Total Colectomy Part 37

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evans18
Regular Member


Date Joined Apr 2009
Total Posts : 195
   Posted 8/31/2010 10:43 AM (GMT -6)   
Ok, I hope I am doing this right.  Starting a new thread.  I am computer illeterate. 
 
Janie, I so know what it feels like to have your friends gone.  Although mine is a bit of a different situation.  My friends have left me due to a religious decision.  So I have a lot of friends that do not talk to me anymore.  Have made new ones, but when you have had friends for 20 yrs and now they do not talk to you, it is very difficult.  I will go to a chic flic with you!!  LOL!
 
Funeral for the little one is on next Tuesday.  So sad!!  This summer has definetly been a trying one.
 
My kids start school this Thurs.  Yeah!!  My oldest is going to middle school and that makes me feel extremly old!  And sad she is growing up too fast.
 
Been feeling ok for the most part.  Still get the terrible rectal pressure and some cramping throughout the day.  I still take Miralax but it gives me awful diarreah, a really bright yellow color that stains the toilet.  Somedays that is the only thing that will get my poo a movin. 
 
Have a good day everyone.  Will be home painting all day today!!  Yea for me!

    * Marisa

    * 1999-Appendectomy with Cecopexy

    * 2001-Ruptured ovarian cyst

    * 2004- Emergency hysterectomy

    * Lifetime Chronic Constipation

    * 6-1-09 Total open colectomy with illiorectal anastomosis


* 3/24/10 Gall bladder removed

* 4/3/10 Feeling great for first time in a very long time!!

Trust in the Lord with all thine heart: and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths. Proverbs 3:5-6.

tinkerbell2
Regular Member


Date Joined Jun 2009
Total Posts : 418
   Posted 8/31/2010 3:28 PM (GMT -6)   
Marisa, good job - you started the new thread correctly!

I forgot about your post with the death of the baby, so sad... can't be anything much harder to deal with that that! You're not old yet.. just wait till they all move out and are on their own, than you feel kinda old! LOL

I have been reducing the Miralax, and so far - so good.. things still move through, but sometimes I feel too slow (bloating), but definitely better since the resection. I just think now my issues are still my pelvic floor.. the descent & rectocele is just making it hard, but I'm just not sure what options I have left. Straining - will only do more damage, so I have to use a laxative (fleet glycerin suppository).. really not an ideal thing either! *sigh* BUT, I do feel good and it really only bothers me when it is time to go, or I'm bloated.
~Jenise~


Chronic Constipation - last 20+ yrs.
Stage lll Pelvic Floor Prolapse ( rectocele, rectal, vaginal, bladder) Rectopexy, Sacral Colpopexy, TVT Sling - 8+ hr surgery - March 2009
Constipation increased, could not move bowels without excessive straining or laxatives - March 2009
TVT Sling Released - April 2009
Redundant, Twisted, Prolapsed colon found - causing mechanical obstruction Oct. 2009
Rectosigmoid Colectomy w/low anterior Anastomosis & Revised Rectopexy - Dec. 2009
Perineorrhaphy & Posterior Colporrhaphy (rectocele repair) - Dec. 2009
Today - using MiraLax daily,but still struggle to have a BM :(

** update: Surgery to fix rectocele and other pelvic issues 07/26/2010)**

tinkerbell2
Regular Member


Date Joined Jun 2009
Total Posts : 418
   Posted 8/31/2010 3:29 PM (GMT -6)   
Janie, forgot to comment on your friends moving.. sorry!! I know losing friends is hard, so you're in my thoughts! I guess it does give you a good reason to take vacations in certain areas.. and thankfully, we have the internet, because I really do think it can help with we are far from friends and family!
~Jenise~


Chronic Constipation - last 20+ yrs.
Stage lll Pelvic Floor Prolapse ( rectocele, rectal, vaginal, bladder) Rectopexy, Sacral Colpopexy, TVT Sling - 8+ hr surgery - March 2009
Constipation increased, could not move bowels without excessive straining or laxatives - March 2009
TVT Sling Released - April 2009
Redundant, Twisted, Prolapsed colon found - causing mechanical obstruction Oct. 2009
Rectosigmoid Colectomy w/low anterior Anastomosis & Revised Rectopexy - Dec. 2009
Perineorrhaphy & Posterior Colporrhaphy (rectocele repair) - Dec. 2009
Today - using MiraLax daily,but still struggle to have a BM :(

** update: Surgery to fix rectocele and other pelvic issues 07/26/2010)**

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 8/31/2010 4:37 PM (GMT -6)   
hey all,

thanks for starting the new thread, Marisa. so sad about that baby...

as opposed, good luck to your kids with their new school year. hope you're feeling better today :)

Rosemary, good job with the weeding! ok, i'm glad to report my gas mistery has been solved... my mom decided to add some kind of a vegie to the usual vegie soup and it obviously doesn't agree with me. didn't find the name of it in english, but it is some kind of an onion, not the regular one, but like a thick, white long stick. anyway, all is back to normal thank goodness!!

i'm actually still processing the fact that i'm free!!!! it's just so unbelievable that it takes me time to digest that i really am free.....

it's too bad you're afraid to fly now. maybe you should ask your surgoen about this, maybe it's not as dangerous as it seems to you..?

about sleeping.. i sleep on which ever side i want - on my back, my tummy, left/right.. as long as i'm careful enough not to smash it lol, then all sides work for me :)

i don't have that feeling of gas behind my stoma.. sounds strange.

about the output, don't worry about it. as far as know, most ostomates (after the adapting period of time post op) get the thick output when they eat only thickning foods, so i can promise you it's normal and def not dangerous. it doesn't matter as long as things are moving, but yes, i def think it's good to combine thinners with thickeners with each meal, both for the health of our systems and for the sake of convenient emptying :) my output is mostly thick, but i thin it with pear juice in the morning and 2-3 pickles in the afternoon, otherwise it'll be too hard to empty the bag. i just feel so grateful that all it takes for me now to make things move is simply pear juice and pickles!! and they are tasty too !! :) :)
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 8/31/2010 5:40 PM (GMT -6)   
Tracy, i'm leaving this job cuz first of all, i never liked the place anyway. second, i dont know if you recall, but i've mentioned it once or more that b/c of me being sick for all those yrs, he's been paying me such a low salary. you see, he's been always telling me that i'm one of his best workers, BUT b/c i'm not stable (b/c of my health), then he cant trust me for being there at all times, so he can't pay me the way he pays those that are stable. he may have a point there, but he's been playing with this excuse too much, cuz during the last year (since the colectomy) i've been to work even more than the others. i've been putting so much effort to show my bosses that i'm now functioning not less than all the others, including not missing so many days and hours as before. but even so, he still doesn't want to pay me as i deserve to be paid. there are new girls in our office who get 1000 shekel (the israeli money) more than me. they've been here for only 6 mons and i'm working there for 8 yrs!!!! so is that humiliating or what..???? so i really just can't stand this anymore. one more thing is that i'm really so sick of typing all day, i'd like a job that has me more involved with ppl. i'm gonna get my compensation, so that's good.

now, to our bussiness, what kind of coloplast product line did you try? coloplast's stoma nurse gave me thier new products line called "sensura". i just wonder if we tried the same one, cause i am loving this sensura line :) i don't feel it at all on my body, like i'm not wearing anything. only when my bag gets full like 300-400 ml, then i start feeling it.

i never tried convatec's moldable wafer. the hospital's stoma nurse sais she's heard of cases where this wafer strangled ppl's stomas and caused a blockage, so she got me scared, as my stoma doesn't stick out much.

we don't pay anything here for ostomy supply, so it doesn't matter to me whether i can intercharge the equip. eventually, when i decide which equip i don't need, i will give it to the charity med organizations, they will use it. i read from the ostomy board ppl saying they do pay, it's so unfair you guys at the U.S have to pay anything for it. how much does it cost you, Tracy and Rosemary? Sarah, how does it work in your country?

oh gosh...... i don't think i can quit smoking yet. too hard!!!! BUT if i get married and pregnant, then i sure will!!!!!!

sounds like you're in good hands, and that's good to hear. glad the swelling is nothing to worry about :)

yeah! i so agree with you!!! the learning IS def a LOT of work!!! but isn't it fun to learn when things are working out so great? :) :) :) :)

Trace, that is SO cool you're having diarrhea LOL....... trust me on this, it's better than being like me ;)
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 8/31/2010 5:44 PM (GMT -6)   
wow.... it's almost 2 am here, Judy, Jenise, Janie.... SO good to hear from you all, love you girls so much!!!! will catch up with you in the morning.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 8/31/2010 6:36 PM (GMT -6)   
Janie, I am so sorry your friends are moving away. sad It is hard for men to understand how important our female friends are to us.
 
Marisa, what in the world kind-of religion are your friends into? WOW! So sad about the baby dying. My aunt died Friday and it was very sad.
 
Rosemary, my doctor told me he wanted my output to be the consistency of pudding or thicker. So, I assume your thick output is okay. As far as cleaning, I have already vacuumed, carried baskets of laundry up 2 flights of stairs, got down on my hands and knees and scrubbed floors and bath tubs, etc. My doctor okay'd me resuming all activities, so I have to an extent. But, I will not pick up the big cases of water or anything real heavy. No way! That makes me nervous. I hope I am okay doing all that I have done.
 
The other night, I was sleeping and jumped up out of the bed because a bug was crawling on my leg. My husband jumped up and found a beatle in bed. YUCK I hate bugs....well, he went and flushed the bug down the toilet and came back and said to me....DON'T MOVE! I was terrified he maybe saw another bug....WELL, he said, I don't think your bag is attached....YEAP, you guessed right....in my frenzy to get away from the bug, I ripped my bag off the wafer and didn't even feel it. blush I am very lucky that I had emptied a couple of hours before this happened or else out bed would have been covered in poop. It was hilarious, but also embarassing!
 
I thought you ladies might need a little laugh. turn
 
Hodaya, I wore the coloplast that was oval shaped and had no tape around the wafer....is that the one that you are wearing? I pay 20% for my supplies and I have been trying to be careful about using too many bags. I prefer to snap a fresh bag onto the wafer everyday, but I am not sure if my insurance will pay for that many, so I been trying to use the same bag for 2 to 3 days and change the wafer every 4 to 7 days. Is that what you do? I changed wafers today and am using Hollister, 2 piece with convex. I may order some wafers that are not convex though because my stoma seems to be sticking out pretty good???? Are you using convex or flat wafers?
 
 
 
 

Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 8/31/2010 8:53 PM (GMT -6)   
Marisa, Jenise, Tracy, Hodaya, thanks for the thoughts. I've felt much better about things this week, but last week I was just so sad....but then just tonight I found out something that has really upset me. I've had my internist for 19 years....the most wonderful doctor and as I've said here before, the one doctor I always have trusted to explain things to me and be honest about decisions I've had to make...anyway, I had an appt. with him last week and his nurse called to tell me he wasn't feeling well and they would call to rescheudle. Today the office called to refer me to another doctor saying they weren't sure how long my doctor would be out....well tonight we met our friends for dinner (ones that are moving) and she's in the medical field....she asked if I had heard about my doctor and I told her I was going to ask her if she knew anything....apparently he has a malignant brain tumor. This doctor is my age, and I feel like I've "grown old" with him...(we're 55). I am so sad and just feel so sorry for him and his family. He has two grown children (our kids went to school together). He's headed to a cancer center here in Florida for treatment. Please pray for him and his family. He's an incredible doctor and person.

Janie

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 8/31/2010 10:15 PM (GMT -6)   
WOW Janie, sorry about your doc and your friends moving and dying. All so scary.

Hodaya, thanks for answers to my questions. With my insurance, here in the states, all my ostomy supplies are covered. Glad you discovered what your gas was from. So glad you are free....what a thing to celebrate. Go get that dream job or education you've always wanted......and maybe meet that special guy. Now is the time. I'd love to fly again; I will ask the doc.

Tracy, thanks for answers. Good thing your husband spotted the bag issue. That bug sure shook things up huh?

Rosemary

P.S. Hoping to hear about Lizzie, good news that is.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 8/31/2010 10:16 PM (GMT -6)   
marisa, so sorry about the little one, am sorry I forgot in the above post. Rosemary

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/1/2010 6:30 AM (GMT -6)   
YAY Judy!! for not being sick any more!! so sorry things didn't work out with your arbilation, so unfair! but i guess what's most important is that you're healthy and doing well :) prayers your way that you keep doing well and healthy!!!
thanks, looking for a job after working in the same place for 8 yrs is quite overwhelming, i really should get started full steam with that.

Jenise, thanks so much for your warm words hon! i hope i find something soon. keep us posted on your drs visit on the 9th.

OH MY GOSH Janie.... that is so sad about your dr and your friends moving away and all..... too too sad, honey, so sorry to hear all that :(

the gas prob has been solved, thank goodness, but LOL.... about blowing out the place... :D well i had it several times when i was still ileo-rectal anastomosised, but it only happened when i ate things i shouldn't, like citrus... OMG, that gave me THE most explosive bms lolololol... i went to the ER b/c i didn't understand what was going on with me. then while in the ER i needed to go and can swear the whole hosp heard my bm lolololololol... it happened several more times, don't remember what was the reason of each time. but most of the time i didn't have it. as long as i watched what i was eating, it didn't happen. so maybe it's something you're eating..?

LOL Tracy... that bug story is hilarious :D ok, get this, one night i had a HUGE bug crawling on my FACE!!!!!! EWWWWW it's the first time in my life anything like this happens to me.. it was just ewwwwwww. but it was few months ago, before the ileo op lol.

the coloplast sensura wafer i'm using is also oval, but i'm not sure it means it's the same one.. i dont know.

MY GOSH!! 20% is a lot of money!!! actually, up untill (not sure if one or two yrs ago) ostomates here did have to participate with the cost of the supply, but now there's a new law that we don't have to pay a dime. i can change 3 bags every day w/o even giving it a second thought. the only reason i won't do that is only b/c i managed to make my output liquidy enough to empty. but i at least change once a day, cuz unlike you, i dont have to worry about the cost. it's so unfair you have to pay anything!!

i don't need convex, cuz my stoma is not retracted. the flat ones are good for me. but i do find it anoying that the sure seals/paste makes the wafer higher from my skin and that makes it the same level as my stoma. that's not so good, so maybe it IS better i used the convex..??

thanks so much sweet Rosemary :) i hope i do find both - a special job and guy..

so glad you don't have to pay for your supply. i really hope you can fly again, why prevent you self from doing what you like..

yeah, i'm getting worried about Lizzie too, hope she's well.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

I'd Rather Be Riding
Regular Member


Date Joined Apr 2010
Total Posts : 149
   Posted 9/1/2010 10:22 AM (GMT -6)   
Hi Ladies,
 
Just wanted to check in quickly...Sorry for the delay! I am in Michigan with Lizzie right now, so I haven't been on the computer (have to admit, kinda like getting away from technology every once and awhile). I certainly have reading to catch up on when I get home, but we're just enjoying relaxing right now.
 
Lizzie is doing pretty well. She is exhausted; surgery was two weeks ago today. She does have pain, but I am honestly blown away at how much she is up and moving this close to surgery. Keep praying for complete healing and a smooth recovery for her!!
 
Hope you all are doing well. Love and prayers to all!
 
Allie 
Life-long GI problems.
- 2004: Motility problems completely took over my life (I was 18). Tons of doctors later... 
- July 2007: Diagnosed with colonic inertia, small bowel dysmotility, delayed gastric emptying, rectal dyssynergia at the Mayo Clinic
- November 2007: Total colectomy with ileorectal anastomosis; IV lipids, PICC TPN
- Post-op: Better, initially. Motility slowed again 8 months after surgery. I currently have chronic debilitating pain due to a small bowel dysmotility.
- September 2008: Barium study shows dilated small bowel loops (4.9cm), indicative of partial obstructions
- May 2010: Doctors suspect worsening rectal dysmotility; manometry inconclusive; rectal biopsies normal
- June 2010: Biofeedback (entire pelvic floor in full spasm...PT has quite the project on her hands!)
 
Currently trying to figure out what my physical abilities will allow me to do career-wise. Psalm 73:26 - My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
 
 

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/1/2010 10:54 AM (GMT -6)   
so glad Lizzie is doing well :) :) hope she's managing good with her stoma too. prayers are always with you Lizzie.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 9/1/2010 1:10 PM (GMT -6)   
Hi Allie,

Thanks for update. Tell Lizzie I'm happy for her too and praying she make full recovery. WHat is that pain thing all about 2 weeks post-surgery though? Do her docs have any idea?

Main thing for now is that ostomy is working and sounds like she is not getting sick anymore, so that is major progress. Tell her we all say hi and best of luck.

Rosemary

evans18
Regular Member


Date Joined Apr 2009
Total Posts : 195
   Posted 9/1/2010 10:15 PM (GMT -6)   
Janie, so sorry about the continuing bad news you keep getting. I hope your new doctor will turn out to be a good one for you.

The majority of my friends are LDS. I never really have been but sporatically went here and there through highschool and college. It just was never my thing. Since I was friends with the LDS kids none of the boys wanted to date me or maybe it was there parents wishes, but I was excluded a lot. Well I met my Hubby, a nonmember, and pissed a lot of those friends off. They did get over it in time, but now I am going to a completly different Christain Church and that is why they will not have much to do with me now. Even through my surgery and the brutal murder of my brother only one friend offered a bit of help.

So thats that and I try not to let is bother me too much. Its hard though because some of them were very good friends as long as I did what they thought was what I should be doing.

Hooray for Lizzie, hope you continue to get stronger!!

    * Marisa

    * 1999-Appendectomy with Cecopexy

    * 2001-Ruptured ovarian cyst

    * 2004- Emergency hysterectomy

    * Lifetime Chronic Constipation

    * 6-1-09 Total open colectomy with illiorectal anastomosis


* 3/24/10 Gall bladder removed

* 4/3/10 Feeling great for first time in a very long time!!

Trust in the Lord with all thine heart: and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths. Proverbs 3:5-6.

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 9/2/2010 9:56 PM (GMT -6)   
Marisa  Glad to hear that your doing ok.  All in all I am happy with my Total Colecomy although have had a few challanges along the way.  Flying to my daughters shut down my intestines and on the way back caught Miocarditis, recovered from that we went camping for a week at the beautiful Oregon Coast with my daughter and grandson.  Had just a wonderful time, ate like a hog, and still managed to lose 6 lbs...then we have been home about a week and I caught the flu on sunday and still sick with it.  They say it will take me longer to get over it since my ammune system is so low.
 
So when you have more good days then you have bad, then your making a improvement.  So I feel blessed, but my daughter is going through a stressfull divorce and all the stress on me has not been good.  So had to distance myself from the stress as it was making my blood pressure soar.  n I have perfect blood pressure.  So I thank God for my many blessings every day and this site and all the wondeful people on her is one of them.  May you all have a wonderful night..
 
Leslie yeah

Cookie74
Regular Member


Date Joined Jul 2010
Total Posts : 37
   Posted 9/3/2010 5:25 AM (GMT -6)   
Been away for several days, so just read back to see how everyone has been getting on.

Allie - thanks for the update on Lizzie. So glad she is doing well. Still praying for her.

Janie- really sorry about your doctor and your friends moving away.

Hodaya - sorry that your boss has been treating you in such a cruel way. Sounds like you're best getting out of that workplace. Glad you'll be getting some compensation.  In answer to your question about my health, I've been told by several doctors that I won't ever get back to my pre-M.E energy level.  However, that doesn't mean I won't have a life.  It's just a case of letting go of my pre-M.E life and building a new one.  I'm confident that one day I'll be able to walk unaided, just not sure if that will be possible for long distance, but you never know.

Marisa- so sorry to hear some of your friends are no longer in touch. I can empathise with you as I've lost a couple of friends due to the ignorance about M.E. Good to hear you've made some new ones, and I hope all went well when your children started school yesterday.

Jenise - well done with reducing the Miralax. Glad you feel well the majority of the time.

Tracy - The bug story was great! Glad you are continuing to make a good recovery, but sorry to hear your Aunt passed away.

I've been taking Prucalopride for 10 days, and to be honest, it doesn't look very promising. Still got 2 weeks before I see my Gastroenterologist, so hopefully things will have improved by then.
Epilepsy since childhood.  Controlled with neurosurgery in 2000 and continuing medication
Chronic constipation for as long as I can remember
2004 - Started with Severe M.E
2005 - Diagnosed with Heart murmur and tachychardia
2008 - Found to have Osteoporosis
2010 - Diagnosed with Colonic Inertia, Rectocele and Anismus

Post Edited (Cookie74) : 9/3/2010 4:35:52 AM (GMT-6)


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/3/2010 6:52 AM (GMT -6)   
cookie, you're in my prayers hon, to regain as much of your energy and health possible back! i admire you positive attitude and insistence resuming your life again and being active and not giving up :) way to go! you're an inspiration to all of us!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 9/3/2010 8:31 PM (GMT -6)   
Hello all, well I need to catch up with all of you ....so will have lots of reading to do.  Still not over this dang flu since I got it sunday.  Hope its gone in the morning cuz I want to do stuff this weekend.
 
I hope you all have a safe and happy holiday...and good digestive health.
 
Leslie nono

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 9/3/2010 8:59 PM (GMT -6)   
Leslie,

When you flew to your daughter's in California and your intestines shut down, did they think it was the flying (air pressure changes) that triggered the ileus?

Or did they think the air pressure changes in the plane induced a small bowel obstruction that cleared with NG tube?

Rosemary

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 9/3/2010 10:16 PM (GMT -6)   
Rosemary,  I think it was a combo with the air pressure and stress from my step son made my intestines go silent, and had ilius so had a NG tube for 4 day out for 2 then back in for another 4 with NG tube the whole time.  They left it in far too long and all that was coming out was blood and I was gagging and chokeing on the blood and could not get a nurse to answer the call button for over an hr, by that time I was freaking out and throwing stuff at the door and my room mate was buzzing for a nurse too.  Cause the container was completely full of blood and it was going back in me. 
 
They had to give me ativan to calm me down when they finally came ...like way over a hr...so when my daughter got there heads were rolling...My daughter wants me to file a suit against the hospital for neglect, but I dont know.  I thought I was dying with all the blood, all I could taste and smell was blood it was horrible, the worst experience I have ever endured in a hospital...  So thanks to San Leandro Hospital in Calif.... so got the heck out of there and flew home on a wed and on sundy ended up in ICU with myocarditis and they said I probably caught it on the plane cuz it was viral.  I thought I was having a heart attack because that is exactly what it feel like.
 
So sorry kind of lengthy but OMG just thinking of that experience gets me going...
 
Leslie

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 9/4/2010 10:25 AM (GMT -6)   
That's OK Leslie, I UNDERSTAND.... TOTALLY of all people, I do understand.

Reason I was checking was that since I lost the use of my rectum and colon from (what was later determined) unneeded sigmoid colon resection and had to have MANY adhesions removed from my small intestine (result of that surgery and from which I had small bowel obstructions for 7 months), and had my ileostomy so I could once again eat, get nutreints, and pass waste, I have been NOT flying. But have been taking, trains, buses, ships to travel. Thankfully, so far, I have had no issues with recurrence of small bowel adhesion obstruction (I wrap on wood as I type this).

What made me leery of flying in terms of fear of flying triggering possible recurrence of small bowel obstruction is that I know in an air plane the air is pressurized to around 7 or 8,ooo feet like being in Denver Colorado. It is not pressurized like being at sea level like where I am used to living. It took me 13 months of seeing 11 docs nation wide before I found one that could save my life from the damages of the (unneeded surgery) until I found the one that did the lysis of small bowel adhesions and the ileostomy made necessary through the first surgery's damages.

One trip I made was out to a large mid-west medical center for testing. I flew out on a medical plane pressurized to sea level as they were aware of my issue. I was fine on that an did not have a small bowel obstruction. However, returning on a commercial airline, I started having pain and symptoms of small bowel obstruction, intestines shutting down. No gas passing, severe pain, intestines dead quiet. When we landed, I do remember miraculously this straightened out. Maybe through the grace of God, I don't know, but it did.

So, I did WANT to return to flying but DON'T think I will because I don't want to mess with "success" so to speak. I never want another small bowel obstruction and want to do all I can to avoid it. So you thought it was the air pressure that sparked your ileus?

Was it ever determined that it was a small bowel obstruction or ileus (the 2 present the same symptoms), but an sbo is mechanical blockage of bowel contents such as an adhesion from the outside of the small bowel. An ileus is an actual shutting down of the intestine. Actual ileus USUALLY happens right after a surgery, not like with you just appearing out of the blue after a flight.

Do you have your medical records, scans, etc from this "adventure" ?

In terms of your possible suit I can tell you if you "qualify". That hospital SURE WAS NEGLIGENT. However, as a result of their negligence, do you have any PERMANENT damage (result of the bleed from the NG tube, their not dealing with it, etc.).

If it could be determined that your myocarditis was CAUSED by the back up of blood in the NG tube etc AND you had lasting effects of the myocarditis, then you would qualify for suit. Was it proven the myocarditis was viral? hmmmmm? remember docs ALL cover for eachother....it's the "Brotherhood" to the max.

The only reason I know all this suit stuff is that I am in the suit process for the original surgery. It takes 2-3 years and is a TON of work. I figured out all the original lack of testing, anatomy, had records reviewed testimony written, etc. That took about a year. THEn it took 1 year and 11 months to find an atty who KNEW the anatomy. It was an MD, JD, atty and doc all rolled into one person. I had to make a 20 minute presentation, THEN get every scrap of paper ever written about me by any doc, get amendments made of any doc's record who lied about me, answer detailed interoggatory questions, and pay money. THough my atty is fabulous and is NOT charging an arm and a leg. WHat cost me outrageous was that prior to finding "real" docs to review my original scan and case, I encountered some "quack" reviewers who charged an arm and a leg.

So at the end of 2 years from now, the thing will either settle or go to trial. If it settles I will be assured of good amount of $. If it goes to trial, it could go either way. Jury could not understand the whole thing and just side with the docs. OR if my atty/dr is a fabulous jury educator (which I think he likely is), then I could get a LOT more.

BUT bottom line is nobody can get me back my body. The 2 original surgeons who did the incomplete testing, test done was misread, they saw in surgery I did not have redundant sigmoid colon, proceeded to remove it anyway, did it wrong, didn't do the leak test, it leaked, did many unneeded unconsented procedures to correct prolapses I did not have or had to a millimeter of a degree, then did no follow-up to complications. WHere they took out my sigmoid colon narrowed in to the diameter of a pencil and I could not pass stool. The surgeon saw it on xray. WHen I asked what he was going to do about it, he said "nothing time will heal." The idiot actually faxed me 6 times saying he would "Do nothing." He really set himself up.

Turns out these 2 original surgeons had close to a dozen suits on them that the state med board did not admit to when I originally checked them out with the board prior to my surgery. To check out a doc, you actually just go to the civil court clerk's office and ask for copies of suits on the doc. Who the H--- knew to do that? I didn't. AND I did go for 3 opinions prior to having that surgery, they all went by the misread scan report and could not read the actual CD of the scan themselves as they were not radiologists.

So, in the end, even if my suit goes through and it settles; it will not get these 2 out of the OR. I found out that surgeons are not responsible to any governing authority. There is no discipline for repeat offenders. These 2 original surgeons get paid per procedure, my insurer pays for all, it was an easy $2000 for each of them.....and it forever changed my life, almost cost me my life, and still may if I have any complications from the way I had to be fixed. THough, I was extremely lucky to get a doc to fix me up the best that could be done. I made it clear to him that I knew I was severely damaged and was looking for someone to just do what could be done to save me, so I made it clear I wasn't expecting to be put back together. This one doc stepped over the white wall of silence and saved me. He practices medicine for all the RIGHT reasons. This is why I've been traveling ever since.

SO there it in a nutshell of how the suit process goes. Then you need to determine if it would be worth it.

Thanks for answering my question. Hope I could shed some light on the suit process for you. SOmething I never planned to learn, never occurred to me that medicine was so political. Unreal, huh?

Rosemary

Post Edited (esoR) : 9/4/2010 9:33:31 AM (GMT-6)


honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 9/4/2010 10:59 AM (GMT -6)   
Rosemary  How horrible for you to have a surgery that you never needed, and thank God for the doc that crossed the line to help you.  You have been throgh so much I am sure you will win, as for me I dont know of any permenant damage so far.  I think that a suit at this time would be weak at best, so I am not going to stress over anything.
 
Right now too much is going on with my children well at lest 2 of the 3, and that is hurting my recovery so much.  My blood pressure has been high for 3 week now with my daughter moiving back in with me, and her dog, and all the husbands calling and treatening .  This all started the day of our nice quiet camping trip she came up and we pick up my grandson and headed out camping.  She told me that her husband was working and would join us on Sat.  Well when we got to the coast she told me she is not going home and she was going to call him that night and tell him she wanted a divorce.  So I was shocked by what she told me he had done and had left brusies on her, so I was happy she was safe and with me.
 
So she called him and told him and he started calling and threatening us, that he would report the car stolen, and that he would cut us up into tiny peices and that they would never find our bodies....so the whole camping trip we were scared.  We contacted the police, and tried to have a great time.
My son is on drugs and has cut me out of his life, step son, and he just got married 3 weeks ago and I was not invited and that just crushed me ...so not being able to help him, and the thousands of dollars it has cost me on getting my daught a place to stay has put me in debt, I could not have a dog in my house for right now she is in a safe place that her husband does not know of.  So with all the stress I have had this flu far too long.  So now I just have to worry about me or I will never recover from my Total Colectomy...
 
I feel so bad for all you have gone through but we seem to be very strong women and thats a plus...bless you and hope you feel better.
 
Love Leslie 
 
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esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 9/4/2010 11:07 AM (GMT -6)   
WOW Leslie,

I would say if you have no permanent damages from that horrible hospital episode, a suit would be like you said, be weak at best and not a worthwhile thing for you to pursue what with all else you have going on. Take care of the now and especially of you. I know I always put others first and that is a whole 'nother dissertation. But I wish you well and recovery from flu and that all goes as well as can be with your family situation. Your daughter is lucky to have you.

Rosemary

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 9/4/2010 11:16 AM (GMT -6)   
Rosemary  thanks so much hun
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