after new ileo...how long until blood stops??

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Lynn27
Regular Member


Date Joined May 2005
Total Posts : 351
   Posted 9/4/2010 11:15 AM (GMT -6)   
Just had my 1st step of 2 jpouch surgery on tuesday....was just wondering on how long i will see blood in the ostomy?? Thanks

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/4/2010 11:28 AM (GMT -6)   
i dont remember ever seeing blood, unless i would bump my stoma or something.
Have you eaten something red?

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 9/4/2010 12:01 PM (GMT -6)   
How much blood? A drop or two once in awhile into the bag was normal for first few months or after cleaning stoma or if you bump it. Otherwise should not see blood. Rosemary

Chevypower1930
Regular Member


Date Joined Sep 2009
Total Posts : 254
   Posted 9/4/2010 12:17 PM (GMT -6)   
I never saw blood... i only saw it ON the stoma (stoma will bleed sometimes) but i don't think you should have ANY blood coming out... contact your surgeon if it is in fact coming out, and if it's not just the stoma itself bleeding...

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 9/4/2010 1:50 PM (GMT -6)   
     For all my problems...this is not one of them (I better not jinx myself here rolleyes ).  Maybe you ate something red?  Tomato sauce?

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/4/2010 2:44 PM (GMT -6)   
i had what looked like blood coming out to the bag for the first few days post the ileo op. they kept telling me it's not blood, but it looked like bloody output to me. anyway, ask your surgoen, most likely its nothing to worry about.

pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 9/5/2010 8:39 AM (GMT -6)   
I never had any blood
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 25 mg (tapering 5mg/week), D, B12, Iron, Prenatal vitamin, Lortab, Humira, Rowasa

Lynn27
Regular Member


Date Joined May 2005
Total Posts : 351
   Posted 9/5/2010 12:55 PM (GMT -6)   
Well..heading home today. Bleeding stopped and it was kind of like 2b colonfree said. Doctors said it may happen because it is fresh and it will clear up on its own. I can't believe i am going home already...so happy. Thanks for the replies!
Ulcerative colitis (whole colon) since 2002
Feeling well....as normal as we can I guess!

6MP 50mg daily
Canasa supp prn
Flinstone vitamins, folic acid, align probiotic, calcium with vit D, vit C
Asacol 3 pills 3 times a day..going to change to HD
Remicade started 9/09...increased to 10mg
tapering off prednsione....been on since 6/09
Had 1st baby 9/15/09!!!! Flared 20 weeks pregnant...and still trying to get into full remssion! FINGERS CROSSED!!!

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/5/2010 3:07 PM (GMT -6)   
YAY so happy for you! seems no one else here had it except for us both. but that's cool, cuz it went away ;) best wishes
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

Gilda
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 9/6/2010 5:17 PM (GMT -6)   
Hi Hodaya, I have posted here several times and often follow your posts. You seem to be doing quite a lot better since having an Ostomy. I have to make a decision soon about having an Ostomy because my SubTotal didn't work either (for different reasons than yours though). Do you really feel a lot better now physically? Do you usually have pretty good energy? Can you eat a fairly normal diet? Are you able to go out and do things or do you mostly stay home? I know you are looking for a new job; how soon until you feel you could go out to work each day? I am very happy for you and do believe you are doing better. I am always trying to gather more info. though so I can make the best possible decision.

Any more news about Lizzie? I was so glad I was able to visit her in Michigan in July. Does anyone know if she is still in the hospital since her most recent surgery? I pray for her everyday; I sure hope she is healing and doing better each and every day.

Thanks,
Gilda

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/7/2010 5:34 AM (GMT -6)   
oh yes i do, i feel MUCH MUCH better now. the nonfunctional rectum/pelvic floor was blocking everything causing me constant obstructions. i was able to release only tiny bits at a time, which made me spend hrs in the b/r every day and even after spending hrs in the b/r, i'd still feel a significant amount that was still there and can't come out, which made me feel very uncomfotable during the day and made it hard for me to function. i couldn't eat normally either, cause i could easily get an obstruction, so my diet consisted of very few foods i could tolerate - almost any food could cause an obstruction, so i mostly ate a soft-liquid diet. at the first few mons post colectomy the soft-liquid diet helped, but as time went by it got worse and worse, every couple weeks i would feel additional deterioration and at 6 mons post colectomy nothing helped any more, i again couldn't have spontenious bms, just like before the colectomy and was getting obstructions even while keeping a soft-liquid diet.

things are now flowing much better, the ileo bypasses the rectum/pelvic floor, so things can flow freely w/o being blocked and that's a huge relief. i can also eat much better now and can add many more foods to my diet. there are still many foods that can easily cause me an obstruction, like fresh fruits and vegies, beans, dairy, rice, fiberous foods, but i can now eat bread, pasta, potatoes, which i couldn't before the ileo op and that's a huge improvement for me.

my energy level is not good, but i believe it's b/c of my lung desease and the fact that i'm still smoking. i feel sick and out of energy, but when i stopped smoking for 6 weeks post the colectomy, i can tell you i felt totally strong and healthy, so i have no doubt the cigs are causing me the weakness and illness feeling. i did manage to reduce the number of cigs i smoke a day - i used to smoke about 25 cigs/day and now about 10/day. but my aim is to totally quit soon.

about going out, well, on one hand pyhsically i feel so much relieved with the ostomy, but on the other, i'm not sure why, but im really depressed, just can't explain it, but i don't feel like doing much or seeing ppl. it has nothing to do with the stoma, it's more about like mourning over the 17 yrs of being sick and no dr would help me, like i feel my life was thrown to the toilet, like i lost my best yrs (from the age of 20-37) to my illness. i feel angry, frustrated, helpless towards the loss of yrs and just depressed. but physically, there's no reason why i shouldn't be out there, the bag doesn't limit me at all, just the opposite. i can do anything i want and go anywhere i want. the bag is really not something that should prevent me from doing anything. with me it's more like an emotional barrier i have to overcome. i believe i will, just takes me time.

hope this helps you with your decision.

i havn't heard form Lizzie in a while, but last i heard is that she's home recovering and doing well. we've all been very worried about Lizzie, this girl been through too much and i too wish she can finally have the relief she so need and start live her life. we all need to start living again.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy
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