Anismus/Colonic Inertia - Getting Positive Results Now?

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snugglesaurus
Regular Member


Date Joined Apr 2010
Total Posts : 206
   Posted 9/21/2010 8:17 AM (GMT -6)   
I've explained my story numerous times.  Short synopsis: 2 years of colonic inertia and anismus.
 
Tried everything (see below).  On my second round of biofeedback.  Roughly 10 sessions now.  Several weeks ago I started taking Vitamin C, Calcium/Magnesium/Zinc, Blue Green Algae, and Flax Seed.  I still take my capful of Miralax as well.  Last Wednesday I had 4 bowel movements (having ONE bowel movement would have been earth shattering as it is).  On Thursday I had biofeedback and hovered around 12 microvolts (which definitely isn't flat lining).  I had several bowel movements later in the day.  Everyday (a whole week now) I have had multiple bowel movements (slightly soft).  The only "diet change" I've made is that I've been eating salad everyday since I don't want to lose my streak.
 
Does anyone have any thoughts?  It is so positive, but extremely abnormal that I don't know what to do?  I still have some discomfort.  I haven't touched an enema in a week and before that was the only thing that would work.
 
I don't want to stop the salads, but I certainly can't fathom eating them everyday.
Diagnoses: Appendicitis, Terminal Ileitis, Crohn's, Celiac Disease, IBS-C, Chronic Constipation, Colonic Inertia, Rectocele, Anismus
Tests: 2 Colonoscopies, 2 CT scans, Sitzmark Test, Anorectal Manometry, Food Allergies, Thyroidism, Pudental Nerve Study, Defacogram, SMART Pill, Electromyogram, Celiac Panel, Small Bowel Study, Gastric Emptying Study - Solids

Tried: Pentasa, exercise, diet changes, pro-biotics, vitamins, laxatives, stool softeners, Miralax, Amitiza, anti-depressants, fiber supplements, water enemas, Fleet enemas, suppositories, mineral oil, phenergan, Zofran

Currently: Biofeedback

Cookie74
Regular Member


Date Joined Jul 2010
Total Posts : 37
   Posted 9/21/2010 2:47 PM (GMT -6)   
Snuggles, that's fantastic news!  :-) :-)   :-)  Hope the supplements etc continue to help.
 
We are hardly ever hear stories of Biofeedback actually helping people in our situation.  I should be starting the treatment in the next month, so hoping it will be of some benefit for me too.
Epilepsy since childhood.  Controlled with neurosurgery in 2000 and continuing medication
Chronic constipation for as long as I can remember
2004 - Started with Severe M.E
2005 - Diagnosed with Heart murmur and tachychardia
2008 - Found to have Osteoporosis
2010 - Diagnosed with Colonic Inertia, Rectocele and Anismus

zuzupetals
New Member


Date Joined Jun 2010
Total Posts : 6
   Posted 9/23/2010 5:59 AM (GMT -6)   
Just wondering what kind of biofeedback? Just exercises or manual therapy. I have heard of electrodes being hooked up to relax muscles, but it is hard to find a Physical therapist that does this kind of work. Thanks.
Susan

Cookie74
Regular Member


Date Joined Jul 2010
Total Posts : 37
   Posted 9/23/2010 8:49 AM (GMT -6)   
Susan, I'm not sure which form of Biofeedback I'll be having, as I've not yet received an appointment.  I've been given the impression that the specialist stoma nurse will be using electrodes.  Will let you know, when I get the information.
Epilepsy since childhood.  Controlled with neurosurgery in 2000 and continuing medication
Chronic constipation for as long as I can remember
2004 - Started with Severe M.E
2005 - Diagnosed with Heart murmur and tachychardia
2008 - Found to have Osteoporosis
2010 - Diagnosed with Colonic Inertia, Rectocele and Anismus
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