If you have a temporary ileostomy, how long the colon be diverted for?

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NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 348
   Posted 8/24/2010 9:04 PM (GMT -6)   
I have a temporary diverting ileostomy, and I want to keep it for around 6 years. Anyone know if it is possible? Is there a limit on how long you can have it diverted?
UC/Crohn's
Humira

CD/UC story: I took Cipro. Then, I had diarrhea. It felt like my whole colon was burned. It eventually got extremely painful to even have a bowel movement when only one drop of blood was passed. I was diagnosed with c diff. Took Vancomycin and the blood stopped. Diarrhea persisted. Colonoscopy was done and CD/UC was found. Cipro, I hate you and the doctor who put me on it.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/25/2010 8:06 AM (GMT -6)   
Why six years?

I had mine for about 8 years before I had my proctocolectomy...I am pretty sure you can have it as long as you want!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 348
   Posted 8/25/2010 8:39 PM (GMT -6)   
Nice. I had a bad CD episode in the last two years: 17 weeks in the hospital, 2 surgeries, and one surgery upcoming. Never again.
UC/Crohn's
Humira

CD/UC story: I took Cipro. Then, I had diarrhea. It felt like my whole colon was burned. It eventually got extremely painful to even have a bowel movement when only one drop of blood was passed. I was diagnosed with c diff. Took Vancomycin and the blood stopped. Diarrhea persisted. Colonoscopy was done and CD/UC was found. Cipro, I hate you and the doctor who put me on it.

gfkak
Regular Member


Date Joined Sep 2006
Total Posts : 44
   Posted 8/26/2010 6:18 AM (GMT -6)   
my doc said that after 10 years they like to either reverse it or make it permanent as it can give you a greater risk of getting cancer if you dont.
26yr old female
Australia
17 years with crohns
illeostomy for 4 years so far
on imuran
Arthritis
Asthma
Depression
and a bunch of other annoying stuff :D

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/26/2010 7:16 AM (GMT -6)   
If you do keep it (and have your colon/rectum) make sure you have a colonoscopy every year!

NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 348
   Posted 8/26/2010 7:29 AM (GMT -6)   
I wonder why you would be prone to get cancer if you have it diverted? An odd thing is that my rectum got worse after the ileostomy???
UC/Crohn's
Humira

CD/UC story: I took Cipro. Then, I had diarrhea. It felt like my whole colon was burned. It eventually got extremely painful to even have a bowel movement when only one drop of blood was passed. I was diagnosed with c diff. Took Vancomycin and the blood stopped. Diarrhea persisted. Colonoscopy was done and CD/UC was found. Cipro, I hate you and the doctor who put me on it.

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 8/27/2010 6:44 PM (GMT -6)   
I don't think you are more prone to getting cancer, it's just that it could very easily go undetected, since you are not having regular bm's and screenings, etc.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."
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