subtotal colectomy

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emmzie
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Date Joined Sep 2010
Total Posts : 6
   Posted 9/2/2010 4:44 AM (GMT -6)   
Hi
 
Can anyone help me. I had a subtotal colectomy on 25th Nov 09 due to colonic inertia ,which went very well. I progressed well at first but a week after leavng hospital I had to return due to constipation AGAIN!!! this was very quickly sorted out with senna and lactulose and for about 7 months all I needed was lactulose once a day. In July this year my stomach began to swell and I had terrible pain in my abdomin, no constipation though. In the end I was taken into hospital with an obstruction. Since then I keep having pain and swelling. Has anyone else went through similar? Any help at all would be very much appreciated.
 
Thanks
Emmzie

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 9/2/2010 8:09 AM (GMT -6)   
hi emmzie and welcome!

could be adhesions/scar tissue forming or your system is slowing down a bit. what do you usually eat? try to keep a soft-liquid diet for a while, no fiberous foods, seeds, grains, beans, fresh fruits and vegies. eat less breads, potatoes, rice, pasta etc. i know... not much left to eat, but it sounds like the obstruction is not completely cleared and keeping this diet for few days can help.

if after a few days you start to feel better, keep on with the diet anyway and gradually start to add more foods - if anything triggers the pain again, you'd know this food is not for you. me, for instance, dairy really constipates me (among other things), so although dairy is considered as something to add to a soft-liquid diet, if it normally slows you down, stay away from it for now.

good luck and hope you feel better soon.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

emmzie
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 9/2/2010 9:40 AM (GMT -6)   
Hi 2b ColonFree

Thanks for that.
I had thought rice was irritating me but stopped eating it and still had the problem re-introduced it and felt fine. I had been on a low residue diet for ages and was slowly inroducing foods. Was really lucky at first as nothing seemed to bother me or cause any problems, except diet coke which left me in agony. Then it all went pear shaped!!!

Think I will do as you say and go back to basics and try again with the low residue diet and slowly add things. I see my surgeon again next week for a check up maybe he can suggest something to help.

Thanks again for your help. Will let you know what happens.

It's great to have a place like this to go for help.

Emmzie

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 9/2/2010 12:03 PM (GMT -6)   
emmzie,

I am the queen of small bowel adhesions and lucky to be alive. I think Hodaya is right and has given you some good advice. Good luck Rosemary P.S. Ask your surgeon for a CT Enterography. This cannot detect adhesions directly as no image test can. BUT it can detect narrowings of small intestine areas which to do not fully dilate from the contrast they have you drink. In the absence of any other disease, any narrowed areas can be assumed to be from adhesions on the outside of the small intestine.

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 9/2/2010 12:49 PM (GMT -6)   
yeah, good point there, very useful information, Rosemary! glad you found this site too, emmzie. good luck with everything and with your dr's appt. keep us posted.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

honestwoman50
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Date Joined May 2009
Total Posts : 833
   Posted 9/2/2010 9:46 PM (GMT -6)   
emmzie
  Hello, well I have had a Total Colectomy Feb of this year.  It is important to listen to your body, and to eat foods that do not up set your balance of feeling well and not well.  Start of slowly and add different foods as tollerated.  It is going on 7 mos. for me and I stick to chicken and turkey , no raw vegies, only cooked and peaches in a can.  For me the raw vegies and fresh fruit are killers for me as they cause way too much gas, plus I stay away from dairy as I am allergic.
Never eat fried or deep fried foods or pre-packaged or processed foods...they are killers too.  I tried a tiny tiny bit of salad again and NOPE cant do it too hard for it to go through, what you see before you eat it you will see again.  This is just my experience and thoughts that you may think as use as you choose.  Be good to yourself and try to not get too wild with the food.  I get hungry for all kinds of stuff but I think of what it will do to me " oh another is red sauces"  killers...and then I just eat my turkey...  better safe than sorry..best of luck.
 
Leslie

emmzie
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 9/3/2010 4:55 AM (GMT -6)   
Thanks to everyone who has been so kind and replied to me, you have no idea how good it feels to speak to people who know what I am going through. I have now gone back to a low residue diet and will see how it goes from there.

Very sore today and swollen, getting to the stage I am uncomfortable with my clothes touching my stomach. Does anyone else get this feeling?

Still glad I had the operation going through this is nothing compared to the years of torture I endured. Sometimes need to remind myself of this.

Thanks again
Emmzie

honestwoman50
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Date Joined May 2009
Total Posts : 833
   Posted 9/3/2010 11:10 AM (GMT -6)   
Emmzie,  Good morning even before and after and still to this day I dont like wearing any underware or pants anything around my waist.  Even if they are so so loose I feel like they are tight and cant stand the feeling so I am in my jammies all the time at home.  I unzip my pants while I drive when I get somewhere and they are friends down goes the zipper...I dont know why i have a feeling of tightness but I do and its so irritating, so I know exactly where you coming from.  All my neighbors know that Leslie is in her nightgown when she is home and have done it for years.
 
Stick to a low residue and that will help...feel better.
 
Leslie

emmzie
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 9/6/2010 3:45 AM (GMT -6)   
Hi

Been away for the weekend, took my mum away for her birthday (she was75!!!). Had a really nice time but had to sit in a car with only 1 short stop, was travelling for nearly 5 hours. Had a very disturbed sleep and felt sick all night. Things not moving very well and still feeling very sick. Uncomfortable insides. Anybody any ideas about what could be going on? Scared incase its another obstruction beginning.

Emmzie

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/6/2010 4:55 AM (GMT -6)   
hope it's not an obstruction, but what i do when i get the obstruction-like pains, i just take pain meds and put my self on only water till it resolves. this is the best you can also do - that's how they would also treat you if you went to the hosp. sometimes, if the pain is actually paralizing, then i would only take the pain meds but won't drink any water at all till it resolves. i also make sure i walk around as much as possible - well, the pain is so writhing, so it makes me move around nonstop whether i wan't to or not lol.

thankfully, i havn't had that lately, cuz i really watch what i'm eating and as long as i stay away from the foods that are obstructing me, i feel great. things that can cause me a severe obstruction are: fresh fruits and vegies - esp mango/avocado, beans, dairy. also, if i don't make sure to combine with each meal foods that thin the stools, then i can also get a severe obstruction with paralizing pain and vomiting.

happy birthday to your mom, hope you feel better soon :)
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 9/6/2010 10:19 AM (GMT -6)   
Emmzie  My dear dont even put that thought into your head think positive and get moving, walking helps so much...  How you feel otherwise.  I take it you live in England or somewhere like that as you said mum...Nice to meet you I don't believe that we have chatted before..
 
Leslie from Oregon

emmzie
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 9/7/2010 4:15 AM (GMT -6)   
hi everyone, oh dear i have ended up back in hospital. it is an obstruction. came in last evening and spent a horrible night of pain. on morphine again and heading for a scan soon.
Hi leslie, no we havent chatted before. i have just found this wonderful site. i am from scotland. tried the walking etc. but to no avail.

will let you all know what is happening later. Feel drained wth the pain. nil by mouth again and on a drip. had xrays done last night.

thanks to all, you are helping keep my spirits up. pray no more surgery.

emzzie

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/7/2010 1:17 PM (GMT -6)   
oh emmzie i'm so sorry, hope they find what's causing you all of this pain lately. feel good soon.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy
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