Posted 9/7/2010 5:00 PM (GMT -6)
I am from the western part of Massachusetts. After suffering irreparable damage to my rectum and colon; and damage to my small intestine that could be repaired (all result of what turned out to be an unneeded surgery out here in western mass).
It took me 13 moths to see 11 docs at 7 hospitals nationwide as the damages manifested. The ONLY place that dared deal with this much damage confidently was the Lahey Clinic Colon and Rectal Department in Burlington, MA. The surgeon I had has since retired, but they are all very good.
They do all these procedures there so give them a call. My current surgeon's office tel num is 1-781-744-3760. If you call, they could set you up with someone who does the J-pouch specifically.
If you have an ileostomy, can you please tell me what you eat. After 3 years I'm still trying to wrap my head around diet. (Don't get me wrong, I'm lucky I CAN eat, but am trying to find a diet that is workable for me. I seem to fill fast, then feel hungry all at once. Thickening foods thicken too much, thinning foods make the effluent too watery.) A CT enterography did not indicate any adheison regrowth (so far anyway, so that is good news.) But still looking to find out how to feel as well as I can. SOunds like you and I have a LOT in common. SO glad you posted.)