HAVING IT OFF! (THE BAG THAT IS) ADVICE PLS!!

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2much2bear
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Date Joined Mar 2008
Total Posts : 624
   Posted 9/15/2010 11:04 AM (GMT -6)   
Hi all
 
Well it has been a while since writing and I can't say enough how well i have been since having a loop  ileostomy. turn
 
Anyhow at last I get the bag off next week.... i am nervous and know it could go either way....good or ...incontinence ... or urgency.
 
But if things go well for me can anyone tell me if my poo and wind will still smell to high heaven as it does now????.....
Karen - 48 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection-partial volvulus (this dr thought it would help!)resulting in worsening of colonic inertia
March 2009: Total Colectomy withloop Ileostomy - awaiting closure
 
 

Post Edited (2much2bear) : 9/16/2010 11:07:24 AM (GMT-6)


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/16/2010 5:33 AM (GMT -6)   
hey Karen, good to hear from you :) so glad you're finally having it done. i doubt it very much you'd have incontinence. don't worry about the smell, poo can never smell like roses anyway :p

i wish you all the best with this surgery. keep us posted.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 9/16/2010 12:07 PM (GMT -6)   
thanks Hodaya - yeah i know poo smells - but i am more worried about passing wind actually - i get soooo much.
Karen - 48 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection-partial volvulus (this dr thought it would help!)resulting in worsening of colonic inertia
March 2009: Total Colectomy withloop Ileostomy - awaiting closure
 
 

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/16/2010 12:18 PM (GMT -6)   
maybe it's something you're eating? i, for instance, if i eat dairy, esp cheese, my bag fills up with air nonstop lol loud too. or if i eat beans, peanuts, peanut butter - OMG my bag just blows up with air. LOL one evening i ate just 2-3 bites of beans, i woke up at 5 am, my bag was ready to explode and the air was so much, that it made the wafer seperate from my skin, cuz the bag was way too full and it needed a way out. needless to say i had to change the whole appliance. same thing hapened with just a tea spoon of peanut butter. oh and also fresh fruits and vegies - those are killers. but as long as i stay away from all of those, i hardly have any gas.

what do you eat?
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted Yesterday 4:00 AM (GMT -6)   
Well just relatively normally really. Dont get air after breakfast - have Special K or porride. Lunch is a white sandwich with chicken cheese or tuna and cucumber/mayo or just toast. I get air sometimes with that. Try to eat mostly carbs but yes you are right - the BEST food for me is chicken with a little mild curry sauce and rice - but how are we supposed to eat healthily i.e. fresh veg etc? i wake up in the morning with hardly any air/poo in bag after eating that.

So most things give me air unfortunately - must be the way i am made - yeah have to get up in night sometimes with exploding bag.

Oh well so how do you cope with the air now Hodaya?? are you able to pass wind ok without soiling? That is a worry to me that I wont know if it is wind or poo :(
Karen - 48 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection-partial volvulus (this dr thought it would help!)resulting in worsening of colonic inertia
March 2009: Total Colectomy withloop Ileostomy - awaiting closure
 
 

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/21/2010 4:20 PM (GMT -6)   
sorry for the long reply, my computer broke, had to get a new one and got it only today.
 
i don't think soiling will be an issue for you, it's highly unlikely to happen to someone with a rectum.
 
how about trying something for the gas, like some ppl here take gas x to help with that. i don't have much air now, and if i do, it's usually over night. sometimes i can't help it and eat ice cream, so then the bag balloons up that night, but it's no biggie.
 
in general, for ppl like us it's more common we continue to have C issues even after a colectomy rather than D issues, but yes, everyone is different and there's no way we can know how it'll be for you, BUT from all the stories i read on the total colectomy parts, there are maybe 2 women who got constant diarreah, which is a very tiny %, so really, most chances it won't happen to you.
 
i hope you do great, hon! best wishes, love and hugs your way ♥♥

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 9/21/2010 6:34 PM (GMT -6)   
Karen,

So they are sure that your pelvic floor and rectal issues will make your take-down successful? Have they done all the tests? If so and all is well you are sooooo lucky. I wish you the best. Rosemary

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 9/22/2010 4:45 AM (GMT -6)   
Hiya its ok - glad you got new computer.
 
Well that is good you have little gas - i have tried the Gas x stuff UK version - i am sick of taking meds - had years of it and now take nothing!  Didnt really help but if i am good then i will be okay - i think i wil have to overhaul my diet after take down....
Hi rosemary - didnt know it was called a take down...
 
yeah i think so - had tests before the total colectomy - the professor said i might have a problem cuase of prev surgery on my rectum for mucosal prolapse - so i have a more narrow rectum, but i will see how it goes cant keep fretting.  my pelvic floor is fine also.
 
bye for now. x
Karen - 48 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection-partial volvulus (this dr thought it would help!)resulting in worsening of colonic inertia
March 2009: Total Colectomy withloop Ileostomy - awaiting closure
 
 
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