Posted 9/7/2010 3:34 AM (GMT -7)
oh yes i do, i feel MUCH MUCH better now. the nonfunctional rectum/pelvic floor was blocking everything causing me constant obstructions. i was able to release only tiny bits at a time, which made me spend hrs in the b/r every day and even after spending hrs in the b/r, i'd still feel a significant amount that was still there and can't come out, which made me feel very uncomfotable during the day and made it hard for me to function. i couldn't eat normally either, cause i could easily get an obstruction, so my diet consisted of very few foods i could tolerate - almost any food could cause an obstruction, so i mostly ate a soft-liquid diet. at the first few mons post colectomy the soft-liquid diet helped, but as time went by it got worse and worse, every couple weeks i would feel additional deterioration and at 6 mons post colectomy nothing helped any more, i again couldn't have spontenious bms, just like before the colectomy and was getting obstructions even while keeping a soft-liquid diet.
things are now flowing much better, the ileo bypasses the rectum/pelvic floor, so things can flow freely w/o being blocked and that's a huge relief. i can also eat much better now and can add many more foods to my diet. there are still many foods that can easily cause me an obstruction, like fresh fruits and vegies, beans, dairy, rice, fiberous foods, but i can now eat bread, pasta, potatoes, which i couldn't before the ileo op and that's a huge improvement for me.
my energy level is not good, but i believe it's b/c of my lung desease and the fact that i'm still smoking. i feel sick and out of energy, but when i stopped smoking for 6 weeks post the colectomy, i can tell you i felt totally strong and healthy, so i have no doubt the cigs are causing me the weakness and illness feeling. i did manage to reduce the number of cigs i smoke a day - i used to smoke about 25 cigs/day and now about 10/day. but my aim is to totally quit soon.
about going out, well, on one hand pyhsically i feel so much relieved with the ostomy, but on the other, i'm not sure why, but im really depressed, just can't explain it, but i don't feel like doing much or seeing ppl. it has nothing to do with the stoma, it's more about like mourning over the 17 yrs of being sick and no dr would help me, like i feel my life was thrown to the toilet, like i lost my best yrs (from the age of 20-37) to my illness. i feel angry, frustrated, helpless towards the loss of yrs and just depressed. but physically, there's no reason why i shouldn't be out there, the bag doesn't limit me at all, just the opposite. i can do anything i want and go anywhere i want. the bag is really not something that should prevent me from doing anything. with me it's more like an emotional barrier i have to overcome. i believe i will, just takes me time.
hope this helps you with your decision.
i havn't heard form Lizzie in a while, but last i heard is that she's home recovering and doing well. we've all been very worried about Lizzie, this girl been through too much and i too wish she can finally have the relief she so need and start live her life. we all need to start living again.
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy