Were you ever told to be careful with food?

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mom_2 JnJ
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Date Joined Nov 2009
Total Posts : 146
   Posted 9/30/2010 9:03 PM (GMT -6)   
   Back in 05 I got a temp Ileostomy due to an infection that ruptured in my colon. When I was getting ready to start regular food the surgeon and the ostomy nurse said I could have a regular diet. I went home and I did. I had some aches and pains now and then and one time I felt pretty sick to my stomach for a bit but nothing ever came of it. I ate like I always did. So now I wonder now that I have UC and I am considering a permentant ileo. if it would be the same way again? So have any of you never had any major problems with food of any kind? Can I look foward to no complications or does everyone eventually get them?

suebear
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Date Joined Feb 2006
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   Posted 9/30/2010 9:40 PM (GMT -6)   
I have a jpouch and can eat any and everything. I live on fresh fruit and eat copious amounts of popcorn with no problems. I haven't found a food I can't eat. I think we are all different in what we can eat and what causes problems but you should be able to have a varied diet.

Sue

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 9/30/2010 11:31 PM (GMT -6)   
i have a perm ileo, and the only thing i have found that always gives me problems is fried cheese sticks. I can eat about 2 with no problem, but more and i get blocked up a little. I did try some nuts for the first time the other day, tht didnt go so well, but i ate alot of them! but it did work out on its own.
So pretty much i eat whatever
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

mom_2 JnJ
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Date Joined Nov 2009
Total Posts : 146
   Posted 10/1/2010 12:14 AM (GMT -6)   
 Well that is good to hear.  I remember I had trouble with an omelet because it had a ton of mushrooms on it and I was grossed out by the mushroom coming out whole. I wonder if they would go through better if I chopped them very small in a food processor?
         I have done a lot of reading about getting my colon removed and the only complications I can really see are ones I am at risk for anyways. When I had my resection done in 05 I had a horrible infection called peritonitis. The surgeon said I was almost guaranteed to have adhesions later on. The is the biggest problem I have found. I know my small bowel will absorb nutrition ok since it worked in 05. I always wondered why I lost weight the two months I had the ileostomy but that could have been because I was nursing as well as the infection I had.
 
           I wonder why do you think there are problems with foods getting blocked up with an ilesostomy? The size of the small bowel has not changed so why all of the sudden does certian foods not pass so well anymore?

Equestrian Mom
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Date Joined Mar 2008
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   Posted 10/1/2010 5:47 AM (GMT -6)   
I am also one who can eat everything...foods coming out whole can be a problem when you don't chew enough. I always suggest trying new foods by themselves so you can eliminate ones that might not agree with you.

Was your stoma in 2005 higher up in your digestive tract? When they are higher up there isn't enough time for nutrients to be absorbed and you'll lose weight, not gain it shakehead I definitely don't have THAT problem shocked

During your post op days you have to be careful with blockages because your body is swollen from surgery. Once you've recovered most people can go back to eating as they did before. It's very individual...just like our reasons for having stomas...so it's a lot of trial and error!

mom_2 JnJ
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Date Joined Nov 2009
Total Posts : 146
   Posted 10/1/2010 10:31 AM (GMT -6)   
  I wonder if maybe he did put it high. Maybe that would explain why my liver enzymes were high during that time too. My family doctor freaked out about it but the surgeon did said it is common.

Christine1946
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Date Joined Aug 2008
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   Posted 10/1/2010 6:02 PM (GMT -6)   
     I never heard about the liver enzymes being high.  That's a new one.  I just had my liver enzymes checked because I have a yeast infection and my GP wanted the results before giving me Diflucan.  Anyway, back to eating tongue .....I eat everything...but...chew, chew and chew some more.  My daughter asked me how many times I chewed a bite of my hamburger at Friendlys so I counted.....65 times.  Wow...no wonder I fill up fast.  By the way, I have a perm ileo.

mom_2 JnJ
Regular Member


Date Joined Nov 2009
Total Posts : 146
   Posted 10/1/2010 7:38 PM (GMT -6)   
 I got pretty paranoid about it so I took the plunge and googled it. I usually do not do that since google can scare 10 years off of my life but instead I found some relief. I found that certian infections and antibiodics can raise liver enzymes. I had just healed from a raging infection. The surgeon said he had to pull everything out and rince the infection off. Then I was on many many many very high powered antibiodics. So I am pretty sure all the drugs plus the infection had my enzymes up and the surgeon figued that was the cause so he did not worry about it. They have never been up again so that must be from being so very sick and all the drugs they had me on.

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 10/2/2010 1:32 PM (GMT -6)   
mom

I had peritonitis after my colectomy/ileostomy. A week after the surgery at home I was in pain and had almost no blood pressre. I live in a small town in northern Michigan. Hospital is small. Has only 12 beds. They couldn't handle peritonitis. They flew me by helicopter to a hospital near Detroit. Almost didn't make it. I remember the surgeon telling me "We haven't lost anybody yet and you're not going to ruin our record".

The main thing I am careful of eatng is anything stringy. Steamed cabbage.....I don't eat the hard stalk part. Snow peas...I pull the strings off before cooking. Corn on the cob.....I don't eat it if it is not tender. I tried popcorn....never again. Pretty much trial and error. Add something you are not sure of to a meal with tried and true food.

Dan
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