Buspar
Lamictal
B12

RiddleMeThis
Regular Member


Date Joined Nov 2010
Total Posts : 269
   Posted 11/17/2010 5:23 PM (GMT -6)   
Hmmm interesting. I think I may have to order some samples as well.

How would you benefit from wearing the Sure Seals on a day to day basis? The website states the rings are designed to be worn 4-7 days. What other reasons besides keeping the wafer dry in the shower would you wear the Sure Seal?

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 11/18/2010 7:17 AM (GMT -6)   
I'm and active runner and the Sure Seal allows me to get a longer (or my normal) wear time with my wafer. The times I haven't worn one I've changed my appliance the next day:(

They also protect your clothes IF you have a leak...they are just amazing!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 11/18/2010 11:17 AM (GMT -6)   
I'm originally from Duluth, GA. Then I lived in Calhoun then Rome and now I'm probably going to move back to Kennesaw. whee.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Temp Ileostomy and colon removal surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Takedown surgery - 8/?/2010

snugglesaurus
Regular Member


Date Joined Apr 2010
Total Posts : 206
   Posted 11/21/2010 9:54 PM (GMT -6)   
looks like we need an Atlanta meet-up!
Diagnoses: Colonic Inertia, Rectocele, Anismus
Surgery: November 9, 2010 - subtotal colectomy with anastomosis

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 11/21/2010 11:36 PM (GMT -6)   
I'm allergic to Sure Seals. Yuck.

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

pswift520
Regular Member


Date Joined Sep 2010
Total Posts : 91
   Posted 11/22/2010 7:15 AM (GMT -6)   
Just used my first sure seal last night.  So far so good.  I will keep you posted.  These things remind me of the material they put over and IV in the hospital.  My daughter used to use them over her site when she wore an insulin pump.  But they were much smaller. 

pswift520
Regular Member


Date Joined Sep 2010
Total Posts : 91
   Posted 11/23/2010 7:48 PM (GMT -6)   
OK I believe that the sure seal will work out fine for me. My question is, I order from a place called Byram. They do not carry sure seals. If I go thru some place else to get sure seals is this going to be a problem with my insurance? I really don't want to have two different places to order from. But if you get everything I am already getting plus the sure seals from the same place couldn't I just switch places I order from. I just don't want my insurance company going crazy on me.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/23/2010 11:00 PM (GMT -6)   
they really arent that expensive if you have to order them elsewhere, i was getting my stuff through bestbuyostomy when our insurace was all messed up recently.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

pswift520
Regular Member


Date Joined Sep 2010
Total Posts : 91
   Posted 11/24/2010 11:46 PM (GMT -6)   
Well, Maybe I spoke to soon. I have noticed today that I have little tiny white spots under my sure seal. Could this be a sign that I am allergic to it. They don't itch, but they look like they may have pus in them. Shoot I was hopeful for this.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, July 15, 2018 8:18 PM (GMT -6)
There are a total of 2,981,849 posts in 326,944 threads.
View Active Threads


Who's Online
This forum has 161781 registered members. Please welcome our newest member, ngfnngngnn1q.
387 Guest(s), 8 Registered Member(s) are currently online.  Details
lexakelsey, PeterDisAbelard., Gear, 3timechamp, Thishealingjourney, Redwing57, bmldance, Charlie1950