2nd attempt for information on Urostomy

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Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 8/26/2010 10:40 PM (GMT -6)   
I am normally in the Prostate Cancer forum.  I am scheduled on September 23rd to have the Ileal Conduit Surgery, by passing my bladder and bladder neck, which were heavily damaged during Salvage Radiation late last year.  I am currently on my 21st catheter, and have been on one continous since Oct 1 of last year.  We waited all these months to see if any natural healing would occur, but its not going to happen.  The pain of having constant bladder spasms, and all the irratation from the radiation damage is more than I can handle at this point.
Trying to find out from anyone here, what the operation is really like, the hospital time is expected to be in the 4-7 day range, and my uro/surgeon said to expect 6-8 weeks normal recovery.  This will be my 8th operation since November of 2008, my body is very tired of all this.
My wife is a nurse, and are both a bit uncertain about the perm. aspect of this operation, and what life will be like for me with a bag and stoma.
Any advice is appreciated in advance.  Are there any Uro patients in this group?  Thanks
David in South Carolina

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 8/26/2010 10:47 PM (GMT -6)   
i dont think anyone on here has a urostomy, try uoaa.org i know they have alot over there
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 8/27/2010 7:08 PM (GMT -6)   
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 11/10 ?
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, on Catheter #21, will be having Ileal Conduit Surgery in Sept.
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