Can you wear an eakin seal under a convex wafer?

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80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 9/11/2010 9:47 AM (GMT -6)   
Hi all,
I'm still on the hunt for something that will stop my leaking. It is so frustrating! My stoma sticks out at least a half inch and I've never seen it retract below the skin. I shouldn't be having these problems. Grrr.
 
Anyway, I just got a few convex barriers from Hollister to try out and I don't know if I am supposed to wear an Eakin seal under that or use paste? Does it matter?  
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5962
   Posted 9/11/2010 11:47 AM (GMT -6)   
     I hate Hollister bags, always leaked on me.  I use the new Coloplast ones with the convex seal.  Never had a problem yet. :-)

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/11/2010 1:30 PM (GMT -6)   
Yes, you can use an Eakin Seal where you would use paste or needed to even skin levels.

You can try it without the seal...but I've never had good luck without a seal or paste sad

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/11/2010 4:29 PM (GMT -6)   
Right now I'm trying a Convatec convex, and it's fine without paste or a barrier. I thought that was weird.

I just love Hollister. I love that the bags come in skin colored, they don't rustle as much, THEY HAVE A MINI-POUCH (why does no one else carry this???), and they have the non-adhesive option. My skin cannot handle adhesive for more than a day.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 9/11/2010 8:20 PM (GMT -6)   
I haven't had a hollister wafer on that didn't leak. I do have a convex stoma and use an eakin seal with my convatec wafer. I want to try the coloplast wafer it sounds like they are really sticky...

Cathy
Cathy

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/12/2010 9:18 AM (GMT -6)   
Yes, you can put an Eakin Seal under a convex wafer. The combination of the two is the best when you've had problems with leaks. :-)
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/12/2010 9:40 AM (GMT -6)   
Thank you. I needed to hear something positive. I'm at my wits' end and just keep hitting wall after wall!
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 9/12/2010 12:21 PM (GMT -6)   
I have a retracted stoma and have been using the small eakin, 839002, under a flat one piece convatec, not convex, wafer. It seals pretty well. I get 4 or 5 days wear without leaking, but it's pretty tough to clean the eakin off when changing. I'm looking for something better.

Dan

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 9/12/2010 2:51 PM (GMT -6)   
I use Hollister convex with the small Eakin underneath. No leaks, no issues.

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/12/2010 3:10 PM (GMT -6)   
That's what I'm trying now, Allie. Fingers crossed it works!!! How far does Oscar stick out?
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 9/12/2010 5:58 PM (GMT -6)   
Depends on how he's feeling.
Most of the time he's about an inch on the left side and almost as flat as the skin on the right. On naked shower days (change days) he get's all puffy and proud. When he's pooping he gets really inverted (which is why I need the convex wafer). Since he's a colostomy he's very round, about the size of a loonie....that's our dollar here in Canada.

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/12/2010 6:12 PM (GMT -6)   
Interesting. Zoe never goes below the skin, even when she's pooping, which is why I'm so frustrated right now with the leaking...

PS I have seen a loonie cuz my grandparents used to live in Canada :)
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 9/13/2010 9:32 AM (GMT -6)   
Allie
How do you know it's a he?

Stephanie
How do you know it's a she?

I can't figure out which mine is.

Dan

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/13/2010 3:45 PM (GMT -6)   
This is a silly reason, Dan, but it's real.

When I used to have diarrhea all the time, I used to call it "The Diarrhea." Like, I'd say to my friends, "I wanted to go out last night, but The Diarrhea foiled my plans, that ******." And since I called him a ******, he was obviously a boy.

I wanted Zoe to be the exact opposite of The Diarrhea, and be my friend instead of my enemy, so I figured to be the opposite, she had to be a girl :)

Silly, but true.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/13/2010 3:46 PM (GMT -6)   
Aww! It starred out my word! Maybe this will work: b-st-rd.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 9/13/2010 5:02 PM (GMT -6)   
lol @ Stephanie!

Dan- that is a question to ponder.......um.......still pondering........nope, nothing. I got nothin, though i've never met a woman named Oscar before. LOL.

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 9/17/2010 6:53 PM (GMT -6)   
I don't understand the concept of an Eakin seal under a convex wafer. You do mean the Eakin on your skin then the convex wafer, correct? It seems that would negate the convex design of the wafer. Please explain.

Dan

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/17/2010 6:55 PM (GMT -6)   
It seems that way, but it works the best out of anything I've tried so far. I have no explanation.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 9/17/2010 7:21 PM (GMT -6)   
How tight to your stoma do you make the Eakin?

Dan

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/17/2010 7:26 PM (GMT -6)   
Mine is really tight. Like it's right around it.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 9/17/2010 7:29 PM (GMT -6)   
Then how does the convex wafer stick?

privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 9/17/2010 7:35 PM (GMT -6)   
I use an eakin seal under my convex wafer all the time. I put the eakin on the wafer instead of putting it on my skin and cut the eakin seal down quiet a bit. I went to our new WOCN for the first time last week and she recommend that I cut the eakin seal down as I was using it all and trying to thin it down. She said the darkest part of the wafer is the stickiest of everything I use which nobody has ever told me before. She also said that the paste should be called a filler because it really isn't a paste. I hadn't heard that either. Anyway I'm putting less eakin seal and only using the paste around the hole that goes around "privey" and have stopped putting it all around the bottom of the wafer and NO LEAKS. I've been having a horrible time too with 3 skin ulcers to boot too. Someone on this site recommended Friars Balsm on my ulcers and it took me forever to find it and it burns like the dickens but it is working.....WHOT HOOO
Cathy

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 9/17/2010 7:47 PM (GMT -6)   
Cathy

I have suggested friars a couple times on this forum. Yes it burns and yes it works. I think part of the reason it works is that when it dries it is sticky. When you use a powder the wafer cannot stick and sewage gets to the ulcer. I use a hair drier to dry my stoma area.

Do you use the 2 inch or 4 inch eakin seal. How do you cut it down?

privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 9/17/2010 8:15 PM (GMT -6)   
Dan,
I use a convatec #839002 I believe it is a 2 inch. I took my siccors and trim the outside of the seal down and then I pinch around the hole in the seal to make it really thin. Then I place the seal around the hole of the wafer, my wafer is 1" and "privey" is measuring 7/8" these days. I stretch the rest of the seal and thin it down a bunch. I probably only have about 1/2 inch or less seal on the wafer.

Thank you so much for the friars it is really doing a good job. I did finally find in the USA at a place in Union City, CA called HerbsPro. It ran about $35.00 for 4 oz but it is doing such a good job I don't mind the cost. I also used the blow drier at first but have white wall tile by the toilet where I change and I looked over at the wall and I have poo looking spots all over the wall. I quickly cleaned it off which wasn't an easy task because it is so tacky. I knew anyone sitting there after me would certainly think it was poo instead of friars. lol Anyway now I take the the empty wafer package and fan the heck out of it.

Cathy
Cathy

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 9/17/2010 8:32 PM (GMT -6)   
Cathy
Perhaps you should try the 4 inch eakin. I think it is 839003. It's about the same diameter as a wafer but is real thin. I tried it using the whole seal under a flat wafer. Uh, it didn't work.

Right now I am trying a hollister convex seal with a flat wafer. It's the same diameter as an 839002 but thinner.

Dan
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