Reverse it or not?

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pswift520
Regular Member


Date Joined Sep 2010
Total Posts : 91
   Posted 10/10/2010 2:08 PM (GMT -6)   
This is my story.
I am a 51 year old female with an ileostomy.
On April 23, 2010 I got up that morning to nothing by hugh amounts of bloody diarrhea.
I went to the local hospital (where I am also employed). They drew blood, my counts was a little low but not to bad just then.  The ER doctor who I did know decided to do a CT.  While in CT I passed out. (Just what everyone wants to do in front of their co-workers.) They thought I had had a heart attack.  They did more blood work.  My blood was extremely low then because I had had another BM.  The doctor said the CT showed I had a mass on my colon and that it was cancer. He said they called my surgeon and  they were putting me in ICU and getting me ready for surgery.  The surgeon come in to see me and assured me he would do all he could for me. The surgery was done so we waited for the pathology report which thank God come back I had UC, no cancer.  I come home in 6 days.
May 9th Mothers Day my wound busted open, (it had been seeping). I went back to the hospital.  They thought I had a wound infection.  Turned out to be a fistula. Great, I get a central line and no food from May 14th till July 22nd. They tried the wound vac on me but for some reason it would not work for me. In the mean time I went back in for more bleeding and had more blood. Also again for pneumonia. The last time I was there my surgeon decided to send me somewhere else.  Thank goodness he did.  My new surgeon run test on me I never heard of.  He did a c-scope and said that I DID NOT have UC.  He said my colon was in terrible shape and would have to come out.  He said he did not take out all of my colon so he did the ileostomy and told me that we could reverse it in a few months. That was on July 31st. I have been back to him and he tells me that he wants to do another c-scope to see what the colon that he left in looks like.  If it looks good we will reverse it, if not then he will send me to another surgeon for something else. 
I am really confused about all this.  I did have the running to the bathroom all the time before. I couldn't eat if I was going to be going somewhere. Is that the way it will be again if I have it reversed or something else?.  I don't want that.  I am happy right now.  It has taken me awhile to get to this point but I can do anything I want to right now.  I can eat and travel. My biggest concern is having a leak now. But I have learned alot and as of last Thursday I have not had a leak in 4 weeks..I don't want to go back to the way things were. Can I just keep this ileostomy and live my life as I am now or is there something else I have to do to make it permanate?
Sorry if this is rambling but I just don't want to go backwards.  I want to live without being tied to the restroom. Thanks for listenting. 
Oh and by the way I did go back to work after 4 1/2 months and everyone was fantastic.  
 
Pam

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 10/10/2010 9:56 PM (GMT -6)   
Hi Pam,
Wow you sure have been through some tough times, and lots of docs making the wrong call, sounds terrible. I have a permanent ileostomy and also am very happy with it as it has given me quality of life too, so I understand where your coming from. I thought if you still had some colon left that you would have a colostomy and an ileostomy was when they removed your entire colon. I think if your happy with your life as it is then you need to discuss this with your surgeon because its your life and you need to be happy with the decisions made as far as your health goes. Ultimately its your choice, I hope things work out for you, good luck and keep us posted
Doreen

KennyT
New Member


Date Joined Sep 2010
Total Posts : 9
   Posted 10/12/2010 8:05 PM (GMT -6)   
Doreen I assume the reason Pam would have an ilesotomy now would be to allow her colon to heal following the surgery. I had something similar but mine was due to a perforated bowel. The initial operation removed part of my colon and a colostomy was put in place. Then about 7 months later I went back in to have my colon reattached and this is when the ileostomy replaced the colostomy. As I said earlier this done to allow the colon sufficient time to heal before being used once again.

Pam I dont know whether I am just lucky or what but I could not be happier with the results of my ilesotomy reversal which was carried out last week. I had read and heard of many horror stories but about 5 days after my surgery I had my first bowel movement and much to my surprise my stool was quite solid and I have not been rushing to the toilet at all yet. On top of this I have only had 1 bowel movement a day for the past 3 days. Considering my op was last Tuesday (8 days) I am extremely happy with the outcome at the moment.

I wish you all the best.

Ken

pswift520
Regular Member


Date Joined Sep 2010
Total Posts : 91
   Posted 10/13/2010 8:25 PM (GMT -6)   
KennyT, I am confused. You wrote that your ileostomy replaced the colostomy. Do you have an ostomy now or are you all reattached and working on your own. Another thing I would like for someone to explain to me as to what a j-pouch is and how it works.

KennyT
New Member


Date Joined Sep 2010
Total Posts : 9
   Posted 10/14/2010 5:25 AM (GMT -6)   
Hi pswift, yes I am all reattached now. Sorry about the confusion. I am now in the process of helping my digestive system return to some form of normal operation.

Just a quick explanation regarding a j-pouch. From what I am aware a j-pouch is a surgical treatment for sufferers of ulceritive colitis,colon cancer etc when the colon has to be removed completely. The pouch is constructed using the small intestine and is a storage area in place of the colon. Stools are stored in the pouch and are passed through the anus regularly.

Ken.
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