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Veteran Member

Date Joined Jan 2007
Total Posts : 4147
   Posted 8/31/2010 9:38 AM (GMT -6)   
Hi Janie,

Glad you had a good cruise.

I just FINISHED total weed out of my house (6 rooms) but had to leave the junk room. First time I've weeded since the 2006 disaster surgery. The emotional part was worse than the physical exhaustion. So many memories of times when I was not injured, memories of my mom who I TRIED to take care of, teaching achievement awards I can no longer earn. Lord. DID this prior to going to Africa cruise so I could come back on a fresh start, as fresh as can be done anyway.

Also an agent is actually interested in my book so I am going to now crank away on that to complete before Oct. 12 Africa trip. Gotta get all the patient advocacy hints, elder care hints, etc down and sent off before Africa. WOrk on the book when I return has GOT to be the "brainless parts" editing, etc. Only way I can think of to put all of this to rest the best I can.

Sorry your friends are leaving and dying; that is tough. So hard to make close friends later in life. It's 90 + here, real hot, but I gotta get out or go bonkers.

Glad my suit is rolling, but other than doing periodic work for the atty's I no longer really care. The 2 original surgeons who did the unneeded surgery which lead me to Ostomyland are still practicing, still getting sued, I have found there IS no governance over docs who do not practice for the RIGHT reasons, the kind that do procedures for dollars. Their latest victim they did a sphinctoroplasty on. She developed a rectovaginal fistula which they ignored. They FINALLY did a temp ileostomy to "get her to stop complaining" her words in her med board complaint. THEN they were going to put her back together without testing to see if the fistula healed. She went elsewhere at that point. Turns out she did not need the sphictoroplasty to begin with. She is pressing charges, but even after she gets her settlement these 2 docs will STILL be "practicing."

Veteran Member

Date Joined Jan 2007
Total Posts : 4147
   Posted 8/31/2010 12:03 PM (GMT -6)   
Hodaya and Tracy,

Just a "technical question": For breakfast I had juice, coffee, hot rice cereal, and milk, so naturally output was liquidy. Emptied twice (bag 1/3 full each time) and went on with the day.

Then for lunch I had a glass of water, a few crackers, table spoon of cottage cheese, and a cinnamon bun with milk. I had liquid output of the liquid that was I guess still in me from breakfast (about 1/3 bag). Then the output virtually stopped. When it started up again it was VERY THICK and I could feel the stoma working hard. So I drank grape juice, hot bullion, and then it softened up and started coming out.

My question to you is IS THAT NORMAL???? Auuuugh! I feel OK. I just after 3 years don't have a clue what normal is with an ileostomy. Hodaya, you are more like me in that you have been living out of only your small intestine for quite awhile even though your stoma is new. I have been living out of my small intestine with the stoma for 3 years.

Tracy, you are still "adapting" to living out of your small intestine only for a very short time, so I think our output variations will be quite different.

But what can either of you tell me? Is it dangerous to get output too thick or does it even matter?

Grape juice, chocolate, Liquor, orange juice, caffeine, all are thinners. Cheese, crackers, buns, bready stuff are all thickeners. Are we supposed to combine thinners and thickeners?

I want to ask my new surgeon this but I think he would look at me quizzically. (He's a great guy, but I think he may just not know the answer.) My original ostomy surgeon said as long as you feel OK and are not nauseaus, all is well. Likely good advice, but I still want to know what normal is.

Thanks, Rosemary
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