In a lot of discomfort

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Christine1946
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Date Joined Aug 2008
Total Posts : 5965
   Posted 9/3/2010 8:34 AM (GMT -6)   
     Sorry, just have to vent.  I am in sooo much discomfort that now I am actually sorry I had the operation.  I have no idea what is wrong, but there definitely is something wrong.  The surgeon still hasn't called me back and I had the CT scan on Wed.  I phoned his office again this morning.  I have to take Hydrocodone.  I am still seeping some kind of discharge from my vagina.  I wonder if this has anything to do with a bad fall I took about five years ago.  I fell flat on my coccyx bone and have been having problems ever since.  However, I had two CT scans prior to the one I had on Wednesday, all within a seven month period.  I would think they would show SOMETHING.  I know I am not imagining this pain.  I keep feeling like I have to pass stool and gas from my anus. sad
     Now with the holiday weekend approaching, I will have to wait till Tuesday before anything is done.  Sometimes I think my surgeon's assistant (a very young fellow) just wants to enjoy his time off and the hell with patients.

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 9/3/2010 9:24 AM (GMT -6)   
really sorry to hear about your pain. I hope it gets resolved ASAP

answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 9/3/2010 9:31 AM (GMT -6)   
Christine, maybe you have an infection? Where is the pressure? Do you actually pass anything through your anus or is it just through the vagina? I have pressure in my rectum, but I still have 3/4 of my colon and my rectum, so I have to pass mucous through my rectum! And I hate it because my rectum still does not work. UGH

Please call your doctors office back and tell them you have to take pain meds to manage your pain....this can not be normal since you are already 2 months out from surgery. Do you have any fever?

Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 9/3/2010 12:02 PM (GMT -6)   
i completely agre with anwsers4me2. Sorry to hear that you are going through all of this, Christine.

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 9/3/2010 1:17 PM (GMT -6)   
Christine,

Call the docs again. They need to buckle down and help you and answer your questions. I highly doubt this was from that fall years ago. Sounds like it was from the surgery. It is normal to have to pass mucous rectally even with an ileostomy. The pressure could be that. If it is burny and painful, you may have disuse colitis (but the active kind). We all have disuse issues of the gut parts we're not using, but only if it hurts do they do a short chain fatty acid enema which takes care of the rectal burning if its from that. This would have nothing to do with the vaginal issue though. Your doc needs to deal. Give another call. Long time til Tues. Sorry you are going through all this.

Rosemary

Christine1946
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Date Joined Aug 2008
Total Posts : 5965
   Posted 9/3/2010 4:23 PM (GMT -6)   
     Thanks all.  I explained under Rosemary's question what the results were of the CT scan.  To make a long story short, my surgeon's assistant phoned me today and said I have scar tissue with some build up of fluid.  This fluid coming out of my vagina is a "good thing".  Eventually, he said, it will stop.  I need to take pain medication but I take it very sparingly.  Hopefully, this will resolve itself.  There is no infection and I have no fever, just discomfort.
     My hubby is going to take the CD of my CT scan over to the surgeon's office on Tuesday.  Even though they received the report from the radiologist, I just would feel better if my surgeon saw it for himself. He still wants me to get the ultrasound with Transveg, whatever that is..lol.  I know I have to have a full bladder when I have the test.  This is scheduled for next Thursday.  Geez, I sure hope everything is ok.  We have reservations at a campground up near Hershey, PA from the 12th to 26th of Sept.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 9/3/2010 6:26 PM (GMT -6)   
Hi Christine,

The transvaginal ultrasound is usually done with bladder empty, but maybe they want it to show up well on the Ultrasound in relationship to your other pelvic organs. It is as it sounds (LOL) but was not horrid or anything. I had a gentle technician. Had this done years ago. A piece of cake compared to what I later went through. So your issue sounds like it is a healing thing, that is good. You are smart to have the surgeon see the actual CD though.

Rosemary

80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 9/4/2010 3:47 PM (GMT -6)   
I've had that ultrasound too. I came in with a full bladder, and they did an ultrasound of my pelvis. The full bladder is to raise your organs so they can see them better. Then they had me go pee and they did a transvaginal ultrasound. They do need to do that with an empty bladder. They put a little camera in your vagina and look around. It's like a pelvic exam--uncomfortable, but nothing compared to what you've been through. I hope they can find something and help you feel better! Hugs!
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 9/4/2010 4:38 PM (GMT -6)   
     Stephanie, you answered my question.  I was just talking with my girlfriend and she said her daughter had the transvaginal ultrasound and that they put it in your vagina smhair .  There is no way on God's earth that they are going to stick anything up there!!!  I almost went through the roof when the gyn doctor started probing around.  I was sooo sore he couldn't do a PAP smear.  Why, then, would he order something like this?  My surgeon said that the bleeding and discharge are most likely from the surgery.  The CT scan results noted that I have scar tissue.  My anus hurts so bad I can barely sit cry .

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 9/5/2010 9:01 PM (GMT -6)   
Chris,

Yeah a transvaginal ultrasound might not be the test for you right now. Ask what else they have. There are always options these days. Best of luck, Rosemary

gotguts123
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 9/7/2010 2:43 PM (GMT -6)   
Hi,

Are you passing anything through your ostomy? It could be that your bowls have slowed down causing you the pain. I had this in the beginning and the hydrocodone doesn't help either because it slows down the system more. Feeling like you have to or passing stool or mucus from the anus is normal and it will get better. Hang in there it should get better. Check with the doctor.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 9/7/2010 4:11 PM (GMT -6)   
     Gotguts.....I am passing stool through the ostomy.  It works like a charm.  My problem seems to be the opening between the vagina and anus.  It is sooo sore that it hurts when I sit and is just getting worse.  It is hard for me to believe this isn't a fisula.  I bled again yesterday from the vagina but today it just looked like mucus.
     I have an appointment with my surgeon tomorrow.  They have to get to the bottom of this (no pun intended).  It is more discomfort than the ulcerative proctitis was.
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