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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 8/22/2010 10:02 AM (GMT -6)   
     I read somewhere that you had your anus sewn shut a year after your ileosomy.  Did you ever get an explanation from your surgeon why he didn't sew it shut immediately after your ileostomy?
     I have an appointment with my surgeon on Wednesday as I am  having problems not only with hemorrhoids but I am bleeding from my vagina and have cramping.  I went through the change 20 yrs ago and have never had a problem before.  Trying to get in to see a gyn doctor but they all seem to be booked till mid Sept..  At my post op visit with my surgeon, three weeks ago, I mentioned that I was having a discharge from my vagina but he didn't want me to have a PAP smear just yet because I was only five weeks post op.
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days. Prednisone, Asacol, Rowasa enemas. Two year remission. Flare..switched from Asacol to Colazal. Two year remission. Started 6MP in 2002. Flared yearly from 2003 to May of 08. Hospitalized for ten days in May of 08. Flaring more often since. Off 6MP. Remicade failed. Humira failed. Total colectomy with perm. ileo .

Shaz032
Veteran Member


Date Joined Feb 2003
Total Posts : 1251
   Posted 8/23/2010 5:55 AM (GMT -6)   
I had my initial op done 34 years ago when I was 10 years old. Back then the j pouch was really new. They left my rectum and anus in, in the hopes I could later have a j pouch but they were too diseased and a year after my ileo op, they removed my rectum and anus as well. Nowadays, they could still have done the j pouch even as diseased as everything was but back then, it wasn't worth tackling the 'unknown'.

I've been really happy with my ileo, so for me it's a non-issue really. Would I have the j pouch now if I still had my rectum and anus? Probably not. I've had very little trouble with my ileo so for me, if it ain't broke, don't fix it.
Ileostomy for 34 years due to UC. I had my surgery at 10 years of age.

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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 8/23/2010 10:50 AM (GMT -6)   
     You are so right.  Thank God I have an appointment with a gyn doctor tomorrow morning at 11:30 am.  This bleeding from the vagina has me really worried.  My friends have told me NOT to worry that it is probably from the operation and that things maybe got jarred around down there. rolleyes
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days. Prednisone, Asacol, Rowasa enemas. Two year remission. Flare..switched from Asacol to Colazal. Two year remission. Started 6MP in 2002. Flared yearly from 2003 to May of 08. Hospitalized for ten days in May of 08. Flaring more often since. Off 6MP. Remicade failed. Humira failed. Total colectomy with perm. ileo .
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