UC'ers with symptoms AFTER subtotal colectomy?

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Regular Member

Date Joined Jan 2006
Total Posts : 242
   Posted 9/16/2010 10:26 PM (GMT -6)   
hi all, diagnosed with uc about 5 years ago, i had my subtotal colectomy almost 3 years ago. recently got pregnant and miscarried, which forced me into a flare. i know i'm flaring because of my high SED (inflammation) rates, sore joints and erythema nodosum sores on my legs and elbows. my doc wants me to do some more testing now to see if i have crohn's because of these symptoms. do you guys flare/have symptoms after your surgeries? i'm hoping i don't have UC AND crohn's, kinda scared. i guess my question is, do any with UC still get symptoms of flares or could this be crohn's after all? thank you

Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 9/17/2010 12:05 AM (GMT -6)   
     Well, I was on prednisone a lot during the past two years.  That is why I had the surgery.  I had ulcerative proctitis for about twelve years.  My surgery, total colectomy with end ileostomy, was done on June 28th.  I still have my anus but no rectum or colon.
     This past week I have been having terrible pains in my back, some in my arms and legs but mostly in the back.  The surgeon had me on a strong dose of Cipro because I had an abscess in my anus.  I believe the pains are caused by a reaction to Cipro but I have been off it since last Saturday and my back is still giving me grief.  Not sure if this could be my body reacting to being off the prednisone.  It was holding off all the aches and pains that have now surfaced, but I sure as Hell will NOT go back on it again!
     As far as symptoms of flares of UC....not a one.  No pains in the stomach, nor diarrhea or bleeding.  I eat everything now, even salads but I chew very, very well.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 9/17/2010 8:18 AM (GMT -6)   
It may or may not be Crohn's. I don't think the joint pain and EN are indicators of Crohn's necessarily, people with UC get them too. Some people have surgery for UC and then get what's referred to as extra-intestinal manifestations post surgery. Talk to your GI about that. You can get more information on extra intestinal manifestations by going to www.j-pouch.org and asking.

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