HELP! I can't keep a bag on.

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Chevypower1930
Regular Member


Date Joined Sep 2009
Total Posts : 254
   Posted 9/8/2010 11:35 AM (GMT -6)   
Hey everyone.. I had my ileostomy on June 22nd and ever since I've had the ostomy bag the left side would start pulling up in about a day but that was because my incision was still wheeping.. but I was still getting 3-5 days.... and now that that's slowed down my ENTIRE area around my stoma is just in horrible shape. about 2 bag changes ago I ITCHED the heck out of the whole area down there and i think I really really messed my skin up... ever since that next bag change everything down there just has a nasty thick wetness to it and my wafers are just not holding up. I changed my most recent yesterday morning. and it's now time for another change as my whole wafer is peeling up all around 360 degrees... also when I change the bag it now looks like the whole wafer is just eaten away and is like a weird puffy white texture with no stick to it?

I don't know what's going on but I wish this wasn't happening, if this would stop I would be sooooo happy and just fine with the whole ostomy bag "life"... this is just turning into a bigger and bigger pain though.

By the way:

I'm using hollister one piece system.
First clean around the area with warm water and a paper towel.
Blow dry completely dry.
Stoma powder on all the horribly irritated skin.
Blow dry again to get the excess powder off.
No-sting skin barrier.
Blow dry again.
Stoma paste around the stoma hole.
Stick the bag on and hold hand over the wafer area for about 10 minutes

I NEED HELPPPP Any tips for bag change with irritated skin is needed! I haven't eaten today as i new i was going to be changing my bag in the middle of the day and i would love to eat soon! haha so i'm gonna change the bag within the next hour or so..

Thank in advance everyone

Post Edited (Chevypower1930) : 9/8/2010 11:42:14 AM (GMT-6)


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 9/8/2010 11:43 AM (GMT -6)   
I was having issues with leakage and in turn, it caused the skin around my stoma to become inflamed and awful. What saved me??? Liquid no-sting bandaid. It let's your skin breathe, will cause a water proof barrier between your skin and the appliance and will give your skin time to heal. It worked for me!!
Good luck!

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

Chevypower1930
Regular Member


Date Joined Sep 2009
Total Posts : 254
   Posted 9/8/2010 11:45 AM (GMT -6)   
Hey allison!

Thanks but I haven't had a drip of leakage..... I think the paste has saved me from that for sure, it's just all the area AFTER the paste is just in horrible shape... and it's wheeping so the wafer adhesive gets wet and then it's pretty much ruined.

It sticks absolutely perfect for about 2 hours, very very strong stick and then after that... a little corner peels.. and then another, then it's almost all the way off.
20 Year Old Male

Diagnosed with Moderate/Severe Ulcerative Colitis May 2008
3 Flair ups (first flair- 2 months/Second Flair- 2 months/ Third flair- One week, then surgery)

Full Ileostomy surgery done on july 22!

Living with an ostomy bag right now and loving feeling healthy again! Finally have gotten this horrible disease OUT of my body!

Ileostomyfree
Regular Member


Date Joined Mar 2010
Total Posts : 23
   Posted 9/8/2010 4:38 PM (GMT -6)   
Hi,
Have you tried the hollister ostomy powder to keep the area around the stoma healed? I had the itching really bad and in my sleep i would itch and itch and that would be the night the bag would leak or come off. It seems when I used the stoma powder i had less leaks since I wasn't itching. Just a thought. Good luck!

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/8/2010 5:37 PM (GMT -6)   
Could you maybe be allergic to the wafer? I am allergic and have to use non-adhesive wafers.  When I use adhesive ones my skin gets super irriatated super fast.
 
If you aren't allergic, I've heard that adhesive spray works really well.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Chevypower1930
Regular Member


Date Joined Sep 2009
Total Posts : 254
   Posted 9/8/2010 6:06 PM (GMT -6)   
hey thanks for the replies! I'm NOT getting any leaks.. none at all.

What's causing my irritation was after one HORRIBLE itch fest I had and now it's just having a hard time healing with always having something ON my skin, so now it keeps weeping and it's causing my bag to keep peeling up within just hours. the skin looked a little better when I just changed it today so hopefully it's healing up... but still BEFORE an hour the bag was peeling up and the skin was weeping...

And i'm already using the stoma powder as well as the no sting barrier wipes... so i don't know what else to do I'm worried out of my mind at work and my head is more on my ostomy bag then it is on my work and i can't keep going on like this. I really hope it gets healing and FAST. or if somebody can PLEASE help me
20 Year Old Male

Diagnosed with Moderate/Severe Ulcerative Colitis May 2008
3 Flair ups (first flair- 2 months/Second Flair- 2 months/ Third flair- One week, then surgery)

Full Ileostomy surgery done on july 22!

Living with an ostomy bag right now and loving feeling healthy again! Finally have gotten this horrible disease OUT of my body!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/8/2010 9:03 PM (GMT -6)   
ok so the paper part is what is peeling up? if that's all it is, you can cut that part off. At least until the wounds heal.
also i know the powder and stuff help with the pain, but they also can keep you from getting a good seal
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Chevypower1930
Regular Member


Date Joined Sep 2009
Total Posts : 254
   Posted 9/8/2010 10:21 PM (GMT -6)   
summerstorm. no the WAFER is peeling up.
20 Year Old Male

Diagnosed with Moderate/Severe Ulcerative Colitis May 2008
3 Flair ups (first flair- 2 months/Second Flair- 2 months/ Third flair- One week, then surgery)

Full Ileostomy surgery done on july 22!

Living with an ostomy bag right now and loving feeling healthy again! Finally have gotten this horrible disease OUT of my body!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/10/2010 5:08 AM (GMT -6)   
Have you recently changed a product or even paper towels? It sounds more like an allergy or maybe a yeast infection?

Please call you doc and explain that you are having a reaction of some kind and need to be seen immediately!!!!!

Good luck and I hope you find relief VERY soon!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 9/10/2010 6:45 AM (GMT -6)   
Chevy,
My first thought was yeast. I've had several since I had my ileo in June 09 and have a powder that I use on it. It is a prescription so you can't purchase over the counter, however they do have remedies for yeast that are OTC available. When I have leak problems I usually end up with a rip roarin yeast because I'm using more tape and the waterproof tape to salvage the wafer I have on. Good Luck!!

Cathy
Cathy
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