I have Crohn's also and now a permanent ileo. I would never have opted for the J pouch--too much risk of developing Crohn's there. I had my rectum removed when I had my original surgery, and I don't regret it at all. There are possible complications, but all can be taken care of, unlike the constant mucus situation you have. I had mine done 7 months ago now and it was fine. Uncomfortable for the first month or so but then it was fine.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention).