Back home from Ileo reversal (take down) but not happy

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 10/1/2010 7:03 AM (GMT -6)   
Hi to you all
 
I had my reversal just a week ago and I am very anxious and depressed. I wished i never lost my bag now.  I am only going in small amounts all around 10 times a day, and i thought I would have more output.  It is completely different compared to what comes out in the bag and doesnt have that smell at all, but why such small amounts? Cant do this forever. I only started to eat 'properly' on Wednesday really and today is Friday so is it early days?
 
xx
 
Karen - 48 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection-partial volvulus (this dr thought it would help!)resulting in worsening of colonic inertia
March 2009: Total Colectomy withloop Ileostomy - awaiting closure
 
 

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 10/1/2010 7:56 AM (GMT -6)   
Karen,
good to hear from you! i had the same problem after my colectomy a yr ago, it was only in small amounts (1-2 spoons each time). but it doesn't neccesarily mean that it'll be like this for you. i think right now it's too early to know; at this moment we can't know how it'll be like for you, there's still chance things will change for the better. i can understand you're being anxious, but give it some time to see how it goes. i'm praying it works out for you. but in any case, there's always a way out if it doesn't.

how does the scar where your ostomy was looks like?

hope you're feeling ok. love and hugs!!!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 10/1/2010 8:54 AM (GMT -6)   
Thanks Hodaya I do hope so.....
 
I still have little strips covering the scar - it is a bit lumpy and bloated in that area still and today i have a crampy tummy ache.  xx
1997: Diagnosed IBS[/color]

2006: STARR surgery for mucosal prolapse/Obstruction


2007: Sigmoid resection-partial volvulus (this dr thought it would help!)resulting in worsening of colonic inertia

[color=#0000ff>March]oop Ileostomy
23 Sept 2010: Ileostomy reversed

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 10/1/2010 11:26 AM (GMT -6)   
It is still so early! At the start your J pouch only holds about 50mls of stool. Over the next months it will stretch to the point that it can hold about 500mls. It also learns to absorb water and the stool will really thicken up. Take a deep breath, relax and give your body time to adjust. You actually sound like you are doing very well for 1 week post surgery

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 10/1/2010 12:39 PM (GMT -6)   
Thanks.  I dont have a j pouch though.
1997: Diagnosed IBS[/color]

2006: STARR surgery for mucosal prolapse/Obstruction


2007: Sigmoid resection-partial volvulus (this dr thought it would help!)resulting in worsening of colonic inertia

[color=#0000ff>March]oop Ileostomy
23 Sept 2010: Ileostomy reversed

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 10/1/2010 8:45 PM (GMT -6)   
2much2bear.....I apologize. When I saw ileostomy reversal my mind went to a J pouch. I am sorry. I don't have experience for you but hopefully someone who does will be by soon. It still seems to me that if you only began to really eat on Wednesday that it is still very early. Hang in there.

Again, I am sorry,

Cathy

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 10/2/2010 5:05 AM (GMT -6)   
That is no problem - thank you for your encouragement i appreciate it.

Karen xx
1997: Diagnosed IBS[/color]

2006: STARR surgery for mucosal prolapse/Obstruction


2007: Sigmoid resection-partial volvulus (this dr thought it would help!)resulting in worsening of colonic inertia

[color=#0000ff>March]oop Ileostomy
23 Sept 2010: Ileostomy reversed

calypso007
New Member


Date Joined Nov 2010
Total Posts : 7
   Posted 11/4/2010 9:15 PM (GMT -6)   
Hi 2much2bear,
I am considering reversal of my ileostomy but i only have a sigmoid colon and rectum left. How much colon did you have left? I am new to this sight and not sure what i'm doing.


calypso

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 11/5/2010 4:30 AM (GMT -6)   
Hi Calypo
 
This is the place to be and find support and info - albeit from pple who have gone through similar experiences.
 
It all depends on why you had the bowel removed in the first place .  If colonic inertia like me then recovery is very much a personal thing.  I had my entire large bowel removed (it was recommended not to leave any as woudl be counterproductive).  I have no problem with continence at all even though i had a little bit of rectum removed also, but having slow bowel issues again it seems - i have an appt on 12 nov for my first follow up so will see what they say....
 
The best place to get info on here is to go to the Total Colectomy threads - we are on part 38 right now - if you scroll down on tthe topic page you will see it.  There are loads of those threads and they get locked once they are full. 
 
 
 
 
Karen 48 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR surgery for mucosal prolapse/Obstruction/diagnosed slow transit constipation
2007: Sigmoid resection-partial volvulus resulting in worsening of colonic inertia (cleared obstruction though)
March 2009: Loop Ileostomy
23 Sept 2010: Ileostomy reversal

Gilda
Regular Member


Date Joined May 2009
Total Posts : 194
   Posted 11/6/2010 1:02 PM (GMT -6)   
Karen, I am a little confused as to what they actually did with your ileolstomy reversal. Did they reconnect your small intestine to your rectum; no pouches, everthing internal? whay did you have the reversal?

Thanks,
Gilda

Stacey4127
New Member


Date Joined Nov 2009
Total Posts : 16
   Posted 11/7/2010 7:19 PM (GMT -6)   
Hi 2much2Bear

It has been almost a year since my colectomy, ileostomy placement and reversal. I have to say I was having the same problems you are having for the first 6 -8 months and then things started to work themselves out. I am doing very well now, I still go to the bathroom about 6-8 times a day, but I am never constipated and it is so much better to get it out then it staying in. I just wanted to let you know it does get better with time, but it does take time. Hang in there

Stacey
1994>
1998 - emergency laparotomy ovarian cyst


1999>

2000 - total hysterectomy - laparotomy

2001>

2001 - laparotomy due to complications of previous surgery

2003>

2006 - laparoscopy removal of adhesions

2009>

2009 - 12/26/09 - open laparotomy due to leak from subtotal colectomy - ileostomy placed

2009 - 3/2009 [ REVERSAL SCHEDULED] - Reversal cancelled due to stricture of intestine. Reversal date has now been pushed to June.

5/10/2010 - 5/17/2010 - open surgery for removal of adhesions and reversal of ileostomy
now time to recover and try to get on with my life!!!!! Finally!!!!

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 11/8/2010 5:27 AM (GMT -6)   
Hi Stacey
 
that is good news - thanks.... did you have colonic inertia prior to colectomy?  Yes i do hope it does get better for me - thanks for the encouragement - much appreciated.
Karen 48 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR surgery for mucosal prolapse/Obstruction/diagnosed slow transit constipation
2007: Sigmoid resection-partial volvulus resulting in worsening of colonic inertia (cleared obstruction though)
March 2009: Loop Ileostomy
23 Sept 2010: Ileostomy reversal

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 11/8/2010 5:33 AM (GMT -6)   
Gilda
 
When they did the colectomy in march 2009 they connected the end of the small bowel to the rectum yes , and then took a loop of small bowel through the abdomen for the ileostomy. 
 
A loop ileostomy is never permanent - otherwise they would do an 'end' ileostomy and hence no join inside onto the rectum....it is usually a 'means to an end' e.g. to let internal incisions heal etc ....
 
lots of ppl have reversals and are doing great - except for me right now.... i am struggling with constipated issues still but as stacy said need to take time to see how it all pans out.  hope you are getting all the info you need... do you feel you understand more about it now???
Karen 48 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR surgery for mucosal prolapse/Obstruction/diagnosed slow transit constipation
2007: Sigmoid resection-partial volvulus resulting in worsening of colonic inertia (cleared obstruction though)
March 2009: Loop Ileostomy
23 Sept 2010: Ileostomy reversal
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 2:42 AM (GMT -6)
There are a total of 3,005,630 posts in 329,243 threads.
View Active Threads


Who's Online
This forum has 161788 registered members. Please welcome our newest member, Nederfield44.
204 Guest(s), 3 Registered Member(s) are currently online.  Details
Sarge 83, Saipan Paradise, BOB 46