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becellea74
Regular Member


Date Joined Apr 2008
Total Posts : 90
   Posted 8/28/2010 2:39 AM (GMT -6)   
hi iv had crohns disease since 15 now 36 but allready had 3 op all sml b have been suffering with stricture 4 2yrs every month 4 3 days iam being sick and in pain seemsto be every full moon that sounds silly but it seems that way coming of pred on imuran 50m anyway totally had enoughf to the point were dont want to get of lounge iam a single mum and my son resents the fact that i am always sick because he never gets to go anywere seeing my surgen on monday morn i am thinking of asking him for an iliostomy just to end all this hassel has anyone chosen this and was it the best thing they did please help me desperate

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/28/2010 6:57 AM (GMT -6)   
Becellea, I'm so sorry you're going through this, especially as a single mom. sad

Some of us chose to have surgery, and some of us had it done in an emergency, but the bottom line is, having an ileostomy is so much better than being sick. I had active Crohn's for 7 years, and that was enough for me, so I chose to have surgery. That was 4 years ago, and I love my new, healthy life. I do not take any medicine and have lots of energy.

The other thing to consider is that the longer you keep the diseased intestine, the higher the risk is for developing cancer. Removing it removes that risk.

Good luck with your appointment on Monday, and please ask us any questions you may have. We're here to help! :-)

Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/28/2010 8:57 AM (GMT -6)   
i chose an ileo and i love it so much better than being sick
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

mxmstr
New Member


Date Joined Aug 2010
Total Posts : 8
   Posted 8/28/2010 9:19 AM (GMT -6)   
I chose ileo 25 yrs ago and have no regrets. I am no longer tied to doctors or bathrooms, and have been free to do anything I want to do. If you asked my limitations since surgery, I had a blockage from potato skins that made me nervous while it worked itself out. I no longer eat skins from baked potatoes. If my teeth were better I'd probably do that too.

becellea74
Regular Member


Date Joined Apr 2008
Total Posts : 90
   Posted 8/28/2010 9:23 PM (GMT -6)   
thanku dose it take long to recover is it easier recovering with bag than surgary

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/29/2010 12:53 PM (GMT -6)   
im not sure what you mean
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/29/2010 1:08 PM (GMT -6)   
Recovery isn't any different than another surgery. There is surgical pain but you will have meds for that! There is a learning curve to changing your appliance but you become a pro pretty fast! Hospital stay may be 5-7 days (depends on each patient) and 6 weeks or so after you are released to work.

I am very happy with my ileostomy:) My first one was emergency but the other two were my choice...one was temporary and the second when I had it changed to a permanent one.
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!
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