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Anyone else have this?

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Ostomies
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esoR
Veteran Member
Joined : Jan 2007
Posts : 4147
Posted 9/3/2010 12:24 PM (GMT -7)
Hi all,

Just want to check and see if anyone else has this feeling who has an ileostomy. When gas gurggles through your small intestine, do you ever feel like a ripple of motion in your upper rectum (presumably from a loop of small intestine that is near the rectum)?

With all I went through and my issues being structural rather than disease or pathology, I might be the only one with this. Not bothersome, just a bit strange.

Thanks,

Hope people have a good weekend.

Rosemary
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NewShinyCD
Regular Member
Joined : Oct 2009
Posts : 474
Posted 9/3/2010 1:57 PM (GMT -7)
I seem to have that. There is no urgency or anything. At first I though I needed to empty the jpouch but just as I was about to get up to the restroom I can feel the stoma working.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Temp Ileostomy and colon removal surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Takedown surgery - 8/?/2010
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Christine1946
Veteran Member
Joined : Aug 2008
Posts : 5982
Posted 9/3/2010 3:14 PM (GMT -7)
     Hi Rosemary!  I don't feel a ripple of motion but I have a constant feeling of pressure in the anus.  Sheesh...that was one of the reasons I had a total colectomy and permanent ileo...my diseased rectum felt like that all the time.

     I received the results of my CT scan of abdomen and pelvis today.  Thank GOD no fistula.  The surgeon's assistant said I have scar tissue around the anus and some build up of fluid, which is leaking out of my vagina.  He said it is a good thing it is coming out and this may take awhile.  I have the CD of my CT scan and my hubby is going to run it over to my surgeon's office on Tuesday.  I really don't trust the radiologist who works at the center where I had my test.  I know a person who had her xrays misread.  Not sure if it was the same radiologist though.  I just will feel better if my surgeon sees the CD himself.  He still wants me to have the ultrasound though which my gyn doctor recommended.  I would think that the CT scan would be more precise at detecting something wrong than the ultrasound but I suppose they want to be sure there is nothing serious going on.

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esoR
Veteran Member
Joined : Jan 2007
Posts : 4147
Posted 9/3/2010 5:30 PM (GMT -7)
Hi Chris,

Responded to you on other thread, but so glad no fistula. Pressure in rectum may be mucous?? Good thing to recheck the CT scan. As with my scenario, the scans are only as good as the people interpreting them. The transvaginal ultrasound is not that bad. Had one years ago. Best wishes, Rosemary

NewShiny, Interesting that you feel that little ripple too. Thanks, Rosemary
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Anthony1977
Regular Member
Joined : Jan 2009
Posts : 413
Posted 9/3/2010 5:34 PM (GMT -7)
I have a jpouch and I feel the rippling effect as well.
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esoR
Veteran Member
Joined : Jan 2007
Posts : 4147
Posted 9/3/2010 7:00 PM (GMT -7)
Oh, OK, thanks Anthony.

How is it being back at work?

Rosemary
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Anthony1977
Regular Member
Joined : Jan 2009
Posts : 413
Posted 9/3/2010 9:08 PM (GMT -7)
great .... and I am getting that rippling effect as we speak right now. I probably shouldn't have eaten that gallon of icecream and box of yodels.
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esoR
Veteran Member
Joined : Jan 2007
Posts : 4147
Posted 9/4/2010 4:14 PM (GMT -7)
Yeah, Anthony I do those gallons of ice cream and yodels or any other sugary stuff I can get my hands on too. Ripple, ripple, ripple. :-) Rosemary
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privey
Regular Member
Joined : Oct 2009
Posts : 453
Posted 9/5/2010 8:20 AM (GMT -7)
I've had the rectal pressure since I've had surgery and that was in June of 2009. Sometimes when I sit down to do my "privey" business it feels like I will just poop out of my rectum.  I only have 7" of colon and they left my rectum when they did my ileo.  The docs have all said it was phantom pain like you have when you loose a limb and it should last a year or so.  Well it has been over a year and I still have it.... and it really drives me crazy.  Our general surgeon here said I could take a fleets enema and I did but I still have it so I don't know what the answer is to getting rid of it or if it will ever go away.  I know they aren't planning on reversing me anytime soon because of my malnutrition and absorbtion troubles; and they said with only 7" of colon to hook up to I would probably have 4-5 or more loose stools everyday.  If anyone has an answer on how to get rid of it I'd sure be interested.

yeah

Cathy 

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