Age of Colectomy

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Regular Member

Date Joined Jul 2009
Total Posts : 90
   Posted 9/20/2010 10:12 PM (GMT -6)   
How old were you guys when you had colon removed? Just curious. I am 34 and probably will have it done soon. Been living too long with uc. 15 years almost.

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Date Joined Feb 2003
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   Posted 9/21/2010 4:50 AM (GMT -6)   
I was 10 years old when I had my ileostomy surgery due to UC - I'm 44 in a couple of weeks from now and it's still going strong :)
Ileostomy for 34 years due to UC. I had my surgery at 10 years of age.

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Date Joined Feb 2006
Total Posts : 5698
   Posted 9/21/2010 7:19 AM (GMT -6)   
I was 41 when I had my colectomy and hit 42 for my reversal.


Regular Member

Date Joined Mar 2007
Total Posts : 273
   Posted 9/21/2010 8:01 AM (GMT -6)   
I had my ostomy done at the age of 66.  That was four years ago.  My only regret is that I didn't have it done 30 years earlier.

Regular Member

Date Joined Aug 2008
Total Posts : 123
   Posted 9/21/2010 8:16 AM (GMT -6)   
I had mine done recently at age 51.

Regular Member

Date Joined Feb 2005
Total Posts : 421
   Posted 9/21/2010 9:29 AM (GMT -6)   
10 1/2 months ago, I was 32. My only regret is not doing it 10 years earlier when it was first mentioned.

RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

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Date Joined May 2009
Total Posts : 827
   Posted 9/21/2010 11:26 AM (GMT -6)   
My son had his out at 18

Veteran Member

Date Joined Aug 2008
Total Posts : 5951
   Posted 9/21/2010 1:05 PM (GMT -6)   
     Had a total colectomy with end ileostomy on June 28th after suffering with ulcerative proctitis for twelve years.  I was 63 when I had my surgery.

Regular Member

Date Joined Jul 2009
Total Posts : 90
   Posted 9/21/2010 2:31 PM (GMT -6)   
Wow. Ages vary. It is encouraging that most of you are happy with the decision.

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Date Joined Oct 2009
Total Posts : 1054
   Posted 9/21/2010 4:39 PM (GMT -6)   
I had mine done 6 months ago after suffering with Crohn's for 10 years.

I have been thankful every day since. It is so worth it. Very few of us on here are unhappy with our decision.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 9/22/2010 3:58 AM (GMT -6)   
should have had it done at 32 when I had my temp ileo...I was 40 and it was my birthday gift to me:):):)<3
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 9/22/2010 6:59 AM (GMT -6)   
I had permanent ileostomy and proctocolectomy done 18mths ago when I was 46 due to crohns/colitis that I was diagnosed with and battling with for the past 22 years. Like all the others I am very happy to have had the surgery it has given me quality of life finally, my surgery was emergency so i did struggle a bit in the beginning getting used to it but now I couldn't be happier with it.

Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 9/22/2010 7:21 AM (GMT -6)   
I had it when I was 28yrs. It's been almost 2 yrs. ALMOST.
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 9/22/2010 6:12 PM (GMT -6)   
I had my proctocolectomy (colon and rectum removal) and ileostomy done 4 years ago when I was 35 after suffering with Crohn's for 7 years. I also wish I would have done it years earlier, because life is great now!! :-)
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Regular Member

Date Joined Oct 2009
Total Posts : 453
   Posted 9/23/2010 9:53 AM (GMT -6)   
"Privey" is just a little over a year old. My situation was different than some of yours. I had a bad case of C-dif which made my colon toxic and I had UC. I never had the rushing to the bathroom or obstacles some of the others face. I was air vaced to Topeka and my husband and daughter got the call on their way driving to Topeks stating that if they did a ileo right away I would have a 66% chance of living and if they didn't I wouldn't live.....I woke up with "Privey". I don't think I'll ever have a reversal as they said I only have 7" of colon left and I would have constant poops so it sounds like it is permanent.


Veteran Member

Date Joined Mar 2010
Total Posts : 1595
   Posted 9/23/2010 8:54 PM (GMT -6)   
Had my colectomy/ileostomy at 63 years old. Diagnosed with UC at about 30 YO. Totally in remission until 60 YO. Total hell between 60 and 63.


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Date Joined May 2009
Total Posts : 833
   Posted 9/24/2010 10:24 AM (GMT -6)   
  Hello, I was 53 when I had my Total Colectomy.  So glad I did have the surgery, I feel so much better.  They told me for Years that it was just IBS and this is just how my live was going to be, and that was not acceptable.  So I got referred to OSHU in Portland Oregon had some test done.
Then came home not satisfied with the option they gave me which was Bio_Feed Back which I looked into and not a very high success rate plus most insurance will not cover it and its expensive and you need to go often.
So I found a general surgeon in my home town and talked to him and he did another Sitz Marker Test on me, and sure as heck my colon was not working..this was on a monday and had the surgery for a Total Colectomy on that Friday, they hooked me all back up.  Coming out of recovery I knew I was going to be better because I woke up feeling good when I always felt ill inside.  To me it was a miracle the immedient change.  I have had a few bumps along the way as my surgery was Feb 19,10.  So doing well.  So good luck to you, and keep on top of everything, and if you dont like what one doc says go to another

Regular Member

Date Joined Jul 2006
Total Posts : 212
   Posted 9/24/2010 9:58 PM (GMT -6)   
I had my procto-colectomy and ileo surgery on 2-14-08. My 55th birthday.

David Martin
Regular Member

Date Joined Mar 2010
Total Posts : 172
   Posted 9/27/2010 6:51 AM (GMT -6)   
I was 15 when i had my total colectomy. and i got my appendix removed :) but i think everyone gets it removed. lolz. but getting the surgery was the best choice ive made in a while.
Adam, 15.

Diagnosed with Ulcerative Colitis a little over three years ago. I no longer have UC. I had surgery may 25.

Off All Meds

--current meds--
 Dicyclomine ( Bentyl ),Ondansetron ( Zorfran )Sudafed, Robitussin, Viokase, Mesalamine ( Lialda ) ,Canasa (mesalamine ) “Suppository”.

--Off meds--
Hydrocurtisone Rectal, Prednisone, Mercaptopurin (Purinethol)
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