saw my surgeon today

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Christine1946
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Date Joined Aug 2008
Total Posts : 5965
   Posted 8/25/2010 11:14 AM (GMT -6)   
     Went over to Pa Hosp to see my surgeon today, thinking...he must think I am nuts because I feel like I have to poop out my anus and I know there is no poop there, plus the vaginal issues...ugh.
Well, quite the contrary.  He gave me a rectal exam shocked ..thought I would go to the moon.  He told me it shouldn't have hurt that bad.  The blood that is coming out my vagina is most likely due to the operation.    He ordered a CT scan of the abdomen and pelvis plus blood work...metabolic profile.  I called the radiology office and cancelled the ultrasound.  They will schedule the CT scan as soon as they get the pre-certification number.
     I asked him why he didn't remove my anus.  He explained that there is a higher morbidity rate on people who have had their anus cut out,...more chances of infection and complications.  If it isn't diseased, he leaves it alone.  Well, I think I have had my share of complications even with the anus intact smilewinkgrin .  I have a lot of confidence in him, so just going with the flow.  Right now, with the probing that the gyn doctor did and the probing my colorectal surgeon did today smhair ,  I had to take a Hydrocodone.  Hated to do it, but I am sooooo sore, front and back.  Hubby just better stay far away from me turn .
     Hope you all are having a better day.  Going down to our trailer which is at the shore.  I need a casino fix.

Christine1946
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Date Joined Aug 2008
Total Posts : 5965
   Posted 8/25/2010 11:16 AM (GMT -6)   
     Oh, forgot to add....if there is a buildup of blood in my pelvic area, then they have to stick a needle in there and syphon it out eyes

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 456
   Posted 8/25/2010 12:05 PM (GMT -6)   
Is your Ostomy permanant? My doctor told me that if you don't get the anus removed within a few years it becoms cancerous

Christine1946
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Date Joined Aug 2008
Total Posts : 5965
   Posted 8/25/2010 12:23 PM (GMT -6)   
     OMG...you've gotta be kiddin me!  Yes, I have a permanent ileostomy.

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 8/25/2010 12:26 PM (GMT -6)   
Christine, was thinking of you and waited for your update.. so sorry it was all so painful for you :( i hope the soreness goes down soon. but it is a very good thing he sent you for a ct of both the abd and pelvic, i'm sure after the ct is done he'll be able to know what is wrong and how to treat it. he does sound like he's thorough and seriously looking into it, so that must be reassuring for you. mean time i hope you're staying calm, it'll be ok i'm sure. keep us posted.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 8/25/2010 12:29 PM (GMT -6)   
Christine, don't think of the worst, nothing is really proven about this, don't get ideas into your head now, k?
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Christine1946
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Date Joined Aug 2008
Total Posts : 5965
   Posted 8/25/2010 12:37 PM (GMT -6)   
     Hodaya....it is hard for me to believe that my surgeon would leave my anus intact if there was anything to back up what Brian's doctor said about the anus becoming cancerous if not cut out.  My paternal grandmother died from rectal cancer and my surgeon is aware of this.  I am quite certain that he wouldn't put my life in jeopardy.  He wouldn't even do a j-pouch on me because he said it would be too stressful for someone my age.  I also had to pass a nuclear stress test before he would operate.  He's extremely cautious.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 8/25/2010 12:54 PM (GMT -6)   
so yes, if he's exremely cautious, then you should be calm and confident you're in good hands. has he ever indicated something about chances you may have cancer..?? as long as he hasn't, then don't think of it too much. he sounds like a good and responsible dr. everything will be fine.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 456
   Posted 8/25/2010 4:01 PM (GMT -6)   
Christine-Sorry I didn't mean to scare you. What happened was I thought that I would leave the anus intact incase maybe there were some new "cures" coming out in the future. Like the next 10 years. He told me a few years is ok, but something about leaving it dormant for a long period of time gives you a very high chance of getting cancer. That's why I had mine removed. I don't think it's a 100% gaurantee but I didn't want to risk it.

Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 8/25/2010 4:04 PM (GMT -6)   
yeah, don't start worrying again, Christine! I am glad you finally got your answer about that and now you just have to start moving forward. I actually never heard of the anus and cancer with a perm ileostomy. I do believe I even talked about this with my surgeon when we were going over all of the possible avenues I could have taken. Hang tough, girl! You are a Camden chick, you gotta be tough from there! Now, why don't you get yourself a gallon of icecream and a philly cheesteak, and a movie and relax. I just did!

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 8/25/2010 4:19 PM (GMT -6)   
Hi Chris,

If there were anything to anus becoming cancerous for ileostomates we'd all have it!!!! and we don't.

Your doc SHOULD have realized that the sensitivity to the rectal exam is due to your disuse colitis. Whether active or not, we all who own rectums/colons that are not being used get a serious sensitivity to them. Due to disuse the tissue naturally gets very friable. I always insist my doc go real easy. The day I brought my own KY gel he really got the idea and looked a bit embarrassed. That is why it really hurts to get my colon mucous suctioned out of me due to all the colon scarring my original docs did.

Glad you're getting the CT scan and going to the Casino. Rosemary

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 8/26/2010 4:18 PM (GMT -6)   
     It feels much better today.  I suppose just the probing in there made it very sensitive.  I broke even last night at the casino.  That is a good night..lol.  I have an appointment for the CT scan of abdomen and Pelic area scheduled for next Wed.  I don't need another blood test because my family doctor ordered a Metabolic Panel last month and everything was ok.
     This is weird though....my GI doctor ordered a CT scan of abdomen and Pelvic area last Feb.  I had the results sent to my new gyn doctor on Tuesday.  Well....my gyn doctor phoned me today and told me my left kidney is lower than normal...it is in my pelvic area!!!  Now, how come my GI doctor NEVER told me this?  It's no biggie, I assume because the kidney functions properly.  Guess I am lucky that my organs function at all, because of my situs inversus. rolleyes .

kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/26/2010 6:29 PM (GMT -6)   
Just wanted to say HI and hope everything turns out just great for you soon.  If nothing else you have convinced me that I will not have surgery unless a matter of life and death. 
Hope it never comes to having to make that decision!
ElaineNY
Senior - diagnosed with proctosigmoiditis - 6/2008 Cannot tolerate mesalamines including rectal meds, etc.
Prednisone for about 5 months - tried 6 MP with no help.
No prescriptions now except for Cortifoam and anusol about once a week. Now treating only with Imodium and Pepto Bismal and below....
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
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