Unsure and desperate

New Topic Post Reply Printable Version
[ Missing Key Value : en-US, 709 | Missing Key Value : en-US, 708 ]

gravy
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/24/2010 3:18 PM (GMT -6)   
Hi, first post.

Does anyone know if ostomies are performed on people with chronic severe anal canal issues?I had my second hemorrhoidectomy 4 years ago and it did not go well at all. Left with severe pain, irritation, incontinence and on and on. I have been to 4 specialists that basically say that there's not much that can be done except diet and environmental changes. Well, i've done all that and still the agony persists. I'm convinced there is some kind of nerve damage and god knows what else and this will plague me for the rest of my life. It has left me a shell, no quality of life and dominates everything i do.

I need to use stool softeners everyday or bowel movements are unmanageable(too hard and large). Even when they are perfect, the pain still returns and persists all day every day. I hate having them because this triggers everything. I also have chronic hemmorhoids because of this. Desperation has set in. Is there any way an ostomy of some kind might give me back my life? I have lost a lot of weight due to depression and fearing too many bm's that make this nightmare worse.

My rectum and colon are fine, just a basically destroyed anal canal.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/24/2010 5:26 PM (GMT -6)   
Welcome, gravy. I'm so sorry you're going through this. You shouldn't have to live in pain everyday. shakehead

I know first-hand that an ostomy would help you, because I got an ileostomy due to having Crohn's disease in my rectum. I started out with a temporary one, and then made it permanent by having my rectum removed.

Life without butt pain is SO much better, and I wish that for you. Have you seen a colorectal surgeon yet? They would be the ones who would do the surgery for you.

Keep us posted!

Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

gravy
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/24/2010 8:13 PM (GMT -6)   
Thanks for the welcome. :-)

I know little on this subject but it's good you are pain free now. I have a colorectal surgeon now but have not run this by him yet but i will. I'm not sure what his reaction will be but at this point i don't care. It's ironic, the last time i there, one of his new associates was the surgeon who destroyed my butt. I was hoping to never see his face again. One of the most uncaring doctors i have ever dealt with.

Sorry for my ignorance as i don't know anyone personally who has an ostomy but i have a few concerns. I'm worried if i had this surgery i would still be in discomfort after recovery. Do you think they would remove the damaged area? Also having a good colon and rectum, would they be left in tacked or is that not possible?

Post Edited (gravy) : 9/24/2010 7:16:25 PM (GMT-6)


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 9/24/2010 9:36 PM (GMT -6)   
gravy,

If your colon is OK it sounds like a colostomy could certainly be done. I would highly recommend a consult at George Washington University Medical Center (if you can get there) they may have something that could be done regarding the anal canal, but certainly you could get a colostomy. Lahey Clinic in Massachusetts is also excellent in my experience.

Rosemary

gravy
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/25/2010 11:41 AM (GMT -6)   
esoR said...
gravy,

If your colon is OK it sounds like a colostomy could certainly be done. I would highly recommend a consult at George Washington University Medical Center (if you can get there) they may have something that could be done regarding the anal canal, but certainly you could get a colostomy. Lahey Clinic in Massachusetts is also excellent in my experience.

Rosemary


Hi,

i live in Toronto Canada but thanks anyway. Every specialist i see advises against anymore surgery as it could make things worse since i have had 2 already. I think colostomy would be my only choice now to rid myself of this horrible situation.

If the colon is left untouched is digestion pretty much the same after surgery and healing? Is irrigation only an option for some? I watched a video on utube in which a guy demonstrated how it's done. Very informative. I have plans to move to SE Asia next year but i'm afraid if i had this surgery that might not be possible. Being a third world country with questionable medical services, i'm not sure it would wise...

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 9/25/2010 7:45 PM (GMT -6)   
I use to live in Toronto (Beaches)!!!! Who are you surgeon's?
My Crohn's started anally with fistula's, fissure's, hemorrhoid's and abcess's. A surgery to repair some fistula's ended up destroying my anal muscle and I was left very incontinent at the age of 22. 8 years later I found out about ostomies and realized "this is what I need." I wrote down a few hundred things that I could do with an ostomy and showed it to my surgeon. He realized I was serious and booked me for surgery. I had the surgery last Nov. and have never looked back.

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 9/25/2010 8:13 PM (GMT -6)   
Gravy, we too are in Toronto. My son's guardian angel ( in our view) is Helen MacRae who is a colo-rectal surgeon at Mount Sinai. I would see another doc and make sure they know exactly what you are going through.

gravy
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/26/2010 5:05 AM (GMT -6)   
Hi, thanks for the replies. I will be moving to Oakville shortly so i will need to find a surgeon out that way. I found out my old surgeon and his wife are away indefinitely in India helping out with the flood victims there. I already have a new family doctor in Mississauga so i will discuss it with him and hopefully he'll agree and refer me to a new surgeon. If anyone knows of a colo-rectal surgeon out that way please chime in. This is my last hope at getting my life back...

gravy
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/26/2010 9:51 AM (GMT -6)   
Allison77 said...
I had the surgery last Nov. and have never looked back.


If i may ask, what was removed and what kind of surgery? Are you still in discomfort at all?
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, July 18, 2018 11:50 AM (GMT -6)
Missing Key Value : en-US, 697
View Active Threads


Missing Key Value : en-US, 703
This forum has 161861 registered members. Please welcome our newest member, petrkuka06.
384 Guest(s), 18 Registered Member(s) are currently online.  Details
logoslidat, erbob, Balladeer, 81GyGuy, mattamx, vminas01, Carib_Lyme, petrkuka06, sebreg, BillyBob@388, Jerry_Delaware, sierraDon, InTheShop, Old Mike, LJohn23, borborygmi, straydog, minnietoty