Scheduled for 2-stop j-pouch surgery on Jan. 3...lots of questions

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Disneynut66
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Date Joined Apr 2009
Total Posts : 587
   Posted 10/11/2010 5:39 AM (GMT -6)   
I am relieved and quite nervous about the surgery now that it is scheduled. I have been reading a lot of the posts here and it's like you are speaking a foreign language, lol. I am sure that I will be an expert soon, but is there a place I can look up all the information about "the appliance?" I think that's what the ostomy bag is called. For example, what happens to the waste? Is there a bag inside the bag that you just get rid of or do you dispose it in the toilet? What are these wafers you are talking about? Where do I order all this stuff? Will my insurance pay for it? Will the people at the Cleveland Clinic give me all this information when I am there? Should I order an ostomy belt before surgery?

Thanks so much and sorry if my questions sound stupid. I had no idea how there was so much involved!

Karen

answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 10/11/2010 6:16 AM (GMT -6)   
Karen, I have an ileostomy. Basically, the ileostomy is a piece of small intestines sewed outside of the abdomen and you then have to tape a wafer and then attach a bag to the wafer to catch the poop and gas. You then empty the bag into the toilet several times a day and change the wafer twice a week. Go to youtube and type in ileostomy. You can actually see their stomas and how they change their bags.

My insurance pays 80% for my supplies. While I was in the hospital, the ostomy nurse had an order sent to my home and after that, I got an Edgepark catalog and started ordering for myself. I also called the different manufacturers and they sent me some samples, so I gave each one try. I have since settled on Convatec. As far as an ostomy belt, my stoma nurse actually gave me one while I was in the hospital.

Good Luck, Tracy
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy
Take-Down-TBA
 


Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 10/11/2010 6:37 AM (GMT -6)   
Honestly, don't worry too much about what to order right now. The ET Nurse will set you up after surgery...sometimes we have to try a few different brands to find the one that works for us. They'll have all brands in the hospital and will work with you and your new stoma for the fit needed. If you need a belt, they will supply one, again we are all different in our post op needs.

You could contact your insurance company to see what their coverage will be based on YOUR insurance plan. They are all different so we cannot really compare one person's to another.

You can go to www.UOAA.org for educational links/info regarding ostomies...it's really helpful! Can you talk to someone, through your doc's office, that has an ostomy? That might help with your nervousness. I meet with patients after surgery and I know that really helps...maybe meeting someone before could be helpful for you?

p.s. there are NO stupid questions :-)
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

suebear
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Date Joined Feb 2006
Total Posts : 5698
   Posted 10/11/2010 7:33 AM (GMT -6)   
You will meet with an ostomy nurse at the hospital. Ask him/her to show you what the appliance looks like before your surgery. After your surgery you will have 4-5 days in the hospital to start using it and the ET nurse will train you on emptying and changing the appliance. You will be sent home with a week's worth of "one size fits all" wafers and bags but then will need to schedule a home visit with an ET nurse to get you sized and fitted correctly as your stoma will shrink in the first 2 weeks post op. All of this will be set up for you before you leave the hospital. I know you are having surgery out of state but the hospital social worker and your insurance company will make sure those details are taken care of.

Sue

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 10/11/2010 2:10 PM (GMT -6)   
Oh, thank you all! I won't worry now that I know they will help me handle all this. Of course, I'll worry about all the other stuff! I'll keep reading and getting educated.
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