What could it be?

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Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 8/20/2010 6:00 AM (GMT -6)   
Hi everyone,
Hope you are all doing well. Ever since I have had my ileostomy (17 months) I have had occasional pain but lately its been becoming more regular. Soon after surgery I spoke to my surgeon about it and he said at the time he thought it was just the settling in period, but this long after and its progressively getting worse so I spoke with my regular doc about it a few weeks back and she gave me some buscopan pills and said to try them, they are for stomache muscle spasm, and she said if that didn't help I would have to go back to see my surgeon. Well I really don't want to go through anymore so was hoping you all might have some answers. The pain floors me and my stomache actually moves it looks like my small bowel is moving and it travels from my left side across to my stoma on the right, it seems to be every time I put any abdominal pressure on it, even something simple like putting my panty hose on for work. I am starting to get worried cause I live alone and I am so afraid that I won't make it to the phone for help if I need it. I really don't know how else to explain it. When it happens my stomache literally feels bruised for days after but sometimes it happens everyday for a few days then nothing again for a week or so then bang it hits me again. Any ideas would be greatly appreciated. Thanks

2b ColonFree
Veteran Member

Date Joined Nov 2008
Total Posts : 2603
   Posted 8/20/2010 7:39 AM (GMT -6)   
hi andorable,
i'm so sorry to hear you're in so much pain :( if it's that bad to the point it floors you and you say it's only getting worse, then i think going back for some tests is inevitable. i wouldn't wait, i'd make an appt to the surgeon or gastro doc already and start running some tests. hope you're feeling better today, keep us posted.
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 8/20/2010 8:56 AM (GMT -6)   
Thanks for your reply Hodaya, I think your right I dont like my chances being able to avoid going back to the surgeon about this. Wish I knew what it was and that its something simple to fix cause I have also had extreme fatigue but I tend to blame that on the methotrexate injections and humira that I have to take. So for now Think I might need to get some sleep. Thanks again Hodaya and I hope you are well :-)

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 8/20/2010 5:13 PM (GMT -6)   
Could you have a stricture or a kink? Or, a hernia? I'd call your doc to be safe!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Post Edited (OHIO76) : 8/20/2010 4:21:30 PM (GMT-6)

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 8/21/2010 12:50 AM (GMT -6)   
Please tell me any of those problems can be fixed without surgery! I so don't want to go through any more surgeries. Thanks for helping guys I will get off to the doc during the week for a referral back to see my surgeon.
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