rectal hole not closing up

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Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 8/18/2010 8:23 AM (GMT -6)   
I have to post this cause I'm so frustrated. I had a proctocolectomy done on June 11th. I spent 3 weeks in the hospital because of complications. They did the surgery lapriscopically and they cut out the anus and pulled the colon through. They sent me home with a drain because I had an infection. That came out about july 18th. A few days went by and I was fine. Went out and hung out with friends etc...
Then, I noticed some blood and mucous by the rectal hole. I just used tp and paper towels until I went to doctor. They said it was normal and packed it with gauze. I've been having a home nurse come by every day and pack it since then. My nurse at the hospital said it would take 3-4 weeks to heal. Not a huge deal. Well it is now because its about 4 weeks later and its still 5cm deep. It bleeds a lot even through the packing,underwear,boxers and then onto my pants. My nurse told me that I'm not supposed to sit. So here I am either standing or laying all the time. I can't sit at the computer, go out to do anything for fear its going to bleed all over.
So much for going back to work in 6 weeks :(
I asked. My nurse why its taking so long and she just asked if I was eating healthy.
I guess what I want to know is if anyone else has gone through this and if there is anything I can do to speed up the process. Also my nursing visits run out in a couple days

WeirdBeard
Regular Member


Date Joined Aug 2008
Total Posts : 123
   Posted 8/18/2010 8:58 AM (GMT -6)   
Are you taking prednisone? That can slow down the healing process quite a bit.
51 - male - in North Carolina near Asheville
UC is GONE!!
Permanent ilieostomy on July 8th, 2010
Taking multivitamin and B12.

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 8/18/2010 9:06 AM (GMT -6)   
I was on 60mg from October of 2009 until the surgery. They dropped me to 20mg right away by IV and then down to 10mg a few weeks later. I am now off of it completely.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 8/18/2010 3:13 PM (GMT -6)   
     Brian...I am having a problem too.  At first I thought I had a yeast infection because this discharge was coming out of my vagina.  My surgeon told me a few weeks ago at my post op visit that it was probably coming out of my anus but he never checked!  I know my anus from my vagina for heaven's sake.   He left my anus intact but my rectum and colon are removed.  Now, I am actually bleeding but I can't tell whether this is coming from the anus or vagina..lol.  Anyway, I had an appointment with the nurse practitioner yesterday at my gyn doctor's office.  They had me waiting an hour and still hadn't taken me into one of the examining rooms and I know for a fact that there is yet another hour wait in the examing room before being seen.  So, I just told the receptionist that I was leaving.
     I made an appointment with my surgeon for next Wed.  He has to check this out.  I also have an appointment with my family physician tomorrow.  Hope between the two of them they can figure out why I have this bleeding.  I went through the change of life twenty years ago and never had a problem.  If I need a hysterectomy after going through the total colectomy and perm ileo on June 28th, I will just die!
     Are you in any pain?  My rear is a bit sore but that is about it.
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days. Prednisone, Asacol, Rowasa enemas. Two year remission. Flare..switched from Asacol to Colazal. Two year remission. Started 6MP in 2002. Flared yearly from 2003 to May of 08. Hospitalized for ten days in May of 08. Flaring more often since. Off 6MP. Remicade failed. Humira failed. Total colectomy with perm. ileo .

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 8/21/2010 6:45 PM (GMT -6)   
Brain,

Are you anemic? This may slow the healing. Get checked for this. Good luck. IN the meantime, they have great menstrual products on the market for super absorbancy. The absorbant shields stick into your underpants with sticky tape. These may help. I can see your problem with not being able to go back to work and not to be able to sit is rough. Best of luck. Rosemary

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 8/23/2010 9:07 AM (GMT -6)   
esoR- I'm not sure if I am still anemic. I know I used to be years ago. I may try the pads if it starts to bleed later at night. The more I sit, the more it bleeds. Like if I am in the car for a little bit it will start bleeding.

NASCARon- Yes my ostomy nurse is actually a would care specialist. I have a at home nurse coming now to change out everything every day. That will end soon and my gf will have to do it now. First they used some gauze strips. Then they changed to some kind of cottony stuff. Not sure what it's called. Then next week we are starting on some stilver something or other.
Is there other things that people have done to keep it closing faster? They just change the dressing and packing every day. It doesn't seem like it's doing anything but keeping it clean.

villager
Regular Member


Date Joined Aug 2010
Total Posts : 130
   Posted 8/24/2010 5:50 PM (GMT -6)   
Hi Brian, I was 'invited' to have a proctocolectomy & went ahead with it in May 2010. I had a similar problem with my anal wound about a week after getting home. I spoke with the surgeon & wound nurse both of whom said not to worry, that this was normal/ common enough. I used pads for the few weeks it lasted, not something i'd be used to buying (being a bloke !!) but after the stint in hospital nothing would embarass be now. The wound nurse did stress to me that for the wounds to heal properly, good protein in my diet would be essential & she recommended a drink named Cubitan. I dont know if its available where you are but there might be another version available. I'm no doctor but i'm convicned this helped a lot. I'm happy to report that all is well in the bum department. I should add that the surgeon did warn me that the bum wound would be the problem area after the op & that it might even take a few months to sort itself out.

Despite the progress the wound nurse says no cycling before christmas & this makes me sad even though with UC before the op such exercise was a no no. Funny how quickly we forget what UC felt like.
UC since 1990, not a lot of fun
qualified as ileostomate May 2010, a much happier boy now

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/24/2010 6:33 PM (GMT -6)   
Brian,
I packed my rectal wound with saline filled gauze twice a day for 9 months before it finally closed up. It just takes time to heal.
Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 8/25/2010 8:56 AM (GMT -6)   
Oh wow 9 months? I don't know why they keep telling me it should be healed in 4 weeks. They never even told me this would happen. My surgeon told me I would be back to work in 6 weeks.(very heavy lifting). I haven't even been able to ride my motorcycle or go anywhere or have any fun this whole summer. Plus I didn't save up any money cause I figured I would be back to work. I don't know what I am going to do if it takes 9 months.
How deep was your hole? Mine is 5cm deep. Every time I sit it starts to bleed so I have to lay on my side or stand up all the time.

villager
Regular Member


Date Joined Aug 2010
Total Posts : 130
   Posted 8/25/2010 9:30 AM (GMT -6)   
Brian, my surgeon also didnt mention this problem until the evening before surgery which was a bit annoying, my wound nurse gave me a sterile alginate (seaweed) dressing for daily packing purposes named Sorbsan which she said would speed up healing, also she suggested daily sitz bath with a few drops Tea Tree oil to keep evenything disinfected. For me the healing did progress very fast once the bleeding/ discharge stopped - hopefully you will find the same.

cheers - hope this helps
UC since 1990, not a lot of fun
Qualified as ileostomate May 2010, a much happier boy now

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/25/2010 3:41 PM (GMT -6)   
Brian,
I went back to work after 8 weeks, but I have a desk job in an office with no heavy lifting. That was 4 years ago, so I don't remember exactly how deep the wound was. All I know is that it healed slowly. It didn't hurt much, so I was able to get on with my life after about 6 weeks, and I was able to sit, too.

Ask the nurse about a wound vac. I've heard that they help speed up the healing, and so does increasing your protein intake.

Hope that helps!
Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/25/2010 8:17 PM (GMT -6)   
I used a wound vac for two weeks...had an abscess after I was sewn up and when they opened it up it was about 9mm deep:( The wound vac closed it to 5mm in the two weeks and I packed the wound 2-3 times a day after that. Wished I could have had the wound vac longer but it was all my insurance would cover and they aren't cheap! I worked while I was healing and sat on one cheek at a time...not comfortable, but not painful either.

I also remember doing Sitz Baths daily and those helped, too. Keeping direct pressure off of it is also necessary, which is why she said not to sit. Has your C/R surgeon looked at it?

I think they aren't correct about the 4 weeks...think about how long it takes for a regular incision to heal and when we've had to have protocolectomies our bodies aren't the 'norm' especially in that area! Yes, protein in important, too, but not a major reason you haven't healed!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Jason1985
New Member


Date Joined Nov 2010
Total Posts : 3
   Posted 11/30/2010 11:07 AM (GMT -6)   
Hi Brian, Can I ask are you still having discharge from your bottom?

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 11/30/2010 2:50 PM (GMT -6)   
Jason, yes I have mucous mixed with a little blood

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 12/1/2010 8:22 AM (GMT -6)   
     Brian, I still have mucus too, but wear a kotex pad.   My anus is still sore inside, remember, my surgeon left mine intact but took the rectum and colon out.  I noticed when I sit for a long period of time it hurts more.  The surgeon drained a hematoma from it in Sept and drained it again last month but said it looked much better.  It sure hurt like heck afterwards though.  I was sent for an MRI a few weeks ago, still waiting for results.  I think I may have a fissure but the surgeon said no.

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 12/1/2010 9:46 AM (GMT -6)   
Christine- I have worn them too. The only thing i don't like is the wet feeling rubbing on my butt. So if it's not packed I usually wipe it and put gauze or something down there every few hours.

Jason1985
New Member


Date Joined Nov 2010
Total Posts : 3
   Posted 12/1/2010 11:30 AM (GMT -6)   
Is this something that is ment to stop? Because it is so annoying

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 12/1/2010 4:39 PM (GMT -6)   
     My surgeon's assistant called me today.  He said the results of the MRI are inconclusive and asked if I had the CD of the test.  The surgeon requested the CD of the CT scan in Sept but never said a word about the MRI.  Anyway, I refuse to go back to the same place for the MRI with contrast.  They had me under that dome for 1 1/2 hrs, never mentioned the fact that I was supposed to fast and my small intestine was in overdrive.
 The assistant mentioned that they may have to go in and close the anus... shocked ...after all this???  Then where in the world will all this mucus go?  Think I will just wait for the call from the surgeon himself.  If I remember correctly, pre surgery, his assistant told me I had to take Miralax to clean me out for the sugery.  When I went for my pre-op testing, the surgeon said ...no prep, just clear liquids for 24 hrs before surgery.  GEEZ!
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