Anyone have an ostomy and still get flare ups of Crohns?? or has anyone expereinced a stomach flu

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katiesmommy1
Regular Member


Date Joined Aug 2009
Total Posts : 94
   Posted 10/4/2010 11:57 AM (GMT -6)   
I already posted this on the Crohn's forum, someone suggested to try the ostomy forum as well.
I just want to know if my daughters behavior is normal for someone who had a stomach virus/ear infection or do you think it's signs of Crohn's?


My daughter was diagnosed with UC July 2009, she was severely ill and had to have a colectomy in Nov. 2009. After her surgery the biopsy of her colon suggested it wasn't UC and more like Crohns. So the doc's changed her diagnose to Indeterminate Colitis favoring Crohns. Since last Nov. she's been doing really well. Eating well, growing and gaining weight just like other children. She hasn't been on and meds since last year.
A few days ago she wakes up with a high fever, throwing up and had a severe ear infection. I of course just thought it was a stomach flu however her doctors ran test's b/c they thought it could be a flare up. Now it's been 4 days and she's stopped vomiting, no fever since Saturday but she isn't eating like herself yet. Her eyes still have black circles underneath them.
she keeps complaining that she can't eat b/c her belly hurts. She'll eat a little, very little and then says she can't eat anymore.

Does anyone have any experience with a flare up with an ostomy?

Her white blood cells were elevated but her doctor's were contributing that to her ear infection. Plus there isn't any blood in her stools. I have to wait till the end of the week to see her GI doc. since he is out of town.

I'm so worried since it's only been 10 months since all of this happened.
Just looking for other input.
thanks in advance,

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 10/4/2010 2:12 PM (GMT -6)   
Ohhhhh I know what she is going through and the nervousness you are feeling! Last month, 9 months after I received a colostomy (due to severe Crohn's) I too thought I was having a flare. I had a fever, my tummy hurt and I didn't want to eat anything. I went to the Dr. and after some test's, it was revealed I simply had a stomach bug. Us Crohnies don't really know what it feels like to have the flu/cold/bug's that most people have because when we do have them we attribute any pain/fever/vomitting to the illness rather then something common.
You have done the right thing by having test's done! The anticipation is always worse then the outcome in my opinion. Just keep a close eye on your daughter's output and make sure she has LOT's of fluids.

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

katiesmommy1
Regular Member


Date Joined Aug 2009
Total Posts : 94
   Posted 10/4/2010 5:23 PM (GMT -6)   
Thank you Allison, I'm so glad to hear that other ppl have experienced the same feeling.
It's funny b/c I think my daughter has me wrapped around her finger..it seems that her belly only hurts when there is food that she doesn't want to eat in front of her. She had no problem eating gummies, cheesedoodles, and other snacks. ;)
I think she's getting better. I forget that she is a kid and that the stomach flu can kick even an adults butt so I should just be patient with her.

A quick question for you though since you said you had severe Crohns... Did you change your diet after your ostomy? Do you still eat like you have Crohns..no fried food, no dairy, etc. Just wondering?

thanks again for everything.

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 10/4/2010 7:53 PM (GMT -6)   
I had/have Crohn's, and I am definitely eating more of what I didnt' used to eat, because my Crohn's was mostly in my colon and now it's GONE! :)

I mean, I'm careful, but I'm not eating like I was before the surgery. That's for sure.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 10/5/2010 1:22 AM (GMT -6)   
I am probably the worst person to ask that question, 2 days out of the hospital I ate at Whopper with Cheese from Burger King! I eat EVERYTHING and I do mean everything. 13 years of no dairy, nuts, fried foods, no meat for the last 3, creamy deserts, spices, popcorn...I could go on but we all know what it's like. After the surgery I wasn't given any restrictions on what I could eat and the scale has gone from 123 lbs on the day of surgery to 161 lbs this morning. The other day I demolished a Blizzard from Dairy Queen, and when the tell tale signs of the sick/sore tummy and throwing up didn't happen, I seriously debated having another!
I stayed away from nuts and seed's at the begining but soon realized that I can eat anything and everything!!!!

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."
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