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Christine1946
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Date Joined Aug 2008
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   Posted 8/23/2010 11:29 AM (GMT -6)   
     How soon after your operation did you go to your gyn doctor?  I am having bleeding from the vagina and  some days a yellowish discharge.  I saw my surgeon three weeks ago (prior to the bleeding, but I was having discharge) and he said it was too soon after my surgery to have a PAP smear.  I started bleeding last Wed and now I am really scared.  I have an appointment with a new gyn doctor tomorrow and another appointment with my surgeon on Wed.  I  am sooo upset over this.  I haven't had my period since 1990 and have never had any problems prior to this surgery.
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days. Prednisone, Asacol, Rowasa enemas. Two year remission. Flare..switched from Asacol to Colazal. Two year remission. Started 6MP in 2002. Flared yearly from 2003 to May of 08. Hospitalized for ten days in May of 08. Flaring more often since. Off 6MP. Remicade failed. Humira failed. Total colectomy with perm. ileo .

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 8/23/2010 11:53 AM (GMT -6)   
gosh i really don't know. can you call your surgeon and ask him if you can go to the gyn?
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Christine1946
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Date Joined Aug 2008
Total Posts : 5965
   Posted 8/23/2010 12:24 PM (GMT -6)   
     I figured I would just tell the gyn doctor tomorrow.  They have to get to the bottom of this.  The day I came home from the hospital  foul smelling stuff just came gushing out of my vagina but the surgeon said it was most likely from my anus because he left that intact.  Well, I know my anus from my vagina!  Anyway, for a few days after that, a pinkish discharge (looked like the stuff from the JP tube which was taken out of my stomach about a week before that) was coming out of my vagina.  My surgeon's assistant ordered a urine specimen which had some white cells in it, so he gave me a script for Macrobid (antibiotic) for seven days.  It cleared up but after a few weeks I started with a yellowish discharge.  Then the doctor gave me a script for Diflucan, which was only one pill.  Things were ok for awhile.  I did a lot of walking one day and the following day the discharge came back and now the bleeding. 
     My GI doctor ordered a CT scan of the abdomen and pelvic area back in March.  I have no idea why he ordered this...maybe to rule out a mass because of the recurring ulcerative proctitis.  He never told me the results, but I would imagine if anything were amiss he would have notified me.  I am having the radiologist fax the results over to the gyn office for my visit tomorrow and believe me....if that CT scan showed anything wrong and my GI never told me....he'll hear from my lawyer!  My GI doctor was very upset about my decision to have surgery.  He really thought he was GOD.
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days. Prednisone, Asacol, Rowasa enemas. Two year remission. Flare..switched from Asacol to Colazal. Two year remission. Started 6MP in 2002. Flared yearly from 2003 to May of 08. Hospitalized for ten days in May of 08. Flaring more often since. Off 6MP. Remicade failed. Humira failed. Total colectomy with perm. ileo .

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 8/23/2010 12:36 PM (GMT -6)   
Christine,

This could be a fistula OR something totally unrelated. I think I recall that you are 64, well beyond menopause. I would get this checked out ASAP. As one who has successfully assembled my own medmal case then found an atty who was also a surgeon and sold my case to him, I can give you sound advice. Get ALL of your records from everywhere ASAP. That is starting point number one. BUT the most important thing is to find out what is wrong with you and get it dealt with. Can you get a sooner GYN appt? Rosemary

Christine1946
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Date Joined Aug 2008
Total Posts : 5965
   Posted 8/23/2010 12:42 PM (GMT -6)   
     Rosemary...my gyn appointment is for tomorrow morning at 11:30 am.  That is really soon.  This doctor had a cancellation and the receptionist called me ASAP. 
     A fistula???  Would that cause bleeding from the vagina??
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days. Prednisone, Asacol, Rowasa enemas. Two year remission. Flare..switched from Asacol to Colazal. Two year remission. Started 6MP in 2002. Flared yearly from 2003 to May of 08. Hospitalized for ten days in May of 08. Flaring more often since. Off 6MP. Remicade failed. Humira failed. Total colectomy with perm. ileo .

suebear
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Date Joined Feb 2006
Total Posts : 5698
   Posted 8/23/2010 12:46 PM (GMT -6)   
It sounds like a fistula to me too. Your GYN might not be savvy enough to find it but do start there. If he/she gives you the "I don't know what this is" look then the next step is to go back to your surgeon.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 8/23/2010 12:52 PM (GMT -6)   
wow, something is deffinitly wrong over there. i've heard that sometimes when they remove the rectum in women, it can cause a perforation of the vaginal wall..? could it be that?
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 8/23/2010 3:12 PM (GMT -6)   
     Maybe so Hodaya.  I am soooo glad I'm going back to the surgeon on Wed.  I need to know why he didn't remove my anus.  Could it be that he knows he perforated the vaginal wall???  Hmmm....but, why would the bleeding start two months after the surgery?  Wouldn't it have started sooner? rolleyes    I am in such a tizzy over this.  I know I shouldn't, but I worry that it is cancer.
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days. Prednisone, Asacol, Rowasa enemas. Two year remission. Flare..switched from Asacol to Colazal. Two year remission. Started 6MP in 2002. Flared yearly from 2003 to May of 08. Hospitalized for ten days in May of 08. Flaring more often since. Off 6MP. Remicade failed. Humira failed. Total colectomy with perm. ileo .

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 8/23/2010 3:21 PM (GMT -6)   
oh no, there's no reason to think of the worst, Christine, you have no history of cancer, right? so please don't put ideas like that in your head. i think that a u.s of the pelvic should help reviel a perforation/fistula, and if not a u.s, then maybe a ct/mri.. i'm not sure. anyways, i'm glad you're seeing the surgoen on Wed too, i'm sure he'll do whatever it takes to find out what is it exactly, but if he doesn't suggest the tests, then you insist on having them. a u.s is simple and harmless, at least as far as i know. don't leave his office w/o a refferal to some tests.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 8/23/2010 3:31 PM (GMT -6)   
Nah Chris,

Not cancer; this is from the surgery. Some complication developed or some suture let go or you have a fistula. Do have him check cells, but very likely from the surgery. Glad your appt is soon. Sorry I missed that part. I have dilated pupils from going to the eye doc today and they still haven't cleared. Today not a good day for seeing up close. All my best to you and keep us posted. Rosemary

RottieMom
Regular Member


Date Joined Mar 2010
Total Posts : 27
   Posted 8/23/2010 4:21 PM (GMT -6)   
I might have missed something obvious, Christine, but do you still have a uterus? US would show if you might have pyometra, an infection within the uterus. If you've had a hysto, then a fistula seems possible.

Keep breathing, my friend! And I'll be thinking of you for your appt tomorrow.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 8/23/2010 5:17 PM (GMT -6)   
     I still have everything except for my rectum, colon, appendix and tonsils..lol.
     Rosemary...you mentioned sutures....yes, one of my sutures popped..this was on the outside, where my surgeon sewed up my stomach.  This happened about two weeks after I came home from the hospital.  It was just oozing pus for awhile.  My home health care ostomy nurse saw it, so did two doctors in the hospital when I had a two night stay because of dehydration but no one actually did anything until I went to my surgeon for my post op three weeks ago.  He stuck a needle or something in there...I actually didn't watch, and put a salve on it, a bandaid on top.  It healed up in a matter of days.
     If this is a fissure, do I have to have surgery for that?
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days. Prednisone, Asacol, Rowasa enemas. Two year remission. Flare..switched from Asacol to Colazal. Two year remission. Started 6MP in 2002. Flared yearly from 2003 to May of 08. Hospitalized for ten days in May of 08. Flaring more often since. Off 6MP. Remicade failed. Humira failed. Total colectomy with perm. ileo .

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 8/23/2010 10:25 PM (GMT -6)   
No Chirs, The outside stitch popping is no big deal happens all the time.

It wasn't fissure sue and I were guessing it was Fistula. Whole different issue. I have never had a fistula but I believe it is an opening between the vagina and the rectum. As you have an ileostomy you would not have poop going from the rectum through the wall that separates the rectum from the vagina. But some people who have any surgery done on the rectum, the wall between the rectum and the vagina can develop a hole in it called a fistula. Google fistula, but this is my understanding of it. I think Sue and I were guessing that is where your vaginal bleeding might be coming from.

So tomorrow ask your GYN if you have a Fistula. I have no idea what they do for this or if it just heals. I do know someone who had a rectocele fixed (pouch that trapped stool between the vagina and rectum) and she developed a fistula. So she had a temp colostomy while it healed so I think it just healed itself. You already have an ileostomy so at least poop won't be an issue down there. Let us know how it goes. Glad your appointment is tomorrow. Hang in. Some of these complications are not as bad as they seem though I fully understand why you are concerned. Who wouldn't be? Thinking of you, Sincerely, Rosemary

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 8/23/2010 10:30 PM (GMT -6)   
Chris, Just read your bio again. If it is not too much blood, it could just be a bad flare of yeast. That is what the medicine Diflucan is for. Vaginal Yeast infections usually present as white yellow pasty cottage cheese consistency smelly discharge, but not blood. So hard to guess at these things. I'm sure you'll get answers in the a.m. Try to get some sleep. Sleep is the great restorer. We'll be here tomorrow. Sincerely, Rosemary

P.S. Just to clarify a fissure is a slight crack in the skin around the anus that bleeds if you defecate rectally and it stings. They usually heal on their own. But I doubt this is your issue as you have the ileostomy and don't poop through your rectum.

Post Edited (esoR) : 8/23/2010 10:33:16 PM (GMT-6)


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 8/24/2010 3:42 AM (GMT -6)   
Fistulas can be repaired a couple of different ways but from what I read and what my surgeon told me, the repairs are often not successful. They can heal on their own. I was very lucky that mine did heal on its own after we put in another ostomy. I had my fistula after my first takedown, so it was incredibly painful. I had constant output going straight through to the vagina. It burned like crazy and was the worst pain I've ever felt in my life. Since you don't have rectal output, you aren't experiencing that (if it is a fistula). My fistula could not be seen on the x-ray or when my surgeon went in to do the ostomy surgery. It was incredibly tiny--like the size of a pin. It's crazy how something so small could leak so much fluid. It was likely caused by a suture breaking through the wall between the "rectum" and the vagina
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 25 mg (tapering 5mg/week), D, B12, Iron, Prenatal vitamin, Lortab, Humira, Rowasa

tinkerbell2
Regular Member


Date Joined Jun 2009
Total Posts : 418
   Posted 8/24/2010 5:48 AM (GMT -6)   
Hi Chris, glad you're going to the doctor. Best wishes today - keep us posted!
~Jenise~


Chronic Constipation - last 20+ yrs.
Stage lll Pelvic Floor Prolapse ( rectocele, rectal, vaginal, bladder) Rectopexy, Sacral Colpopexy, TVT Sling - 8+ hr surgery - March 2009
Constipation increased, could not move bowels without excessive straining or laxatives - March 2009
TVT Sling Released - April 2009
Redundant, Twisted, Prolapsed colon found - causing mechanical obstruction Oct. 2009
Rectosigmoid Colectomy w/low anterior Anastomosis & Revised Rectopexy - Dec. 2009
Perineorrhaphy & Posterior Colporrhaphy (rectocele repair) - Dec. 2009
Today - using MiraLax daily,but still struggle to have a BM :(

** update: Surgery to fix rectocele and other pelvic issues 07/26/2010)**

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 8/24/2010 12:48 PM (GMT -6)   
     Went to the gyn doctor.  He did not see any abnormalities, but was not able to perform a PAP smear because I was too uptight..lol.  No kiddin?  It was very painful, guess I am pretty dry up there smilewinkgrin .  He is sending me for an ultrasound next Friday, also a Mammogram since I didn't have one for over a year.  This was my first visit to his office, young guy and very very caring.  He didn't mention a fistula.  He gave me a script for some kind of gel...forget the name offhand.
     Tomorrow I see my surgeon and will ask him why he never sewed my anus shut, if I am able now to get that PAP smear and why he thinks I am bleeding from the vagina.  Also about fisulas.  Once I get some peace of mind about all this I will feel sooo much better.
     My appetite is great, my stoma is working like a charm and I thank GOD for that.
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days. Prednisone, Asacol, Rowasa enemas. Two year remission. Flare..switched from Asacol to Colazal. Two year remission. Started 6MP in 2002. Flared yearly from 2003 to May of 08. Hospitalized for ten days in May of 08. Flaring more often since. Off 6MP. Remicade failed. Humira failed. Total colectomy with perm. ileo .

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 8/24/2010 1:10 PM (GMT -6)   
overall you feel good, so that's a good sign. hopefully both your surgeon and gyn will get to the bottom of all this and figure it out. hope you keep feeling good and keep us posted on tomorrow's surgeon appt.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 8/24/2010 3:10 PM (GMT -6)   
Hi Chris,

Glad you are feeling overall better re the stoma etc. The other answers will come. It could just be dry tissue up the vagina. That may be what the gel is for. I remember my mom had to put some kind of estrogen cream up there to keep tissues moist. I may need that soon too. Rosemary

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 8/24/2010 3:17 PM (GMT -6)   
     Yeah, I am anxious to talk to my surgeon tomorrow too.  I feel like I need a bowel movement out of my anus, some pressure there...ugh.  Hope he has a good reason for leaving that anus intact.
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days. Prednisone, Asacol, Rowasa enemas. Two year remission. Flare..switched from Asacol to Colazal. Two year remission. Started 6MP in 2002. Flared yearly from 2003 to May of 08. Hospitalized for ten days in May of 08. Flaring more often since. Off 6MP. Remicade failed. Humira failed. Total colectomy with perm. ileo .
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