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Regular Member

Date Joined May 2008
Total Posts : 159
   Posted 9/6/2010 6:56 PM (GMT -6)   
does any of you have trouble with your body being low on B12,, if so what is your story.. what did you have done to you . and what is the way you feel with the B12 being low.. did they do blood work to see if you were low in B12 or how did they know.. how do you feel when you get the B12 back in your system

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 9/6/2010 9:32 PM (GMT -6)   
b12 doesnt absorb as well into us anymore. So just go to the drugstore and get the sublingual ones, or the drops and take them and it should help a lot!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Regular Member

Date Joined Oct 2009
Total Posts : 453
   Posted 9/6/2010 9:32 PM (GMT -6)   
I have had trouble with low B12 in the past but haven't had any problems lately. They have a blood test that will let them know if the level is low. They, the docs, can give a B12 injection and you can take a B12 supplement to build it back up. I've had the injections and taken the supplement and I think it gave me a bit more energy.

Regular Member

Date Joined Jul 2010
Total Posts : 37
   Posted 9/7/2010 3:49 AM (GMT -6)   
I used to suffer from very low B12. It was diagnosed by clinical symptoms then confirm by a blood test. I learnt to self-administer B12 injections and now have optimum B12 blood levels. I used to need the injections on a daily basis, but nowadays it's only 2 or 3 times a week.
Epilepsy since childhood.  Controlled with neurosurgery in 2000 and continuing medication
Chronic constipation for as long as I can remember
2004 - Started with Severe M.E
2005 - Diagnosed with Heart murmur and tachychardia
2008 - Found to have Osteoporosis
2010 - Diagnosed with Colonic Inertia, Rectocele and Anismus

Veteran Member

Date Joined May 2009
Total Posts : 833
   Posted 9/7/2010 10:02 AM (GMT -6)   
I use sublinguals for almost all my the others seem to pass in the same form they went in.  So I know that this is the same as others but its true...good luck.

Veteran Member

Date Joined Jan 2007
Total Posts : 4147
   Posted 9/7/2010 10:04 AM (GMT -6)   
Have your B12 and MMA (Methylmalonic Acid level) checked. If the MMA is high and the B12 is low or low normal then you have pernicious anemia and need B12. I get it in shot form once per month from my doc. The symptoms of this are severe fatigue, difficulty concentrating/thinking, tingling in toes, hands. GOod LUck.

I think you can also just have low B12 without having the pernicious anemia.


Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 9/7/2010 3:51 PM (GMT -6)   
If you have had surgery to or removal of part/all of your Terminal Ileum you will need the IM it's been mentioned, a blood test confirms your level and your doc will determine the frequency of injections.

They aren't difficult to give yourself and save you the trip to the office:)
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!
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