Allergic to Sure Seals?

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ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 9/19/2010 7:30 PM (GMT -6)   
So, I've got these red bumps on the outside of my wafer like a ring and for the life of me I thought it was the wafer I was using. I did a patch test with a Hollister and Coloplast wafer, both were clean. I was itching like crazy!! It never dawned on me that I could be allergic to the Sure Seal. Gosh I love thee Sure Seals!! :(
So today I change and don't put the Sure Seal on and so far no itching!! Could it be? Sad sad sad. Loved the security the sure seal gave me :(

Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 9/19/2010 9:56 PM (GMT -6)   
I had the same problem - itched liked the dickens. Had to stop wearing them.

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 9/20/2010 12:53 PM (GMT -6)   
Minor itching I can deal with but a full blown breakout of red bumps and itching I can't deal with :(
I sure wish I could use the Sure Seals :(

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/20/2010 5:49 PM (GMT -6)   
I am allergic as well :( I can't even use adhesive wafers. Just be thankful sure seals are all you're allergic to.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 9/21/2010 10:23 AM (GMT -6)   
<- allergic as well, red bumps and itching like crazy. I asked a few months ago if anyone had found an alternative but no one really had anything.


-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 9/21/2010 3:23 PM (GMT -6)   
I am not alone!!! I felt all lonely over here for a while :p
We have to now invent an alternative! Maybe the adhesive is the culprit!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 9/22/2010 4:59 AM (GMT -6)   
:( sorry to hear!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

WeirdBeard
Regular Member


Date Joined Aug 2008
Total Posts : 123
   Posted 9/22/2010 11:43 AM (GMT -6)   
I am putting Hy-Tape around my wafer this time instead of the Sure Seal. The Sure Seal was making me itch. I have used Hy-Tape in the past without any problems, so maybe this will work.

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 9/22/2010 12:29 PM (GMT -6)   
What's Hy-Tape???


-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/22/2010 5:21 PM (GMT -6)   
I'm more allergic to hytape than anything else!

Allie, it's like a flesh colored thick tape that is waterproof.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

WeirdBeard
Regular Member


Date Joined Aug 2008
Total Posts : 123
   Posted 9/22/2010 9:32 PM (GMT -6)   
I have heard nurses refer to it as "pink tape". You can find it at almost any medical supply house. I am using the one inch wide all the way around.

It's only been on for about 8 hours, but so far, so good. No itching yet.

It seems like that as I came off of prednisone, I developed more problems with itching and allergies. My skin is very dry now - so dry that sometime the skin cracks open on my hands. I could use the heel of my foot as sandpaper. Not sure that all of this is related, but it sure seems to be.

-Eric
51 - male - in North Carolina near Asheville
UC is GONE!! Permanent ilieostomy on July 8th, 2010.
Stoma is named "Sparky".

jtaylor
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 9/22/2010 11:19 PM (GMT -6)   
I had major skin irritation when I used Sure Seals so unfortunately I had to quit using them. My WOC nurse recommended using this stuff called Convatec Duoderm. I think it's meant as a wound dressing but what I do is buy the extra thin 4x4in squares and cut them into 4 strips and tape those around the edges of my wafer. It works wonders and keeps water from becoming a problem when showering/bathing, and of course, no irritation. Great alternative to sure seals in my opinion.

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 9/25/2010 7:49 PM (GMT -6)   
Thanks Ron, I'm going to call the store on Monday and see if we can get it here in Canada.


-allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."
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