Will having an Ostomy help me cope with the chronic diarrhea problem (which dev. after SubTotal Cole

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Gilda
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 9/5/2010 1:15 PM (GMT -6)   
As many of you know, I had a SubTotal Colectomy with ileo-sigmoid (2 " colon left) in April 2009.  My condition went from chronic constipation and pain to chronic diarrhea 10-20 times/day which causes severe butt pain (sorry but it's true).  I have tried every type of diet, medication, supplement, etc. and yet I deal almost daily with this problem.  My doctor told me over the phone that an Ostomy would probably help me.  I will be seeing him on Sept. 15th to discuss this option.  The main way I see it as helping is that I won't have to experience the "extreme anal soreness and bleeding" that I now have because of chronic diarrhea!  This has been such a nightmare.  What do you think?  Is an Ostomy my next step toward health?  From what I have read, most of you with Ostomies only visit the bathroom maybe 6 times/day; correct?  That would be an improvement to my much more frequent visits.  Please answer soon!
 
Thanks,
Gilda

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/5/2010 4:57 PM (GMT -6)   
I don't exactly understand your diagnosis, but I had/have Crohn's Disease very severely in my colon. I was going around 25x a day before my surgery...it was MISERABLE. I was in so much pain. This surgery has been such a blessing in my life. It gave me my life back. Most people on here would agree with me.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 9/5/2010 8:46 PM (GMT -6)   
Hi Gilda,

Glad you are back. An ileostomy could help your issue, but before you have that done, ask your doc if there are any functional conditions that make you have all the diarrhea. Because diarrhea into a bag would have you running to the bathroom all the time to empty just as your current diahrrea has you running to the bathroom (But without the butt burn.) If you had continuous diarrhea into a bag, it can weaken the seal that goes on your stomach around the stoma. Because you have only 2 inches of colon left, your ostomy would be the ileostomy and you would still be working with your small intestine. My thought is, wouldn't you still have the diarrhea (runny and frequent) if you went into a bag instead of via the rectum?

They likely have not found a functional issue with your small intestine as they would have found a cure for your diarrhea, but it would not hurt to ask.

Just curious, before you had most of your colon (except for 2 inches) removed, did they do a transit test to see which parts of your colon were slow? Sometimes only certain segments of it can have functional issues not necessarily the whole thing. Way too late now, but I'm just wondering if they had left you with more colon, would it have not lead to so much diarrhea?

What did your pre-op colon transit tests show?

I can really sympathize with your situation, but from my experience I advocate for really complete testing and work-ups.

Rosemary

Post Edited (esoR) : 9/5/2010 8:49:10 PM (GMT-6)

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